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12 weeks have come and gone…had my last doses on Wednesday in the 12 week trial

Forums General Melanoma Community 12 weeks have come and gone…had my last doses on Wednesday in the 12 week trial

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    LynnLuc
    Participant

    12 weeks have come and gone…had my last doses on Wednesday in the 12 week trial titled "

    12 weeks have come and gone…had my last doses on Wednesday in the 12 week trial titled "

    Phase I Study of Anti-PD-1 Human Monoclonal Antibody MDX-1106 and Vaccine Therapy Comprising gp100:209-217(210M) Peptide, MART-1:26-35(27L) Peptide, gp100:280-288(288V) Peptide, NY-ESO-1 Peptide, and Montanide ISA 51 VG in Patients With Resected Stage IV Melanoma". Had to have a couple days of thyroid scans…and as the radiology doc says.."Ms Lynn it appears yout thyroid has conked out and we need to find out why!" My onc says it's expected and actually a good sign the immunotherapy is working since my T 4 is elevated…I don't have any of the good side effects like losing weight and having energy etc etc…I am butt dragging tired! My onc does want me to see the endocrine doc tho…next week I have my CT/MRI scans ( eeeek!!!) to follow up with the trial and see where I am at and another apheresis…hoping to still be NED and will continue to do this trial another 12 weeks….Dr Weber says for now he doesn't want to change a thing as I am doing extremely well

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      King
      Participant

      Lynn,

      Good luck on your scans next week or this week now, I guess.  Hopefully, some thyroid replacement meds will give you some energy.

       

      I know many are interested in this Phase I trial so we can all benefit from your experience.

       

      We share the same medical oncologist!

       

      Stay Strong

      King

      Stage IV 7/05 Liver mets

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      King
      Participant

      Lynn,

      Good luck on your scans next week or this week now, I guess.  Hopefully, some thyroid replacement meds will give you some energy.

       

      I know many are interested in this Phase I trial so we can all benefit from your experience.

       

      We share the same medical oncologist!

       

      Stay Strong

      King

      Stage IV 7/05 Liver mets

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      beckyherg
      Guest
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      beckyherg
      Guest
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      beckyherg
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      This actually answered my problem, thanks!
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