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Acral litigious melanoma – looking for others with ALM to compare info and treatment
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Acral litigious melanoma – looking for others with ALM to compare info and treatment

› Forums › General Melanoma Community › Acral litigious melanoma – looking for others with ALM to compare info and treatment

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    • March 21, 2013 at 12:40 pm
    Maureen038
    Participant
      My husband has stage 4 ALM and we are looking for others with this rare melanoma to compare info and treatment by writing to my email [email protected]. He is negative in the mutations BRAF,NRAS, and c-kit, but is being tested for c- kit expression which can be positive even if its negative for c-kit mutation. He had a 1 cm lung nodule removed in October by Dr. Yang at Hopkins, but now has a 4 mm lung nodule in the other lung. It was 2 mm in January. We are waiting to hear from Dr. Yang for his opinion. Any suggestions are welcomed. Thank you for any help!

      My husband has stage 4 ALM and we are looking for others with this rare melanoma to compare info and treatment by writing to my email [email protected]. He is negative in the mutations BRAF,NRAS, and c-kit, but is being tested for c- kit expression which can be positive even if its negative for c-kit mutation. He had a 1 cm lung nodule removed in October by Dr. Yang at Hopkins, but now has a 4 mm lung nodule in the other lung. It was 2 mm in January. We are waiting to hear from Dr. Yang for his opinion. Any suggestions are welcomed. Thank you for any help!

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