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9 years with Mel

Forums General Melanoma Community 9 years with Mel

  • Post
    jag
    Participant
      Well, 9 years and 2 days ago, I was diagnosed with melanoma on my birthday(or rebirthday-depending on how you see it). Life had plenty of rollercoasters since then-1 lung wedge biopsy, 6 rounds of biochemotherapy, 4 rounds of interleukin 2, complete removal of my left lung. 6 brain surgeries, 2 SRS procedures, 1 patch radiation, and finally out of the hospital for almost 2 years.

      Well, 9 years and 2 days ago, I was diagnosed with melanoma on my birthday(or rebirthday-depending on how you see it). Life had plenty of rollercoasters since then-1 lung wedge biopsy, 6 rounds of biochemotherapy, 4 rounds of interleukin 2, complete removal of my left lung. 6 brain surgeries, 2 SRS procedures, 1 patch radiation, and finally out of the hospital for almost 2 years. In the mean time, I have seen all of the major national parks, gotten engaged- then married, started my own veterinary housecall service, and just this year we had our first son and named him after my oncologist-Jedd.
      Life has turned around and improved immensly for me, yet I read here nearly everyday. I take my antiseizure meds everyday-but I’m slowly tapering.
      Next year I am considering running the NY marathon, not just for me, but for all of the other patients who haven’t made it, for all of the people trying to beat it, and to thank God for the gift of life.
      God Bless you all and much hope for NED in the future.

    Viewing 38 reply threads
    • Replies
        Fen
        Participant

          Congratulations on your 9 yr NED!!  Thanks so much for posting and giving hope to everyone who is struggling through treatments.    Run the marathon and let us know how you did.    Fen

          Fen
          Participant

            Congratulations on your 9 yr NED!!  Thanks so much for posting and giving hope to everyone who is struggling through treatments.    Run the marathon and let us know how you did.    Fen

            Fen
            Participant

              Congratulations on your 9 yr NED!!  Thanks so much for posting and giving hope to everyone who is struggling through treatments.    Run the marathon and let us know how you did.    Fen

              Rebecca and Bob
              Participant

                Congratulations! You have always been an inspiration for us and for anyone seeking out the positive outcomes. God Bless you and your family and keep enjoying each day.

                Rebecca

                 

                Rebecca and Bob
                Participant

                  Congratulations! You have always been an inspiration for us and for anyone seeking out the positive outcomes. God Bless you and your family and keep enjoying each day.

                  Rebecca

                   

                  Rebecca and Bob
                  Participant

                    Congratulations! You have always been an inspiration for us and for anyone seeking out the positive outcomes. God Bless you and your family and keep enjoying each day.

                    Rebecca

                     

                    lhaley
                    Participant

                      That is wonderful news!  With your melanoma you've been to hell and back but the "being back" part is the best.  You've been able to return to having a normal life with a new job and a great family!  Enjoy and I hope you never have to deal with mel again!

                      Linda

                      lhaley
                      Participant

                        That is wonderful news!  With your melanoma you've been to hell and back but the "being back" part is the best.  You've been able to return to having a normal life with a new job and a great family!  Enjoy and I hope you never have to deal with mel again!

                        Linda

                        lhaley
                        Participant

                          That is wonderful news!  With your melanoma you've been to hell and back but the "being back" part is the best.  You've been able to return to having a normal life with a new job and a great family!  Enjoy and I hope you never have to deal with mel again!

                          Linda

                          Kimmer
                          Participant

                            congratulations.

                            John (!!!) what you are too modest to mention but I will shout from the rooftops is how much help you are to those who are new, confused, frightened, and all of the emotions that go along with a melanoma diagnosis at any stage.

                            thank you. (generic enough?) : )

                            PS about that marathon….reading BORN TO RUN right now and considering running again in some of those funky minimalist shoes…you got any thoughts on that?

                            take good care, k.

                             

                            Kimmer
                            Participant

                              congratulations.

                              John (!!!) what you are too modest to mention but I will shout from the rooftops is how much help you are to those who are new, confused, frightened, and all of the emotions that go along with a melanoma diagnosis at any stage.

                              thank you. (generic enough?) : )

                              PS about that marathon….reading BORN TO RUN right now and considering running again in some of those funky minimalist shoes…you got any thoughts on that?

                              take good care, k.

                               

                              Kimmer
                              Participant

                                congratulations.

                                John (!!!) what you are too modest to mention but I will shout from the rooftops is how much help you are to those who are new, confused, frightened, and all of the emotions that go along with a melanoma diagnosis at any stage.

                                thank you. (generic enough?) : )

                                PS about that marathon….reading BORN TO RUN right now and considering running again in some of those funky minimalist shoes…you got any thoughts on that?

                                take good care, k.

                                 

                                lyndaloo
                                Participant

                                  Thank you for sharing, I love hearing stories like yours.  I wish all people fighting this disease NED!!  God Bless you.

                                  Lyndaloo

                                  lyndaloo
                                  Participant

                                    Thank you for sharing, I love hearing stories like yours.  I wish all people fighting this disease NED!!  God Bless you.

                                    Lyndaloo

                                    lyndaloo
                                    Participant

                                      Thank you for sharing, I love hearing stories like yours.  I wish all people fighting this disease NED!!  God Bless you.

                                      Lyndaloo

                                      hope4cure1
                                      Participant

                                        Oh John, your post makes a lot of us smile!  You are such an inspiration and great example of someone who pushes ahead with life, unwilling to let a diagnosis paralyze.   I hope you've scooped up your wonderful wife and baby ad danced around like a crazy man!!!!!

                                        Hope

                                        hope4cure1
                                        Participant

                                          Oh John, your post makes a lot of us smile!  You are such an inspiration and great example of someone who pushes ahead with life, unwilling to let a diagnosis paralyze.   I hope you've scooped up your wonderful wife and baby ad danced around like a crazy man!!!!!

                                          Hope

                                          hope4cure1
                                          Participant

                                            Oh John, your post makes a lot of us smile!  You are such an inspiration and great example of someone who pushes ahead with life, unwilling to let a diagnosis paralyze.   I hope you've scooped up your wonderful wife and baby ad danced around like a crazy man!!!!!

                                            Hope

                                            Phil S
                                            Participant
                                              Jag, We love to see your inspirational posts, love, love, love them! We also wish you many more years enjoying your family. Thanks for sharing your insight, your knowledge, and most of all your incredible story of success against the beast. You give us hope! Keep running and thanks in advance for honoring all of the warriors at the marathon next year. We are all a family, and it feels so good when one of us is doing well, keep it up! God bless, Valerie (Phil’s wife)
                                              Phil S
                                              Participant
                                                Jag, We love to see your inspirational posts, love, love, love them! We also wish you many more years enjoying your family. Thanks for sharing your insight, your knowledge, and most of all your incredible story of success against the beast. You give us hope! Keep running and thanks in advance for honoring all of the warriors at the marathon next year. We are all a family, and it feels so good when one of us is doing well, keep it up! God bless, Valerie (Phil’s wife)
                                                Phil S
                                                Participant
                                                  Jag, We love to see your inspirational posts, love, love, love them! We also wish you many more years enjoying your family. Thanks for sharing your insight, your knowledge, and most of all your incredible story of success against the beast. You give us hope! Keep running and thanks in advance for honoring all of the warriors at the marathon next year. We are all a family, and it feels so good when one of us is doing well, keep it up! God bless, Valerie (Phil’s wife)
                                                  momof2kids
                                                  Participant

                                                    It's great to hear of 9 years, cuz honestly I just passed 1 year of diagnosis, straight to Stage IV, and I have little hope of making it that long, I've always looked on the downside of things, so it's hard to change that, but seeing others going that far, it gives me a bit of a push to the HOPES that I can DO THIS, and just maybe my body , and the doctors, and treatments, can help me. 

                                                    Just have to hope that each treatment can work, or give that Melanoma a bit of a kick, that the next treatment can kick it a bit futher to the curb…I WANT 9 YEARS….I want to see my kids grow up.  I want to see my youngest start Kindergarten…

                                                    Very happy that you've beat the beast this far and hope you continue to!

                                                     

                                                    momof2kids
                                                    Participant

                                                      It's great to hear of 9 years, cuz honestly I just passed 1 year of diagnosis, straight to Stage IV, and I have little hope of making it that long, I've always looked on the downside of things, so it's hard to change that, but seeing others going that far, it gives me a bit of a push to the HOPES that I can DO THIS, and just maybe my body , and the doctors, and treatments, can help me. 

                                                      Just have to hope that each treatment can work, or give that Melanoma a bit of a kick, that the next treatment can kick it a bit futher to the curb…I WANT 9 YEARS….I want to see my kids grow up.  I want to see my youngest start Kindergarten…

                                                      Very happy that you've beat the beast this far and hope you continue to!

                                                       

                                                        jag
                                                        Participant

                                                          Pretty sure I was in your shoes about 7.5 years ago.  Never, never, never thought I had a chance.  when I went to brain mets I was sure it was over.  Here I am though.  Prayers for you to be able to get through this mess.  I don't know why the hell I am still here, and I won't ever be able to pay people back for what they have done for me.  Just trying to think of a way to pay things forward.  

                                                          jag
                                                          Participant

                                                            Pretty sure I was in your shoes about 7.5 years ago.  Never, never, never thought I had a chance.  when I went to brain mets I was sure it was over.  Here I am though.  Prayers for you to be able to get through this mess.  I don't know why the hell I am still here, and I won't ever be able to pay people back for what they have done for me.  Just trying to think of a way to pay things forward.  

                                                            jag
                                                            Participant

                                                              Pretty sure I was in your shoes about 7.5 years ago.  Never, never, never thought I had a chance.  when I went to brain mets I was sure it was over.  Here I am though.  Prayers for you to be able to get through this mess.  I don't know why the hell I am still here, and I won't ever be able to pay people back for what they have done for me.  Just trying to think of a way to pay things forward.  

                                                            momof2kids
                                                            Participant

                                                              It's great to hear of 9 years, cuz honestly I just passed 1 year of diagnosis, straight to Stage IV, and I have little hope of making it that long, I've always looked on the downside of things, so it's hard to change that, but seeing others going that far, it gives me a bit of a push to the HOPES that I can DO THIS, and just maybe my body , and the doctors, and treatments, can help me. 

                                                              Just have to hope that each treatment can work, or give that Melanoma a bit of a kick, that the next treatment can kick it a bit futher to the curb…I WANT 9 YEARS….I want to see my kids grow up.  I want to see my youngest start Kindergarten…

                                                              Very happy that you've beat the beast this far and hope you continue to!

                                                               

                                                              James from Sydney
                                                              Participant

                                                                Hey John well done, keep kicking goals and lets look forward to Jedd's 21st birthday.

                                                                cheers

                                                                James

                                                                James from Sydney
                                                                Participant

                                                                  Hey John well done, keep kicking goals and lets look forward to Jedd's 21st birthday.

                                                                  cheers

                                                                  James

                                                                  James from Sydney
                                                                  Participant

                                                                    Hey John well done, keep kicking goals and lets look forward to Jedd's 21st birthday.

                                                                    cheers

                                                                    James

                                                                    kammariel
                                                                    Participant

                                                                      Congratualtions on your improving health! There are only a few of you on this board with a history of brain mets who are beating it, and you're the only people giving me real hope at this point. My husband is going in for his 7th crani this Thursday. Any chance I could contact you by email for some support/advice?

                                                                      kammariel
                                                                      Participant

                                                                        Congratualtions on your improving health! There are only a few of you on this board with a history of brain mets who are beating it, and you're the only people giving me real hope at this point. My husband is going in for his 7th crani this Thursday. Any chance I could contact you by email for some support/advice?

                                                                        kammariel
                                                                        Participant

                                                                          Congratualtions on your improving health! There are only a few of you on this board with a history of brain mets who are beating it, and you're the only people giving me real hope at this point. My husband is going in for his 7th crani this Thursday. Any chance I could contact you by email for some support/advice?

                                                                            jag
                                                                            Participant
                                                                              No problem!
                                                                              jag
                                                                              Participant
                                                                                No problem!
                                                                                jag
                                                                                Participant
                                                                                  No problem!
                                                                                Charlie S
                                                                                Participant

                                                                                  You know what JagJohn? Many come here obsessed with the thought of dying.  You on the other hand have always sought a prescription for living and it has been filled.

                                                                                  I own one hat and never wear it, but in reading your post know this:  I went and fetched that hat, put it on, took it off and tipped it to you.

                                                                                  Sure not all will make it to where you are, but many will, and i it is good to hear from one who has.

                                                                                  Great job, great life and again, my (one) hat is off to you for your ability to work the problem.

                                                                                  My best to you and your family.

                                                                                  Cheers,

                                                                                  Charlie S

                                                                                  Charlie S
                                                                                  Participant

                                                                                    You know what JagJohn? Many come here obsessed with the thought of dying.  You on the other hand have always sought a prescription for living and it has been filled.

                                                                                    I own one hat and never wear it, but in reading your post know this:  I went and fetched that hat, put it on, took it off and tipped it to you.

                                                                                    Sure not all will make it to where you are, but many will, and i it is good to hear from one who has.

                                                                                    Great job, great life and again, my (one) hat is off to you for your ability to work the problem.

                                                                                    My best to you and your family.

                                                                                    Cheers,

                                                                                    Charlie S

                                                                                    Charlie S
                                                                                    Participant

                                                                                      You know what JagJohn? Many come here obsessed with the thought of dying.  You on the other hand have always sought a prescription for living and it has been filled.

                                                                                      I own one hat and never wear it, but in reading your post know this:  I went and fetched that hat, put it on, took it off and tipped it to you.

                                                                                      Sure not all will make it to where you are, but many will, and i it is good to hear from one who has.

                                                                                      Great job, great life and again, my (one) hat is off to you for your ability to work the problem.

                                                                                      My best to you and your family.

                                                                                      Cheers,

                                                                                      Charlie S

                                                                                      FormerCaregiver
                                                                                      Participant

                                                                                        John, your attitude is truly inspirational!! You continue to defy the stats and give everyone here hope for the future. We need more people like you!!

                                                                                        You are in my thoughts and prayers.

                                                                                        Frank from Australia

                                                                                        FormerCaregiver
                                                                                        Participant

                                                                                          John, your attitude is truly inspirational!! You continue to defy the stats and give everyone here hope for the future. We need more people like you!!

                                                                                          You are in my thoughts and prayers.

                                                                                          Frank from Australia

                                                                                            Irish girl
                                                                                            Participant

                                                                                              Thank you so much for sharing your amazing battle, wishing you continued years of NED!

                                                                                              Irish girl
                                                                                              Participant

                                                                                                Thank you so much for sharing your amazing battle, wishing you continued years of NED!

                                                                                                Irish girl
                                                                                                Participant

                                                                                                  Thank you so much for sharing your amazing battle, wishing you continued years of NED!

                                                                                                  Irish girl
                                                                                                  Participant

                                                                                                    Thank you so much for sharing your amazing battle, wishing you continued years of NED!

                                                                                                    Irish girl
                                                                                                    Participant

                                                                                                      Thank you so much for sharing your amazing battle, wishing you continued years of NED!

                                                                                                      Irish girl
                                                                                                      Participant

                                                                                                        Thank you so much for sharing your amazing battle, wishing you continued years of NED!

                                                                                                      FormerCaregiver
                                                                                                      Participant

                                                                                                        John, your attitude is truly inspirational!! You continue to defy the stats and give everyone here hope for the future. We need more people like you!!

                                                                                                        You are in my thoughts and prayers.

                                                                                                        Frank from Australia

                                                                                                        JerryfromFauq
                                                                                                        Participant

                                                                                                          John,

                                                                                                             Seems kind  of amazing that we are still here helping others (people and animals!).  I am pleased that I have "known" you for so long,  You experiences give me hope if things get worse again for me, that there are still possibilities.. 

                                                                                                          JerryfromFauq
                                                                                                          Participant

                                                                                                            John,

                                                                                                               Seems kind  of amazing that we are still here helping others (people and animals!).  I am pleased that I have "known" you for so long,  You experiences give me hope if things get worse again for me, that there are still possibilities.. 

                                                                                                            JerryfromFauq
                                                                                                            Participant

                                                                                                              John,

                                                                                                                 Seems kind  of amazing that we are still here helping others (people and animals!).  I am pleased that I have "known" you for so long,  You experiences give me hope if things get worse again for me, that there are still possibilities.. 

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