1 year after IPI scan results
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1 year after IPI scan results

› Forums › General Melanoma Community › 1 year after IPI scan results

  • Post
    • December 19, 2014 at 9:54 pm
    Julie in SoCal
    Participant

    Hi there friends,

    It's hard to believe that I started all of this up again a year ago!  Last Christmas was such a mess! My recurrence and my mother's illness just left all of us tired and done.  So done that we skipped Christmas. 

    But yesterday I had my 1 year since starting IPI scans and once again they are "perfect", "complete response" and "see you in 6 months".  I still can't quite believe it.  But my Rock Star Doc couldn't even find evidence where the intransit mets were and the biopsy sites are now soft and pliable (as opposed to hard and BB like before).  I am so grateful!

    May you have a wonderful holiday season! Merry Christmas!

    Julie

    Stage 3c: WLE, SNB, LND, HD-INF, GM-CSF, IPI = NERD

    Here's a picture of me and my friends celebrating. I'm in the white shirt and jeans. It is a happy day! 

    Oh Happy Day!

Viewing 32 reply threads
  • Replies
      • December 19, 2014 at 9:56 pm
      Bubbles
      Participant

      Congrats, Julie!!!  Have a wonderful Christmas!! c

      • December 19, 2014 at 9:56 pm
      Bubbles
      Participant

      Congrats, Julie!!!  Have a wonderful Christmas!! c

      • December 19, 2014 at 9:56 pm
      Bubbles
      Participant

      Congrats, Julie!!!  Have a wonderful Christmas!! c

      • December 19, 2014 at 9:58 pm
      sweetaugust
      Participant

      That is so fantastic Julie! Excellent news for sure.  Congratulations!!!!   Laurie

      • December 19, 2014 at 9:58 pm
      sweetaugust
      Participant

      That is so fantastic Julie! Excellent news for sure.  Congratulations!!!!   Laurie

      • December 19, 2014 at 9:58 pm
      sweetaugust
      Participant

      That is so fantastic Julie! Excellent news for sure.  Congratulations!!!!   Laurie

      • December 19, 2014 at 10:06 pm
      BrianP
      Participant

      What a great Christmas present Julie.  I can't believe it's been a year for you either.  I remember some of your post just like it was yesterday.  You heading back to Asia anytime soon?  Have a wonderful Christmas.

      Brian

       

      • December 19, 2014 at 10:06 pm
      BrianP
      Participant

      What a great Christmas present Julie.  I can't believe it's been a year for you either.  I remember some of your post just like it was yesterday.  You heading back to Asia anytime soon?  Have a wonderful Christmas.

      Brian

       

      • December 19, 2014 at 10:06 pm
      BrianP
      Participant

      What a great Christmas present Julie.  I can't believe it's been a year for you either.  I remember some of your post just like it was yesterday.  You heading back to Asia anytime soon?  Have a wonderful Christmas.

      Brian

       

        • December 19, 2014 at 10:46 pm
        Marianne quinn
        Participant

        Great news. My husband is 9 months NED after his last dose of ipi. He had a small mets to his liver at 14 week scan. He had microwave ablation which was successful. His onc is feeling optimistic which is a big change from last March. Your posts helped so much during the last year. Kept my hopes up. Have a great Christmas. Marianne

        • December 19, 2014 at 10:46 pm
        Marianne quinn
        Participant

        Great news. My husband is 9 months NED after his last dose of ipi. He had a small mets to his liver at 14 week scan. He had microwave ablation which was successful. His onc is feeling optimistic which is a big change from last March. Your posts helped so much during the last year. Kept my hopes up. Have a great Christmas. Marianne

        • December 19, 2014 at 10:46 pm
        Marianne quinn
        Participant

        Great news. My husband is 9 months NED after his last dose of ipi. He had a small mets to his liver at 14 week scan. He had microwave ablation which was successful. His onc is feeling optimistic which is a big change from last March. Your posts helped so much during the last year. Kept my hopes up. Have a great Christmas. Marianne

      • December 19, 2014 at 11:44 pm
      jenny22
      Participant

      HI Julie- congratulations on such wonderful news…..it is great to see….

      I guess I am where you were this time last year….

      I am interested to hear about them starting you on IPI for stage III intransit mets….I have seen 5 melanoma onc experts, and only one is suggesting trying IPI in the adjuvant setting for stage III…..others offered:

      Watch and wait

      Interferon

      Vaccine Trial

      Such hard decisons…and every time i read about intransit mets its alway so doom and gloom!

      I am encourgaed by your post, and happy for you.

       

      Merry XMas,

      j

       

      • December 19, 2014 at 11:44 pm
      jenny22
      Participant

      HI Julie- congratulations on such wonderful news…..it is great to see….

      I guess I am where you were this time last year….

      I am interested to hear about them starting you on IPI for stage III intransit mets….I have seen 5 melanoma onc experts, and only one is suggesting trying IPI in the adjuvant setting for stage III…..others offered:

      Watch and wait

      Interferon

      Vaccine Trial

      Such hard decisons…and every time i read about intransit mets its alway so doom and gloom!

      I am encourgaed by your post, and happy for you.

       

      Merry XMas,

      j

       

      • December 19, 2014 at 11:44 pm
      jenny22
      Participant

      HI Julie- congratulations on such wonderful news…..it is great to see….

      I guess I am where you were this time last year….

      I am interested to hear about them starting you on IPI for stage III intransit mets….I have seen 5 melanoma onc experts, and only one is suggesting trying IPI in the adjuvant setting for stage III…..others offered:

      Watch and wait

      Interferon

      Vaccine Trial

      Such hard decisons…and every time i read about intransit mets its alway so doom and gloom!

      I am encourgaed by your post, and happy for you.

       

      Merry XMas,

      j

       

        • December 20, 2014 at 12:31 am
        Ginger8888
        Participant

        Jenny i am stage 3 C and did the 30 day HD interferon and failed it..Yervoy is working so far, next scan results on the 29th..

        • December 20, 2014 at 12:31 am
        Ginger8888
        Participant

        Jenny i am stage 3 C and did the 30 day HD interferon and failed it..Yervoy is working so far, next scan results on the 29th..

        • December 20, 2014 at 12:31 am
        Ginger8888
        Participant

        Jenny i am stage 3 C and did the 30 day HD interferon and failed it..Yervoy is working so far, next scan results on the 29th..

      • December 20, 2014 at 12:29 am
      Ginger8888
      Participant

      Congrats!! I finished Yervoy Aug 13 and just had my second scan and get results on the 29th, hoping they finally come out clear..

      • December 20, 2014 at 12:29 am
      Ginger8888
      Participant

      Congrats!! I finished Yervoy Aug 13 and just had my second scan and get results on the 29th, hoping they finally come out clear..

      • December 20, 2014 at 12:29 am
      Ginger8888
      Participant

      Congrats!! I finished Yervoy Aug 13 and just had my second scan and get results on the 29th, hoping they finally come out clear..

      • December 20, 2014 at 1:18 am
      _Paul_
      Participant

      Wow! Now that's a Christmas present that's hard to follow! Very happy for you!

      – Paul.

      • December 20, 2014 at 1:18 am
      _Paul_
      Participant

      Wow! Now that's a Christmas present that's hard to follow! Very happy for you!

      – Paul.

      • December 20, 2014 at 1:18 am
      _Paul_
      Participant

      Wow! Now that's a Christmas present that's hard to follow! Very happy for you!

      – Paul.

      • December 20, 2014 at 2:38 am
      SABKLYN
      Participant

      Hi Julie,Was following your journey since your return from Asia…..terrific news and congratulations!

      • December 20, 2014 at 2:38 am
      SABKLYN
      Participant

      Hi Julie,Was following your journey since your return from Asia…..terrific news and congratulations!

      • December 20, 2014 at 2:38 am
      SABKLYN
      Participant

      Hi Julie,Was following your journey since your return from Asia…..terrific news and congratulations!

      • December 21, 2014 at 12:11 am
      triciad
      Participant

      Julie,

      So happy to hear about your great news.  You've been through a lot and it's encouraging to read about your success.  I just finished my 4th dose of Ipi.  I hope to follow in your shoes!

      Happy holidays!

      Tricia

      • December 21, 2014 at 12:11 am
      triciad
      Participant

      Julie,

      So happy to hear about your great news.  You've been through a lot and it's encouraging to read about your success.  I just finished my 4th dose of Ipi.  I hope to follow in your shoes!

      Happy holidays!

      Tricia

      • December 21, 2014 at 12:11 am
      triciad
      Participant

      Julie,

      So happy to hear about your great news.  You've been through a lot and it's encouraging to read about your success.  I just finished my 4th dose of Ipi.  I hope to follow in your shoes!

      Happy holidays!

      Tricia

      • December 21, 2014 at 5:04 am
      Tracey R62
      Participant

      That's great.  What kind of side effects did you have on yervoy?  i will be having surgery in january to remove my toe and my groin lymph nodes and just overwhelmed over if and which treatments to choose.  

        • December 22, 2014 at 6:00 pm
        Julie in SoCal
        Participant

        Hey Tracy!

        I mostly had fatigue, headache, small joint pain, rash and stomach rumblings. My Dr and I got on each one pretty quick so none of the side effects were serious.  They were annoying and a drag, but not bad enough to warrant changing course.

        I trust IPI will work it's magic with you too!

        Julie

        • December 22, 2014 at 6:00 pm
        Julie in SoCal
        Participant

        Hey Tracy!

        I mostly had fatigue, headache, small joint pain, rash and stomach rumblings. My Dr and I got on each one pretty quick so none of the side effects were serious.  They were annoying and a drag, but not bad enough to warrant changing course.

        I trust IPI will work it's magic with you too!

        Julie

        • December 22, 2014 at 6:00 pm
        Julie in SoCal
        Participant

        Hey Tracy!

        I mostly had fatigue, headache, small joint pain, rash and stomach rumblings. My Dr and I got on each one pretty quick so none of the side effects were serious.  They were annoying and a drag, but not bad enough to warrant changing course.

        I trust IPI will work it's magic with you too!

        Julie

      • December 21, 2014 at 5:04 am
      Tracey R62
      Participant

      That's great.  What kind of side effects did you have on yervoy?  i will be having surgery in january to remove my toe and my groin lymph nodes and just overwhelmed over if and which treatments to choose.  

      • December 21, 2014 at 5:04 am
      Tracey R62
      Participant

      That's great.  What kind of side effects did you have on yervoy?  i will be having surgery in january to remove my toe and my groin lymph nodes and just overwhelmed over if and which treatments to choose.  

      • December 21, 2014 at 12:03 pm
      Rosegargala
      Participant

      MERRY CHRISTMAS !!! I hope you REALLY get to enjoy this Holiday Season!!! I know when we found out that I have melanoma I couldn't even think about Christmas , so I know how painful that had to be for you!!!!  I am so happy to hear your wonderful news !!!! My PET scan was clear so I intend on making this the best Christmas ever!!!  HAVE A VERY MERRY CHRISTMAS !!!!!!!!!!!!!

      • December 21, 2014 at 12:03 pm
      Rosegargala
      Participant

      MERRY CHRISTMAS !!! I hope you REALLY get to enjoy this Holiday Season!!! I know when we found out that I have melanoma I couldn't even think about Christmas , so I know how painful that had to be for you!!!!  I am so happy to hear your wonderful news !!!! My PET scan was clear so I intend on making this the best Christmas ever!!!  HAVE A VERY MERRY CHRISTMAS !!!!!!!!!!!!!

      • December 21, 2014 at 12:03 pm
      Rosegargala
      Participant

      MERRY CHRISTMAS !!! I hope you REALLY get to enjoy this Holiday Season!!! I know when we found out that I have melanoma I couldn't even think about Christmas , so I know how painful that had to be for you!!!!  I am so happy to hear your wonderful news !!!! My PET scan was clear so I intend on making this the best Christmas ever!!!  HAVE A VERY MERRY CHRISTMAS !!!!!!!!!!!!!

      • December 21, 2014 at 6:11 pm
      DZnDef
      Participant

      Congratulations Julie!  I'm so happy for you!  Doing the happy dance.  I'll be seeing Rock Star doc in January.   So glad its a Merry Christmas for you this year!  Double-down on those presents to make up for last year.

      Cheers!

      • December 21, 2014 at 6:11 pm
      DZnDef
      Participant

      Congratulations Julie!  I'm so happy for you!  Doing the happy dance.  I'll be seeing Rock Star doc in January.   So glad its a Merry Christmas for you this year!  Double-down on those presents to make up for last year.

      Cheers!

      • December 21, 2014 at 6:11 pm
      DZnDef
      Participant

      Congratulations Julie!  I'm so happy for you!  Doing the happy dance.  I'll be seeing Rock Star doc in January.   So glad its a Merry Christmas for you this year!  Double-down on those presents to make up for last year.

      Cheers!

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