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8 ipi/nivo treatments completed a year and a half ago…now heart trouble
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8 ipi/nivo treatments completed a year and a half ago…now heart trouble

› Forums › General Melanoma Community › 8 ipi/nivo treatments completed a year and a half ago…now heart trouble

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    • December 4, 2019 at 4:32 am
    Canadian melanoma wife
    Participant
      My husband hit his stage 4 diagnosis in Jan 2018 at the age of 33. He recieved whole brain radiation and was able to tolerate 8 ipi/nivo combination treatments before the decision was made to stop. In Jan 2019 he was declared NED. He is a champ and headed back to work in February and aside from some joint pain, headaches and a case of vitiligo he has faired pretty well. He had a PET in Aug 2019 that was clear but in November his CT came back showing a mass/lesion/spot on his heart. Echocardiogram came back inconclusive but assured us it was at least not a blood clot. He has a MRI scheduled this week. He did not have any prior heart disease, however he did have a tumor in front of and behind his heart when he hit the stage 4 diagnosis in 2018. His Oncologist is hopeful it is scar tissue caused by the previous presence of the tumors? Has anyone had any experience with heart troubles after stopping treatment? Or even experiencing scar tissue in areas of previous tumors? Heart disease? If so how was it treated? On a side note we are also scheduled to see a cardiologist and waiting for an appointment in the near future. Thanks in advance for your input.
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        • December 6, 2019 at 5:21 am
        JudiAU
        Participant
          Wow. Whole brain radiation and back to work! What a fighter! Thank you for sharing. I can’t answer your heart question but hopefully it will be revealed as scar tissue.
            • November 18, 2020 at 4:12 pm
            Canadian melanoma wife
            Participant
              Just an update for anyone looking. It turns out the mass in his heart is a calcified tumor. So basically a lump of dead tumor that his body has created a protective shell around. Cardiologist won’t remove it because he says it seems stable and not likely large enough to kill him if it came loose and would go to his lungs not his brain *eye roll*.
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