I haven’t been on the board for a LONG time — I used to be julieincanada but I can’t figure out how to sign in under that with the brand new site!!!
Briefly my husband Peter was dx Stage 3 in August 2001. He was given the very dismal px of the time and had a node dissectrion, another surgery for a regional recurrence, a year of IFN and radiation. The treatment took a huge toll on him and our family. Peter ( we think because of having IFN and radiation at the same time) had severe brain fog and was off work for 7 years ( unable to drive for 3). He still has peripheral neuropathy , some bone necrosis in his rib from the radiation, and scarring from the radiation.
BUT he is here to tell about it. Was it easy ….no way….
the reason I decided to reconnect was a result of a conversation I had with our daughter yesterday. She was dx with a Brain Tumour 18 months ago.. the short term is wait and see post surgery and the long term in not very promising … she is 40. She has connected through a similar board for BT with a 16 year survivor … how great is that! Then I was thinking that there are probably many out there – they just get on with their lives and the “Board” time dwindles.
Soooo there is a survivor in BC In Canada who is 9 years post dissection, IFN, radiation and more that one bump in the road. He has a life, he has seen two grandchildren born and he has been back working for 3 years. Are we terrified everytime he goes for his annual check – you have to believe it …. He recently qualified for life insurance!!!
Soooo have the faith, focus on the success stories and in your darkest moments ( you have to believe we have had many) remember there is hope.
Julie
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