Hi, I have been reading but not posting. Wanted to wait until i had news of my 3rd Petscan Dec 6h.2nd Petwscan on 9/11 was great. The 6 tumors were either no longer visible or has really shrank.
3rd Petscan and most recent showed the original 6 still shrunk, but there are two new nodules.
Report reads-(FYI-FDG activity is the serum glucosa that glows where there is tumor activity.)
"1. There appears to be a new mesenteric nodule in the left anterior pararenal space and inferior to the tail the pancreas measuring 1.0cm (.39inch) with mild FDG activity. There is also a new right anterior abdominal wall nodule density with mild FDG activity measuring 1.1cm (.43inch) between the 8th and 9th right anterior ribs . The findings are nonspecific and may be concerning for new sites of metastatic disease. 2. There is interval new mild groundglass opacity in the me dial posterior right lower lung me asuring approximately 1.5cm (.59inch). There is a smaller irregular groundglass opacity in the posterior left lower lobe. The findings are likely compatible with infectious/linflammatory etiology." August 2017 i was scheduled for 4th opdivo/yervoy treatment. Canceled due to high liver panel. Hepatitis D due to treatment. I am finally down to 10mg of Prednisone from 100 i started with in Aug. If numbers stay the same this week ( I have blood tests one or twice a week to monitor ALT/AST) then Fri will be my last dosage of sterioids. And next week i will start my Opdivo maintenance of 1 hr every other week. This is the maintenance he originally told he I would start after the 4th treatment which i didn't get to have anyways. But would have after the 3rd. My 2nd Petscan was so encouraging he had said my body could use a rest and no treatments for awhile. But because of the two new nodules Dr wants me to get started on the maintenance. It's not 100% sure it is cancer but because of my metastatic melanoma history they are treating it as such. I did test postive to take target therapy but he said not yet. I am taking 100 mg of thyroid meds each mornng. Fatigue is my side effect now. And brain fog. Yeah finally going to be off Prednisone after 8.10.17!!
I know Opdivo/Yervoy combo works, wondering about just Opdvio as maintainence?
Thank you all for your advise and support.
Hoping you all had a nice Christmas and praying for a healthy NED 2018 for all of you!
Sharon, Simi Valley –
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