14 to Charlie

Way to go, Charlie! When the shit hits the fan…you might as well enjoy what you can! Get some rest, buddy! C

Way to go, Charlie! When the shit hits the fan…you might as well enjoy what you can! Get some rest, buddy! C

Way to go, Charlie! When the shit hits the fan…you might as well enjoy what you can! Get some rest, buddy! C

If it makes you feel any better.. 4 infusions of Ipi was almost $200,000… obviously I don't have to pay that, but it's pretty crazy to see on the pharmacy bill.

Say hi to Bigfoot 🙂

If it makes you feel any better.. 4 infusions of Ipi was almost $200,000… obviously I don't have to pay that, but it's pretty crazy to see on the pharmacy bill.

Say hi to Bigfoot 🙂

If it makes you feel any better.. 4 infusions of Ipi was almost $200,000… obviously I don't have to pay that, but it's pretty crazy to see on the pharmacy bill.

Say hi to Bigfoot 🙂

Just wait until you peel.  Think of it as insurance paying for a chemical laser peel and then you get to do it again!  Yes, you can have peel on top of peel.  It looked like it was snowing wherever I went, but this is during summer in Hawaii!  I didn't know you can peel the inside of your eyelids and nostrils, but you can.

Yes, and my A– hole was so sore I would cry before I exploded.  You would have thought something crawled up inside me and died.  Poo-porrui or the One-drop helped to mitigate things a bit.

It was so cruel, they put my leash on just short of the commode so I was forced to use the stupid potty chair.  Talk about humiliating.  Then when finished, said I coldn't shower since I was no longer a patient.  My doc said just use the one in ICU.  I laughed because there isn't a shower in the ICU, I mean think about it?!  Most are in a coma and could care less.

I took a shower in the cardiac ward instead.  It was the bestest shower I have ever had.

I only "dreamed" about taking my dogs to the river for a swim.  I was speaking to the ceiling tiles at the time.

14 – totally awesome!

Hope it works for you.  At least the recovery is fairly quick.

KK

Just wait until you peel.  Think of it as insurance paying for a chemical laser peel and then you get to do it again!  Yes, you can have peel on top of peel.  It looked like it was snowing wherever I went, but this is during summer in Hawaii!  I didn't know you can peel the inside of your eyelids and nostrils, but you can.

Yes, and my A– hole was so sore I would cry before I exploded.  You would have thought something crawled up inside me and died.  Poo-porrui or the One-drop helped to mitigate things a bit.

It was so cruel, they put my leash on just short of the commode so I was forced to use the stupid potty chair.  Talk about humiliating.  Then when finished, said I coldn't shower since I was no longer a patient.  My doc said just use the one in ICU.  I laughed because there isn't a shower in the ICU, I mean think about it?!  Most are in a coma and could care less.

I took a shower in the cardiac ward instead.  It was the bestest shower I have ever had.

I only "dreamed" about taking my dogs to the river for a swim.  I was speaking to the ceiling tiles at the time.

14 – totally awesome!

Hope it works for you.  At least the recovery is fairly quick.

KK

Just wait until you peel.  Think of it as insurance paying for a chemical laser peel and then you get to do it again!  Yes, you can have peel on top of peel.  It looked like it was snowing wherever I went, but this is during summer in Hawaii!  I didn't know you can peel the inside of your eyelids and nostrils, but you can.

Yes, and my A– hole was so sore I would cry before I exploded.  You would have thought something crawled up inside me and died.  Poo-porrui or the One-drop helped to mitigate things a bit.

It was so cruel, they put my leash on just short of the commode so I was forced to use the stupid potty chair.  Talk about humiliating.  Then when finished, said I coldn't shower since I was no longer a patient.  My doc said just use the one in ICU.  I laughed because there isn't a shower in the ICU, I mean think about it?!  Most are in a coma and could care less.

I took a shower in the cardiac ward instead.  It was the bestest shower I have ever had.

I only "dreamed" about taking my dogs to the river for a swim.  I was speaking to the ceiling tiles at the time.

14 – totally awesome!

Hope it works for you.  At least the recovery is fairly quick.

KK

I just took a moment to catch up a bit on what's going on with you. In particular I like your explanation of why you chose IL-2 agin over some of the newer options. I identify with that quite a bit. I started with IL-2 when I hit stage 4 in 2011 and it also worked for me (unfortunately not for very long). I also haven't been particularly impressed with many of the newer options- particularly Ipi and now the combo of that and PD-1. I never liked Ipi, but ended up with it anyway, mostly based on insurance (and brain mets), failed that pretty spectacularly, then was basically forced onto the BRAF/MEK combo, which I didn't really want to do, but there were no other options as my brain mets kept me out of other trials and they were't willing to do IL-2 again (pesky brain mets). That failed pretty quickly as well. I ended up on PD-1, which did remarkably well for me for almost a year and a half, but then started to fail, leaving me where I am now. The option that all my docters were suggesting was to do the Ipi/PD-1 combo, but quite frankly, I see no point in trying a combination of drugs each of which have already failed, especially given that there is no data on people who have used the drugs in the past, but there is good evidence that the side effects are worse and there are more of them. 

I remember well what it was like to go through IL-2. I didn't count the number of bags I got each time, but I remember well the experience, which, as they told me it would be, was not pleasant. I do remember though that recovery was relatively quick, so I'm hoping that this works for you and wishing a quick recovery for you as welll. I have spent a lot of time in the past arguing for the choice of IL-2 with those who would argue that it should never be used. It has value and it's always a personal choice, and like you say- what works for one does not always work for another. 

Best of luck to you- hope it works again.

-Eva

I just took a moment to catch up a bit on what's going on with you. In particular I like your explanation of why you chose IL-2 agin over some of the newer options. I identify with that quite a bit. I started with IL-2 when I hit stage 4 in 2011 and it also worked for me (unfortunately not for very long). I also haven't been particularly impressed with many of the newer options- particularly Ipi and now the combo of that and PD-1. I never liked Ipi, but ended up with it anyway, mostly based on insurance (and brain mets), failed that pretty spectacularly, then was basically forced onto the BRAF/MEK combo, which I didn't really want to do, but there were no other options as my brain mets kept me out of other trials and they were't willing to do IL-2 again (pesky brain mets). That failed pretty quickly as well. I ended up on PD-1, which did remarkably well for me for almost a year and a half, but then started to fail, leaving me where I am now. The option that all my docters were suggesting was to do the Ipi/PD-1 combo, but quite frankly, I see no point in trying a combination of drugs each of which have already failed, especially given that there is no data on people who have used the drugs in the past, but there is good evidence that the side effects are worse and there are more of them. 

I remember well what it was like to go through IL-2. I didn't count the number of bags I got each time, but I remember well the experience, which, as they told me it would be, was not pleasant. I do remember though that recovery was relatively quick, so I'm hoping that this works for you and wishing a quick recovery for you as welll. I have spent a lot of time in the past arguing for the choice of IL-2 with those who would argue that it should never be used. It has value and it's always a personal choice, and like you say- what works for one does not always work for another. 

Best of luck to you- hope it works again.

-Eva

I just took a moment to catch up a bit on what's going on with you. In particular I like your explanation of why you chose IL-2 agin over some of the newer options. I identify with that quite a bit. I started with IL-2 when I hit stage 4 in 2011 and it also worked for me (unfortunately not for very long). I also haven't been particularly impressed with many of the newer options- particularly Ipi and now the combo of that and PD-1. I never liked Ipi, but ended up with it anyway, mostly based on insurance (and brain mets), failed that pretty spectacularly, then was basically forced onto the BRAF/MEK combo, which I didn't really want to do, but there were no other options as my brain mets kept me out of other trials and they were't willing to do IL-2 again (pesky brain mets). That failed pretty quickly as well. I ended up on PD-1, which did remarkably well for me for almost a year and a half, but then started to fail, leaving me where I am now. The option that all my docters were suggesting was to do the Ipi/PD-1 combo, but quite frankly, I see no point in trying a combination of drugs each of which have already failed, especially given that there is no data on people who have used the drugs in the past, but there is good evidence that the side effects are worse and there are more of them. 

I remember well what it was like to go through IL-2. I didn't count the number of bags I got each time, but I remember well the experience, which, as they told me it would be, was not pleasant. I do remember though that recovery was relatively quick, so I'm hoping that this works for you and wishing a quick recovery for you as welll. I have spent a lot of time in the past arguing for the choice of IL-2 with those who would argue that it should never be used. It has value and it's always a personal choice, and like you say- what works for one does not always work for another. 

Best of luck to you- hope it works again.

-Eva

You are a trooper. Hang in there and enjoy the buzz!

Kevin

You are a trooper. Hang in there and enjoy the buzz!

Kevin

You are a trooper. Hang in there and enjoy the buzz!

Kevin

I'm sorry IL-2 is so brutal for you, but it's entertaining for me, at least your recap of it is.  Way to make lemonade out of lemons!  Hope you feel better soon!

I'm sorry IL-2 is so brutal for you, but it's entertaining for me, at least your recap of it is.  Way to make lemonade out of lemons!  Hope you feel better soon!

I'm sorry IL-2 is so brutal for you, but it's entertaining for me, at least your recap of it is.  Way to make lemonade out of lemons!  Hope you feel better soon!

Joe Walsh! I've come late in life into appreciating his solo albums.

Anyhow, freedom/walking papers right around the corner for you now!!!

I think of IL2 now as a kind of "extreme sport". For me, each time was like facing jumping into a tunnel of unknown length. Kind of like the "tunnels" in the movie 2001 or Contact but not as fun, more like descending into a kind of Hades. Until 'emergence' it would feel like a blanket party, without end. 

I got to 10, 7, 9 and 4 bags. After the first or second bag I would not be in any kind shape to type into a computer.

My current oncologist does IL-2. He mentioned it as a possibility if the treatment I've been getting (Opdivo plus another drug) didn't work. He still treats with it. It stopped 8 lung mets in 2010 that have still not come back. 

Joe Walsh! I've come late in life into appreciating his solo albums.

Anyhow, freedom/walking papers right around the corner for you now!!!

I think of IL2 now as a kind of "extreme sport". For me, each time was like facing jumping into a tunnel of unknown length. Kind of like the "tunnels" in the movie 2001 or Contact but not as fun, more like descending into a kind of Hades. Until 'emergence' it would feel like a blanket party, without end. 

I got to 10, 7, 9 and 4 bags. After the first or second bag I would not be in any kind shape to type into a computer.

My current oncologist does IL-2. He mentioned it as a possibility if the treatment I've been getting (Opdivo plus another drug) didn't work. He still treats with it. It stopped 8 lung mets in 2010 that have still not come back. 

Joe Walsh! I've come late in life into appreciating his solo albums.

Anyhow, freedom/walking papers right around the corner for you now!!!

I think of IL2 now as a kind of "extreme sport". For me, each time was like facing jumping into a tunnel of unknown length. Kind of like the "tunnels" in the movie 2001 or Contact but not as fun, more like descending into a kind of Hades. Until 'emergence' it would feel like a blanket party, without end. 

I got to 10, 7, 9 and 4 bags. After the first or second bag I would not be in any kind shape to type into a computer.

My current oncologist does IL-2. He mentioned it as a possibility if the treatment I've been getting (Opdivo plus another drug) didn't work. He still treats with it. It stopped 8 lung mets in 2010 that have still not come back. 

Damnit Charlie!!! I hadn't seen you around here much though I honestly only check in periodically. I had hope that after your war, you retired and were living the good life. You we're one of the first people to respond to me 5 years ago….I remember clearly, "chewing bubble gum and kicking ass" is what you did and you were all out of bubble gum. Why do I have this feeling your out of bubble gum again? Hang in there brother…

Josh

Damnit Charlie!!! I hadn't seen you around here much though I honestly only check in periodically. I had hope that after your war, you retired and were living the good life. You we're one of the first people to respond to me 5 years ago….I remember clearly, "chewing bubble gum and kicking ass" is what you did and you were all out of bubble gum. Why do I have this feeling your out of bubble gum again? Hang in there brother…

Josh

Damnit Charlie!!! I hadn't seen you around here much though I honestly only check in periodically. I had hope that after your war, you retired and were living the good life. You we're one of the first people to respond to me 5 years ago….I remember clearly, "chewing bubble gum and kicking ass" is what you did and you were all out of bubble gum. Why do I have this feeling your out of bubble gum again? Hang in there brother…

Josh

Charlie,

I hardly ever reply to posts any more unless I have experience in the area but you hold a special spot in my heart.  You have always been so great with helping everyone and passing on wonderful information.  Keep posting and keep sharing you vivid experiences, you never know…they might help someone else.  In any case they are entertaining. 

I just wanted to let you know how much to mean to all of us.  Hang in there and keep counting those flowers on the wall (or in your case colon twists).

Mary

Charlie,

I hardly ever reply to posts any more unless I have experience in the area but you hold a special spot in my heart.  You have always been so great with helping everyone and passing on wonderful information.  Keep posting and keep sharing you vivid experiences, you never know…they might help someone else.  In any case they are entertaining. 

I just wanted to let you know how much to mean to all of us.  Hang in there and keep counting those flowers on the wall (or in your case colon twists).

Mary

Charlie,

I hardly ever reply to posts any more unless I have experience in the area but you hold a special spot in my heart.  You have always been so great with helping everyone and passing on wonderful information.  Keep posting and keep sharing you vivid experiences, you never know…they might help someone else.  In any case they are entertaining. 

I just wanted to let you know how much to mean to all of us.  Hang in there and keep counting those flowers on the wall (or in your case colon twists).

Mary

Hi Charlie

Gave Laura and Amber and Diane and Andrew the update of the IL2 treatment  

Good luck next round and we all hope to see you this summer either down there or up here in NJ for a get together

Going to Vancouver in Washington State as I mentioned.for work but not in the mood but there are worse places for our factories

If you want some bad electric guitar in your room, I will come and play but that would ruin any sleep for you!.  

See you

Mike K

Hi Charlie

Gave Laura and Amber and Diane and Andrew the update of the IL2 treatment  

Good luck next round and we all hope to see you this summer either down there or up here in NJ for a get together

Going to Vancouver in Washington State as I mentioned.for work but not in the mood but there are worse places for our factories

If you want some bad electric guitar in your room, I will come and play but that would ruin any sleep for you!.  

See you

Mike K

Hi Charlie

Gave Laura and Amber and Diane and Andrew the update of the IL2 treatment  

Good luck next round and we all hope to see you this summer either down there or up here in NJ for a get together

Going to Vancouver in Washington State as I mentioned.for work but not in the mood but there are worse places for our factories

If you want some bad electric guitar in your room, I will come and play but that would ruin any sleep for you!.  

See you

Mike K