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6 weeks on B-RAF

Forums General Melanoma Community 6 weeks on B-RAF

  • This topic has 6 replies, 3 voices, and was last updated 10 years ago by jag.
  • Post
    KellieSue
    Participant

    6 weeks on B-RAF and first scans today!

    Slight shrinkage.! Whoop! Of course I would have loved to hear, "We can't find anything on the scans. "  Ha! Since I know that
    won't happen I'll take some shrinkage.

    My neutrophil count was kind of low at 1100 and it has to be at 1500 per clinical trial rules so I have to stop taking it for a few days. I'll have another blood draw on Friday, not likely that it will go back up there in just 3 days, but here's hoping. (Guess I'll make some liver for dinner. ;)

    6 weeks on B-RAF and first scans today!

    Slight shrinkage.! Whoop! Of course I would have loved to hear, "We can't find anything on the scans. "  Ha! Since I know that
    won't happen I'll take some shrinkage.

    My neutrophil count was kind of low at 1100 and it has to be at 1500 per clinical trial rules so I have to stop taking it for a few days. I'll have another blood draw on Friday, not likely that it will go back up there in just 3 days, but here's hoping. (Guess I'll make some liver for dinner. ;)

    My dr. tried to convince them to let me keep taking it since I'm asystematic but it was a No-Go. My lymphocytes are still pretty high, likely the IL-2 still floating around in there maybe?
    So.. just waiting around now. Dr. wasn't worried about being kicked off the trial, this is just a hiatus.

    I feel pretty good. Side effects include some intermittent diarrhea, some acne that just started the last fews days and dry skin.

    Kellie(from Iowa) Stage IV on B-RAF

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  • Replies
      Fen
      Participant

       

      Here's hoping it is a short hiatus followed by a long period of wonderful news!

      Fen

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      Fen
      Participant

       

      Here's hoping it is a short hiatus followed by a long period of wonderful news!

      Fen

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      King
      Participant

      Kellie,

      I think shrinkage in only 6 weeks is a great sign.  You are responding!  I hope you can continue it real soon.  Unfortunately,  liver won't help your neutrophils so unless that's what you like to eat, I'd eat something a bit more tasty. :)

      Keep us posted.  Yeah!

       

      Stay Strong
      King

      Stage IV  7/05 Liver mets

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      King
      Participant

      Kellie,

      I think shrinkage in only 6 weeks is a great sign.  You are responding!  I hope you can continue it real soon.  Unfortunately,  liver won't help your neutrophils so unless that's what you like to eat, I'd eat something a bit more tasty. :)

      Keep us posted.  Yeah!

       

      Stay Strong
      King

      Stage IV  7/05 Liver mets

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      jag
      Participant

      Kellie, that is great news! 

      Very happy for you, hope that you melanoma shrinks to the point that it doesn't show up on scans or even a microscope.

      Best

      John

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      jag
      Participant

      Kellie, that is great news! 

      Very happy for you, hope that you melanoma shrinks to the point that it doesn't show up on scans or even a microscope.

      Best

      John

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