The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

11 months on half dose zel – quasi ned and stable – celebrating 4th mel anniversary.

Forums General Melanoma Community 11 months on half dose zel – quasi ned and stable – celebrating 4th mel anniversary.

  • Post
    beatricefromPARIS
    Participant

      good pet scan and brain mri yesterday.

      only one small spot at suv 3 left. stable from 3 months ago.

      zel goes on at half dose, prednisone stopped.

      4 years down the road since stage iv diagnosis. Never thought i'd make it that long when it started….

      Also never thought my straight scandinavian hair would turn into a beige-greyish version of the haircut of Michael Jackson young.

       

      Beatrice stage IV

      good pet scan and brain mri yesterday.

      only one small spot at suv 3 left. stable from 3 months ago.

      zel goes on at half dose, prednisone stopped.

      4 years down the road since stage iv diagnosis. Never thought i'd make it that long when it started….

      Also never thought my straight scandinavian hair would turn into a beige-greyish version of the haircut of Michael Jackson young.

       

      Beatrice stage IV

    Viewing 8 reply threads
    • Replies
        Hstevens0072
        Participant
          I’m so happy for you! Your results give me hope ๐Ÿ™‚
          Hstevens0072
          Participant
            I’m so happy for you! Your results give me hope ๐Ÿ™‚
            Hstevens0072
            Participant
              I’m so happy for you! Your results give me hope ๐Ÿ™‚
              NYKaren
              Participant
                Beatrice, such great news. Congratulations!!
                What a timely post for me. I’ve been semi-freaking out today about my & onc’s decision to go to 3/4 dose, month on, 2 weeks off.
                I bet you’re so happy to be off pred. I really hate that stuff. I went to pain management doc & she feels unremitting leg pain is muscular & at least partially do to pred.

                Beige grayish sounds interesting, I just got much more grey–Zel?? Lady Clairol box awaits.
                How long have u been on half dose and how long we’re you on pred?
                SO HAPPY FOR YOU.
                Hugs,
                Karen

                NYKaren
                Participant
                  Beatrice, such great news. Congratulations!!
                  What a timely post for me. I’ve been semi-freaking out today about my & onc’s decision to go to 3/4 dose, month on, 2 weeks off.
                  I bet you’re so happy to be off pred. I really hate that stuff. I went to pain management doc & she feels unremitting leg pain is muscular & at least partially do to pred.

                  Beige grayish sounds interesting, I just got much more grey–Zel?? Lady Clairol box awaits.
                  How long have u been on half dose and how long we’re you on pred?
                  SO HAPPY FOR YOU.
                  Hugs,
                  Karen

                  NYKaren
                  Participant
                    Beatrice, such great news. Congratulations!!
                    What a timely post for me. I’ve been semi-freaking out today about my & onc’s decision to go to 3/4 dose, month on, 2 weeks off.
                    I bet you’re so happy to be off pred. I really hate that stuff. I went to pain management doc & she feels unremitting leg pain is muscular & at least partially do to pred.

                    Beige grayish sounds interesting, I just got much more grey–Zel?? Lady Clairol box awaits.
                    How long have u been on half dose and how long we’re you on pred?
                    SO HAPPY FOR YOU.
                    Hugs,
                    Karen

                    triciad
                    Participant

                      Beatrice,

                      Contratulations on your good news.  It's inspiring to hear the good stories.  Sending prayers your way for continued success!

                      Tricia

                      triciad
                      Participant

                        Beatrice,

                        Contratulations on your good news.  It's inspiring to hear the good stories.  Sending prayers your way for continued success!

                        Tricia

                        triciad
                        Participant

                          Beatrice,

                          Contratulations on your good news.  It's inspiring to hear the good stories.  Sending prayers your way for continued success!

                          Tricia

                            Vermont_Donna
                            Participant

                              Hi Beatrice,

                                GREAT news! I am so happy for you!

                              Hugs from Vermont!

                              Vermont_Donna, stage 3a, NED

                              Vermont_Donna
                              Participant

                                Hi Beatrice,

                                  GREAT news! I am so happy for you!

                                Hugs from Vermont!

                                Vermont_Donna, stage 3a, NED

                                Vermont_Donna
                                Participant

                                  Hi Beatrice,

                                    GREAT news! I am so happy for you!

                                  Hugs from Vermont!

                                  Vermont_Donna, stage 3a, NED

                            Viewing 8 reply threads
                            • You must be logged in to reply to this topic.
                            About the MRF Patient Forum

                            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide byย MRF posting policies.