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5-year NED mark
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5-year NED mark

› Forums › General Melanoma Community › 5-year NED mark

  • Post
    • July 18, 2022 at 5:32 pm
    sister of patient
    Participant
      Hello and best wishes to all of you frequenting this board now, some names I know, many I don’t.

      Please forgive me for not finding it but I’m sure this same topic likely appears all over this forum – I admit to no longer being able to find my way around 🙁

      Just want to say I’m thrilled to report that my sister, Leisa, passed the 5-year NED line a couple of weeks ago. Targeted (taf/mek – BRAF+) and immunotherapies (ipi/nivo), combined with WBR (whole brain radiation – no way around it!!) did the total job of ridding her of this particular demon when it was extremely wide-spread (multiple tumours in numerous organs and bones and, literally, hundreds of micro-mets in the brain, plus many larger ones, 3 bleeding by the time of WBR).

      My greatest wish is that one day there will be an immunotherapy for all cancers – in the mel world, it is truly a miracle.

      Peace, much love and my very best wishes go out to everyone here >> patients, caregivers, families and friends!!

      Barb

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    • Replies
        • July 20, 2022 at 7:11 am
        SOLE
        Participant
          My best wishes to you and your sister Barb. I do recollect reading you when I arrived at this forum 6 years ago now.

          And thank you for the support you have given your sister. This is truly priceless.

          Marc

          • July 20, 2022 at 2:08 pm
          JudiAU
          Participant
            What a journey! Congratulations. That is exceptional.
            • July 21, 2022 at 8:06 am
            ThinkingPositive
            Participant
              Dear Sister,
              Congratulations to your sister and your family! Immunotherapy has made such a difference to many of us.
              Best,
              Cindy
              1 year NED
              • July 24, 2022 at 1:22 pm
              Bubbles
              Participant
                Oh, Barb!!! So happy for you and Leisa!!! You have been such a rock for her and many of us here. Wishing good things for you both in the coming years!!! Love, les
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