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access to yevoy

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  • Post
    • August 13, 2011 at 9:44 pm
    grungle
    Participant

    Hi all

    Hi all

    My wife has scondary melanoma of her liver, primary originally ciliary body melanoma.  Laparoscopy in March showed it was melanoma, although she has also had breast cancer in the past. She is braf negative.She has multiple tumors in her liver, but  none elswwhere at the moment. Because it has been slow moving our onclogist has advised us to play waiting game befoe he put her on Dacarbazine.  He is very vague about the use of yervoy in Queensland. During her yearly check up with her opthamologist, he advised us to try and get her on yervoy asap, which means she has to have failed another chemo first, hence the reason we are going on Dce.

    Our oncologist maintains no one in Queensland is administering yervoy .  I know peter mac is using it, i have contacted them a couple of times. Does anyone have any information on how,where we could get it in Queensland?  Also any idea if/when it goes on the PBS list what the a ball park cost figure might be. thanks.

Viewing 9 reply threads
  • Replies
      • August 13, 2011 at 10:12 pm
      Cooper
      Participant

      Check http://www.melanomaforum.org

      they are discussing this there.

      • August 13, 2011 at 10:12 pm
      Cooper
      Participant

      Check http://www.melanomaforum.org

      they are discussing this there.

      • August 13, 2011 at 11:48 pm
      MichaelFL
      Participant

      This drug (Yervoy) is called Elroy in Australia. It was approved for use in patients with previously treated or inoperable melanoma.

      While a separate study published in June showed similar improved survival rates for patients with newly diagnosed advanced melanoma, Bristol-Myers Squibb would be required to present more data to the Therapeutic Goods Association proving that the drug is safe in the broader patient population.

      Have your oncologist contact Bristol Myers directly. I do not know the cost there, but in the U.S. it is $30,000 a dose. Four doese are given, and then scanning is done.

      Michael

      • August 13, 2011 at 11:48 pm
      MichaelFL
      Participant

      This drug (Yervoy) is called Elroy in Australia. It was approved for use in patients with previously treated or inoperable melanoma.

      While a separate study published in June showed similar improved survival rates for patients with newly diagnosed advanced melanoma, Bristol-Myers Squibb would be required to present more data to the Therapeutic Goods Association proving that the drug is safe in the broader patient population.

      Have your oncologist contact Bristol Myers directly. I do not know the cost there, but in the U.S. it is $30,000 a dose. Four doese are given, and then scanning is done.

      Michael

      • August 14, 2011 at 10:22 am
      FormerCaregiver
      Participant

      Hi, I am from Melbourne. Sorry to read that your wife has tumours in her liver.
      Unfortunately, any melanoma in the liver is a serious development and suitable treatment
      must be started promptly. I think that if your oncologist doesn't know how to obtain
      Yervoy, then it is time to quickly find one that does.

      Here are some links to a support group that is based in Queensland, and hopefully they
      will be able to shed some light on this matter.
      http://www.melanomapatients.org/content/view/188743/217/ and
      http://www.melanomapatients.org/component/option,com_contact/task,view/contact_id,1/Itemid,239/

      Hope this helps.

      Frank from Australia

      • August 14, 2011 at 10:22 am
      FormerCaregiver
      Participant

      Hi, I am from Melbourne. Sorry to read that your wife has tumours in her liver.
      Unfortunately, any melanoma in the liver is a serious development and suitable treatment
      must be started promptly. I think that if your oncologist doesn't know how to obtain
      Yervoy, then it is time to quickly find one that does.

      Here are some links to a support group that is based in Queensland, and hopefully they
      will be able to shed some light on this matter.
      http://www.melanomapatients.org/content/view/188743/217/ and
      http://www.melanomapatients.org/component/option,com_contact/task,view/contact_id,1/Itemid,239/

      Hope this helps.

      Frank from Australia

      • August 15, 2011 at 11:40 am
      Cooper
      Participant

      Michael is incorrect, it isn't called Elroy but Yervoy, same name in Aussie as in US. Go to:http://forum.melanomaintl.org/toastforums/toast.asp?sub=show&action=posts&fid=4&tid=24271   for latest discussion.

        • August 16, 2011 at 12:54 pm
        MichaelFL
        Participant

        No, I am not wrong.

        Read on: 15 July 2011.

        http://www.thepharmaletter.com/file/105829/european-commission-and-australia-ok-bristol-myers-yervoy-and-novo-nordisks-flextouch.html

        Following a recent positive recommendation from the European Medicine Agency’s advisory panel, Bristol-Myers Squibb today announced that the European Commission has approved US drug major Bristol-Myers Squibb’s (NYSE: BMY) Yervoy (ipilimumab) for the treatment of adult patients with previously-treated advanced melanoma (The Pharma Letter May 23).

        Also yesterday, the Australian drug regulator cleared the drug for marketing, under the trade name Elroy, and there it will be offered free to patients until it can be added to the Pharmaceutical Benefits Scheme.

        • August 16, 2011 at 12:54 pm
        MichaelFL
        Participant

        No, I am not wrong.

        Read on: 15 July 2011.

        http://www.thepharmaletter.com/file/105829/european-commission-and-australia-ok-bristol-myers-yervoy-and-novo-nordisks-flextouch.html

        Following a recent positive recommendation from the European Medicine Agency’s advisory panel, Bristol-Myers Squibb today announced that the European Commission has approved US drug major Bristol-Myers Squibb’s (NYSE: BMY) Yervoy (ipilimumab) for the treatment of adult patients with previously-treated advanced melanoma (The Pharma Letter May 23).

        Also yesterday, the Australian drug regulator cleared the drug for marketing, under the trade name Elroy, and there it will be offered free to patients until it can be added to the Pharmaceutical Benefits Scheme.

        • August 16, 2011 at 1:17 pm
        MichaelFL
        Participant

        Call the drug what one wants as this information is only weeks old.

        Bottom line: If one oncologist is not willing to work witrh a patient, find another.

        • August 16, 2011 at 1:17 pm
        MichaelFL
        Participant

        Call the drug what one wants as this information is only weeks old.

        Bottom line: If one oncologist is not willing to work witrh a patient, find another.

      • August 15, 2011 at 11:40 am
      Cooper
      Participant

      Michael is incorrect, it isn't called Elroy but Yervoy, same name in Aussie as in US. Go to:http://forum.melanomaintl.org/toastforums/toast.asp?sub=show&action=posts&fid=4&tid=24271   for latest discussion.

      • August 15, 2011 at 5:09 pm
      jag
      Participant

      test

      • August 15, 2011 at 5:09 pm
      jag
      Participant

      test

Viewing 9 reply threads
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