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Acral lentiginous melanoma just diagnosed also have breast cancer 39 years old so lost

Forums General Melanoma Community Acral lentiginous melanoma just diagnosed also have breast cancer 39 years old so lost

  • Post
    Ddw
    Participant
      I just had a wide excision surgery on my heel. And they removed two groin lymph nodes and I’m waiting on pathology. So far the only information I had from shave biopsy it was a clarks level 3 with not clear margins. This is so different from breast cancer that I just finished chemo for in march. I have tripple positive breast cancer which means all hormone driven plus her 2 positive. I don’t know if the two cancers cross in any way. When they put the radioactive tracer in me my groin lit up and also my neck which I don’t understand. With my breast cancer I had a small tumor but it had already spread to my lymph node. I’m so confuse. If anyone could help I would appreciate it. I had the black spot on my foot for years my breast cancer oncologist told me we would worry about it later.
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    • Replies
        MoiraM
        Participant

          You have certainly had a hard time. Even having finished the chemotherapy, you must be adapting to the long-term therapy. Fingers crossed that the lymph nodes are clear of melanoma cells. Then you can forget it, because it has not spread.

          Melanoma and breast cancer are very different cancers and the treatment for the two are different. I very much doubt the two are related. You are probably just really unlucky.

          Was it a PET scan? They can be difficult to interpret because any area with lots of cellular activity lights up. Your melanoma specialist will put the pathology results and all the scan results together and use them to work out what is happening.

          I recommend that you concentrate on getting as heathy as possible . We know that a healthy immune system attacks melanoma cells. I know it sounds crazy, but being stressed will not help. Worrying can only do you harm, it cannot do you any good. Try to relax and spoil yourself.

          If you need further treatment (and hopefully you won't) it is very unlikely to be chemotherapy. It may or may not include more surgery. The best treatment for melanoma that has spread is immunotherapy, which is much more unpredictable than chemotherapy for breast cancer but can be very effective. Also, some melanomas are BRAF positive and there is a targetted therapy for this type.

          MoiraM
          Participant

            You have certainly had a hard time. Even having finished the chemotherapy, you must be adapting to the long-term therapy. Fingers crossed that the lymph nodes are clear of melanoma cells. Then you can forget it, because it has not spread.

            Melanoma and breast cancer are very different cancers and the treatment for the two are different. I very much doubt the two are related. You are probably just really unlucky.

            Was it a PET scan? They can be difficult to interpret because any area with lots of cellular activity lights up. Your melanoma specialist will put the pathology results and all the scan results together and use them to work out what is happening.

            I recommend that you concentrate on getting as heathy as possible . We know that a healthy immune system attacks melanoma cells. I know it sounds crazy, but being stressed will not help. Worrying can only do you harm, it cannot do you any good. Try to relax and spoil yourself.

            If you need further treatment (and hopefully you won't) it is very unlikely to be chemotherapy. It may or may not include more surgery. The best treatment for melanoma that has spread is immunotherapy, which is much more unpredictable than chemotherapy for breast cancer but can be very effective. Also, some melanomas are BRAF positive and there is a targetted therapy for this type.

            MoiraM
            Participant

              You have certainly had a hard time. Even having finished the chemotherapy, you must be adapting to the long-term therapy. Fingers crossed that the lymph nodes are clear of melanoma cells. Then you can forget it, because it has not spread.

              Melanoma and breast cancer are very different cancers and the treatment for the two are different. I very much doubt the two are related. You are probably just really unlucky.

              Was it a PET scan? They can be difficult to interpret because any area with lots of cellular activity lights up. Your melanoma specialist will put the pathology results and all the scan results together and use them to work out what is happening.

              I recommend that you concentrate on getting as heathy as possible . We know that a healthy immune system attacks melanoma cells. I know it sounds crazy, but being stressed will not help. Worrying can only do you harm, it cannot do you any good. Try to relax and spoil yourself.

              If you need further treatment (and hopefully you won't) it is very unlikely to be chemotherapy. It may or may not include more surgery. The best treatment for melanoma that has spread is immunotherapy, which is much more unpredictable than chemotherapy for breast cancer but can be very effective. Also, some melanomas are BRAF positive and there is a targetted therapy for this type.

              stars
              Participant

                I have no words. Firstly, that you are again confronted with a cancer scare. That is so unfair. Secondly, that an oncologist saw a possible melanoma and said 'we'll worry about that later'. Knowning how aggressive and dangerous melanoma is, I just cannot let that kind of thing go. You really should write a letter to whoever is in charge of that practice, or more. The melanoma is as dangerous as the breast cancer, maybe more so. For the doctor to ignore it seems really incompetent.

                I can't really provide any solace for the situation you find yourself in, but here is some more information on your specific type of melanoma, which is reasonably rare (1-3% of melanoma cases in fair skinned people, in New Zealand at least):

                http://www.dermnetnz.org/lesions/alm.html

                The most important part of your pathology is the Breslow depth, and whether it is a true measure or whether it's been dissected (in which case the true depth is hard to guage). You say margins weren't clear, but was that side margins or lower margin?

                I truly hope that your WLE (wide excision) and SLNB (lymph node biopsy) are both clear. You have had enough stress and worry! However, if they are not, I guess you need to take things one step at a time, just as you did with breast cancer. The good news, if there is any, is that there are more and more drugs available for melanoma – it's one of the first types of cancer that responds well to immunotherapies. Hopefully, that is not going to be something you need to worry about, but rest assured that even if you do get bad news on your WLE/SLNB, there is alot of hope.

                 

                stars
                Participant

                  I have no words. Firstly, that you are again confronted with a cancer scare. That is so unfair. Secondly, that an oncologist saw a possible melanoma and said 'we'll worry about that later'. Knowning how aggressive and dangerous melanoma is, I just cannot let that kind of thing go. You really should write a letter to whoever is in charge of that practice, or more. The melanoma is as dangerous as the breast cancer, maybe more so. For the doctor to ignore it seems really incompetent.

                  I can't really provide any solace for the situation you find yourself in, but here is some more information on your specific type of melanoma, which is reasonably rare (1-3% of melanoma cases in fair skinned people, in New Zealand at least):

                  http://www.dermnetnz.org/lesions/alm.html

                  The most important part of your pathology is the Breslow depth, and whether it is a true measure or whether it's been dissected (in which case the true depth is hard to guage). You say margins weren't clear, but was that side margins or lower margin?

                  I truly hope that your WLE (wide excision) and SLNB (lymph node biopsy) are both clear. You have had enough stress and worry! However, if they are not, I guess you need to take things one step at a time, just as you did with breast cancer. The good news, if there is any, is that there are more and more drugs available for melanoma – it's one of the first types of cancer that responds well to immunotherapies. Hopefully, that is not going to be something you need to worry about, but rest assured that even if you do get bad news on your WLE/SLNB, there is alot of hope.

                   

                  stars
                  Participant

                    I have no words. Firstly, that you are again confronted with a cancer scare. That is so unfair. Secondly, that an oncologist saw a possible melanoma and said 'we'll worry about that later'. Knowning how aggressive and dangerous melanoma is, I just cannot let that kind of thing go. You really should write a letter to whoever is in charge of that practice, or more. The melanoma is as dangerous as the breast cancer, maybe more so. For the doctor to ignore it seems really incompetent.

                    I can't really provide any solace for the situation you find yourself in, but here is some more information on your specific type of melanoma, which is reasonably rare (1-3% of melanoma cases in fair skinned people, in New Zealand at least):

                    http://www.dermnetnz.org/lesions/alm.html

                    The most important part of your pathology is the Breslow depth, and whether it is a true measure or whether it's been dissected (in which case the true depth is hard to guage). You say margins weren't clear, but was that side margins or lower margin?

                    I truly hope that your WLE (wide excision) and SLNB (lymph node biopsy) are both clear. You have had enough stress and worry! However, if they are not, I guess you need to take things one step at a time, just as you did with breast cancer. The good news, if there is any, is that there are more and more drugs available for melanoma – it's one of the first types of cancer that responds well to immunotherapies. Hopefully, that is not going to be something you need to worry about, but rest assured that even if you do get bad news on your WLE/SLNB, there is alot of hope.

                     

                      Ddw
                      Participant
                        Thank you so much for all your comments and advice. I will post as soon as I hear the pathology which should be today. I’m grateful for all your help and support. Diane
                        Ddw
                        Participant
                          Thank you so much for all your comments and advice. I will post as soon as I hear the pathology which should be today. I’m grateful for all your help and support. Diane
                          Ddw
                          Participant
                            Thank you so much for all your comments and advice. I will post as soon as I hear the pathology which should be today. I’m grateful for all your help and support. Diane
                            Ddw
                            Participant
                              Okay nurse called I will have more information Monday Monday when I go in but lymph nodes were clear and it was 1b. I have a follow-up appt w a dermatologist to actually get looked at from head to toe since I never have this week as well but hopefully this is all over with. My wide excision will take time to heal just like all my other surgeries but life can always be worse. Thanks.
                              Ddw
                              Participant
                                Okay nurse called I will have more information Monday Monday when I go in but lymph nodes were clear and it was 1b. I have a follow-up appt w a dermatologist to actually get looked at from head to toe since I never have this week as well but hopefully this is all over with. My wide excision will take time to heal just like all my other surgeries but life can always be worse. Thanks.
                                Ddw
                                Participant
                                  Okay nurse called I will have more information Monday Monday when I go in but lymph nodes were clear and it was 1b. I have a follow-up appt w a dermatologist to actually get looked at from head to toe since I never have this week as well but hopefully this is all over with. My wide excision will take time to heal just like all my other surgeries but life can always be worse. Thanks.
                                  Janner
                                  Participant

                                    For your own records, I would get a copy of all pathology reports.  Good news on stage 1b. 

                                    Janner
                                    Participant

                                      For your own records, I would get a copy of all pathology reports.  Good news on stage 1b. 

                                      Janner
                                      Participant

                                        For your own records, I would get a copy of all pathology reports.  Good news on stage 1b. 

                                        MoiraM
                                        Participant

                                          Excellent news! All the best for your recovery.

                                          MoiraM
                                          Participant

                                            Excellent news! All the best for your recovery.

                                            MoiraM
                                            Participant

                                              Excellent news! All the best for your recovery.

                                            stars
                                            Participant

                                              1B and clear SLNB is great news. It must have been quite thin, and thankfully has not spread tot hose nodes. Thanks for the update and take care!

                                              stars
                                              Participant

                                                1B and clear SLNB is great news. It must have been quite thin, and thankfully has not spread tot hose nodes. Thanks for the update and take care!

                                                stars
                                                Participant

                                                  1B and clear SLNB is great news. It must have been quite thin, and thankfully has not spread tot hose nodes. Thanks for the update and take care!

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