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7 Years NED after Ipi 10 mg/kg and GMCSF
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7 Years NED after Ipi 10 mg/kg and GMCSF

› Forums › Caregiver Community › 7 Years NED after Ipi 10 mg/kg and GMCSF

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    • July 4, 2019 at 1:58 pm
    Gene_S
    Participant
      July marks my husbands 7th year of NED after a Stage IV and clinical trial of Ipi 10 mg/kg and GMCSF daily self injections.

      At stage IV with and inoperable tumor on the Cervical Spine at C1 C2 area with several surface tumors in the same area and in the lungs and liver as well it was looking pretty grim but we watched the surface tumors melt away and it gave him new hope. If you would like to read more about his journey check out his profile. The lasting problem he has had is his body doesn’t produce enough cortisol and so he stays on 5 mg prednisone daily.

      Good Luck to all the fighters of this nasty disease.

      Judy the loving wife and caregiver to Gene

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    • Replies
        • July 5, 2019 at 2:42 pm
        MMH
        Participant
          I needed this today. Thank you for sharing this wonderful news!
          • July 5, 2019 at 4:55 pm
          MelMel
          Participant
            Terrific news Judy and thank you for sharing! Hoping more of us can look forward to similar results. Happy 4 th of July and many, many more!
            Melanie
            • July 6, 2019 at 6:15 pm
            Bubbles
            Participant
              Sorry for the daily side effects, but congrats on 7 years NED!!! It is amazing what science, research and ratties have done for melanoma peeps individually and all of us as a group! Thanks for sharing and thanks, Gene!!! celeste
              • July 6, 2019 at 11:38 pm
              EllieS
              Participant
                WOW seven year, I m so happy for you Judy and Gene!!!!!
                Personally, I know that a low dose of prednisone is a game changer and miracle drug.
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