My dad was diagnosed in July 2011 (Stage 4), 18 years after the first outbreak !
Metastases in the liver and lung. (4 on the lung and something between 13 and 18 mets on the liver)
After researching, we found out, that zelboraf was approved by the FDA, in Europe it was still only available through clinical trials, doc did not really want to make a second biopsie, which would have been necessary to get into the trial.
I started to fly once every 6 weeks to the US to get Zelboraf there until it got approved in spring 2012 here.
My dad was diagnosed in July 2011 (Stage 4), 18 years after the first outbreak !
Metastases in the liver and lung. (4 on the lung and something between 13 and 18 mets on the liver)
After researching, we found out, that zelboraf was approved by the FDA, in Europe it was still only available through clinical trials, doc did not really want to make a second biopsie, which would have been necessary to get into the trial.
I started to fly once every 6 weeks to the US to get Zelboraf there until it got approved in spring 2012 here.
Last CT did not show any liver mets reamining, regarding to the result it is unclear if there are still any mets on the liver at all.
On the lung are 3 left which are greatly reduced up to 70% and way less solid, only one met kept its size (reduced by 10% in the past year)
Condition of my dad is quite good, only sideeffect he has is the sensitive skin (no sun) and sometimes problems with the feet. Age 69
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