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3a Local Recurrence. Continue Nivo? part2

Forums General Melanoma Community 3a Local Recurrence. Continue Nivo? part2

  • Post
    guynamedbilly
    Participant
      I said I’d post again after I got the recommendation from the tumor board. So, here’s my brief treatment history. I originally had a thick tumor on the back of my scalp. It was removed in July 2017. I’ve been on Nivo ever since, every two weeks. I had a recurrence on the back of my scalp, near the original site, that started in December 2017, but it was so minor and did not show up on scans, so we thought it could have been a bad pimple. It disappeared and I felt it again in mid February. The first punch biopsy was negative, but the bump remained, so nearly four weeks later a second punch biopsy, twice as deep as the first was positive. So I had a second surgery in early April. The tumor was a very slow grower and didn’t show any uptake on the PET scan. 1.2cm diameter, fully resectable, nothing in the margins, no sign of it anywhere else.

      The tumor board reviewed my case both times, and they’ve recommended continuing with my regular Nivo treatment schedule, ending in August.

      I’m still feeling pretty positive about my chances at this point.

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        Julie in SoCal
        Participant

          Hi Billy,

          I was on Pembro, but I had a similar story with 4 intransits showing up seemingly randomly.  Surgery got rid of them, but I stayed with Pembro to 21 infusions.  I'm now NED.

          Hope NED is in your near future, too!

          Julie

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