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2 Years NED

Forums General Melanoma Community 2 Years NED

  • Post
    jbronicki
    Participant

      Hi all,

      Just passing along some positive news.  We got my husband's scan results at MD Anderson yesterday and still No Evidence of Disease.  We have done the wait and watch since his surgery 2 years ago.  He was initially thought to be Stage 4 nodular metastatic melanoma (scary words to hear) since his Breslow depth was 19 mm (I'm not missing a decimal point ๐Ÿ™‚ ) and there was no overlying epidermal component.  He does have the NRAS mutation.  I still remember getting his initial pathology back and seeing that everything he had (breslow depth, Clark level, mitotic rate, etc) was at the highest end of the spectrum and I would research and he had every indicator of immediate negative outcomes.  Our doctor here knows us as the couple who argues (we argue all the time at the doctors since I'm a researcher and my husband sees no point in researching, he is a "it is what it is" kind of guy).   It's hard to believe we are two years out.  As I was waiting on the 9th floor where the Melanoma wing is located, I always look around and think that maybe one of the MPIP bulletin board members is waiting too.  It's sobering to see all the people in the waiting room and hoping they are responding to treatment.  And of course, my thoughts drifted to Artie sitting in the same spot just several months before and it hurts the heart.   I just wish good stuff for everyone.  I'm going to lay off the research for a little bit, since our doctor told us that any adjuvant treatment and vaccine trials are not an option (too far out from original surgery and they would not risk the side effects at this point with NED) so we are in wait and watch path for the foreseable future.  We have a 7 yr old and now we have been approved for adoption so hopefully more good stuff to follow.  

      Cheers,

      Jackie

    Viewing 17 reply threads
    • Replies
        BrianP
        Participant

          Congrats Jackie.  Thanks for posting. 

          Hope you never have to jump back into the research mode. 

          Congrats on the adoption approval also.  Here's to a great and promising 2016!

          Brian

          BrianP
          Participant

            Congrats Jackie.  Thanks for posting. 

            Hope you never have to jump back into the research mode. 

            Congrats on the adoption approval also.  Here's to a great and promising 2016!

            Brian

            BrianP
            Participant

              Congrats Jackie.  Thanks for posting. 

              Hope you never have to jump back into the research mode. 

              Congrats on the adoption approval also.  Here's to a great and promising 2016!

              Brian

              jenny22
              Participant

                Jackie- Congratulations to you and your husband on such great news! 

                May it last forever….and additioanal congrats on your upcoming adoption!

                All the best!

                jenny

                 

                jenny22
                Participant

                  Jackie- Congratulations to you and your husband on such great news! 

                  May it last forever….and additioanal congrats on your upcoming adoption!

                  All the best!

                  jenny

                   

                  jenny22
                  Participant

                    Jackie- Congratulations to you and your husband on such great news! 

                    May it last forever….and additioanal congrats on your upcoming adoption!

                    All the best!

                    jenny

                     

                    jamieth29
                    Participant
                      Congrats!
                      jamieth29
                      Participant
                        Congrats!
                        jamieth29
                        Participant
                          Congrats!
                          AshleyS
                          Participant

                            Congrats. I hope you keep posting, year after year. I do the same thing when I'm on the 9th floor….

                            Ashley 

                            AshleyS
                            Participant

                              Congrats. I hope you keep posting, year after year. I do the same thing when I'm on the 9th floor….

                              Ashley 

                              AshleyS
                              Participant

                                Congrats. I hope you keep posting, year after year. I do the same thing when I'm on the 9th floor….

                                Ashley 

                                mkirkland
                                Participant

                                  Fantastic news!!! I am also a patient at MDA and do the exact same thing. I was there on Monday. ๐Ÿ™‚ Hoping for many, many (like forever many) years of NED!

                                  Misty

                                  mkirkland
                                  Participant

                                    Fantastic news!!! I am also a patient at MDA and do the exact same thing. I was there on Monday. ๐Ÿ™‚ Hoping for many, many (like forever many) years of NED!

                                    Misty

                                    mkirkland
                                    Participant

                                      Fantastic news!!! I am also a patient at MDA and do the exact same thing. I was there on Monday. ๐Ÿ™‚ Hoping for many, many (like forever many) years of NED!

                                      Misty

                                      democat
                                      Participant

                                        This sounds like my story, only I'm waiting to see whether I'm 3 years NED. All my numbers (Breslow, mitotic rate, Clark level) were off the charts I did a crazy amount of research as well. I ended up going with the watch and wait approach. I wish you all the best and hope your husband remains NED! I figure that my high mitotic rate means it would probably have recurred sooner rather than later – at least that's what I tell myself. So, two years is really a milestone!!

                                         

                                         

                                        democat
                                        Participant

                                          This sounds like my story, only I'm waiting to see whether I'm 3 years NED. All my numbers (Breslow, mitotic rate, Clark level) were off the charts I did a crazy amount of research as well. I ended up going with the watch and wait approach. I wish you all the best and hope your husband remains NED! I figure that my high mitotic rate means it would probably have recurred sooner rather than later – at least that's what I tell myself. So, two years is really a milestone!!

                                           

                                           

                                          democat
                                          Participant

                                            This sounds like my story, only I'm waiting to see whether I'm 3 years NED. All my numbers (Breslow, mitotic rate, Clark level) were off the charts I did a crazy amount of research as well. I ended up going with the watch and wait approach. I wish you all the best and hope your husband remains NED! I figure that my high mitotic rate means it would probably have recurred sooner rather than later – at least that's what I tell myself. So, two years is really a milestone!!

                                             

                                             

                                        Viewing 17 reply threads
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