Tumour shrunk to 3 cm on keytruda
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Tumour shrunk to 3 cm on keytruda

› Forums › General Melanoma Community › Tumour shrunk to 3 cm on keytruda

  • Post
    • January 28, 2015 at 9:26 am
    Jubes
    Participant

    Hi everyone

    i had some scans today that showed the melanoma in my lung has shrunk from 7.9 cm to 3 cm. I also have 4 or 5 nodes in my chest with melanoma and they are almost back to normal size. I have had 9 infusions of keytruda and as my cough has reduced and I am feeling well, this was the first scan since I started on keytruda.

    i just want to thank everybody on this site for their invalulable advice and support, especially artie and celeste, but really everybody. Thank you from the bottom of my heart and I sincerely hope that you all have positive outcomes like this and find the right team of doctors for your needs, as the research seems to be moving fast in the right direction.

    Thanks again

    jubes(aka Anne-Louise) 

     

Viewing 17 reply threads
  • Replies
      • January 28, 2015 at 12:36 pm
      Bubbles
      Participant

      Oh, Anne Louise!  That's wonderful news!!  I hope all the lesions continue to diminish into nothingness!!!  Yours, Celeste

      • January 28, 2015 at 12:36 pm
      Bubbles
      Participant

      Oh, Anne Louise!  That's wonderful news!!  I hope all the lesions continue to diminish into nothingness!!!  Yours, Celeste

      • January 28, 2015 at 12:36 pm
      Bubbles
      Participant

      Oh, Anne Louise!  That's wonderful news!!  I hope all the lesions continue to diminish into nothingness!!!  Yours, Celeste

      • January 28, 2015 at 12:57 pm
      JoshF
      Participant

      So great to hear good news!!! I'm very happy for you….wishing you continued success.

      Josh

      • January 28, 2015 at 12:57 pm
      JoshF
      Participant

      So great to hear good news!!! I'm very happy for you….wishing you continued success.

      Josh

      • January 28, 2015 at 12:57 pm
      JoshF
      Participant

      So great to hear good news!!! I'm very happy for you….wishing you continued success.

      Josh

      • January 28, 2015 at 1:05 pm
      _Paul_
      Participant

      Woohoo! Thanks for sharing the awesome news Anne-Louise!

      • January 28, 2015 at 1:05 pm
      _Paul_
      Participant

      Woohoo! Thanks for sharing the awesome news Anne-Louise!

      • January 28, 2015 at 1:05 pm
      _Paul_
      Participant

      Woohoo! Thanks for sharing the awesome news Anne-Louise!

      • January 28, 2015 at 3:16 pm
      rick1981
      Participant

      Excellent news!!

      One question, was there a particular reason to wait until after 9 Keytruda infusions before you did the scan? Isn't it normally after 4?

      • January 28, 2015 at 3:16 pm
      rick1981
      Participant

      Excellent news!!

      One question, was there a particular reason to wait until after 9 Keytruda infusions before you did the scan? Isn't it normally after 4?

        • January 28, 2015 at 9:24 pm
        Jubes
        Participant

        Just checked my oncology appt card and in fact I have only had 7 cycles. I was counting the two ipis. While I was on ipi I got quite a lot worse. On morphine at night for the cough and coughing all day and night. As soon as I changed to Pembro, the cough cleared up a lot in the first two cycles. So I would have been due for scans after cycle 6 but everyone is on summer holidays here over xmas and new year ( I'm in Australia) and I was feeling well so my dr told me to go away on holiday and just have the scan when I got back so I wouldn't be worrying about scan results while on holiday. I can ask him today re cycle 4 Vs cycle 6. In the past he has told me that on my low dose of 3 mg per kg every three weeks we need to give it time and I guess my melanoma has been quite indolent so far. 

        • January 28, 2015 at 9:24 pm
        Jubes
        Participant

        Just checked my oncology appt card and in fact I have only had 7 cycles. I was counting the two ipis. While I was on ipi I got quite a lot worse. On morphine at night for the cough and coughing all day and night. As soon as I changed to Pembro, the cough cleared up a lot in the first two cycles. So I would have been due for scans after cycle 6 but everyone is on summer holidays here over xmas and new year ( I'm in Australia) and I was feeling well so my dr told me to go away on holiday and just have the scan when I got back so I wouldn't be worrying about scan results while on holiday. I can ask him today re cycle 4 Vs cycle 6. In the past he has told me that on my low dose of 3 mg per kg every three weeks we need to give it time and I guess my melanoma has been quite indolent so far. 

        • January 28, 2015 at 10:13 pm
        Jubes
        Participant

        Dr just reminded me that I did have a scan after cycle 3 but there was no change in the tumour size even though I was feeling better. He now thinks that's because the melanoma was shrinking but it took a while for the inflammation around it to go down. Because I am not on a trial they can be flexible with the scan dates.

        • January 28, 2015 at 10:13 pm
        Jubes
        Participant

        Dr just reminded me that I did have a scan after cycle 3 but there was no change in the tumour size even though I was feeling better. He now thinks that's because the melanoma was shrinking but it took a while for the inflammation around it to go down. Because I am not on a trial they can be flexible with the scan dates.

        • January 28, 2015 at 10:13 pm
        Jubes
        Participant

        Dr just reminded me that I did have a scan after cycle 3 but there was no change in the tumour size even though I was feeling better. He now thinks that's because the melanoma was shrinking but it took a while for the inflammation around it to go down. Because I am not on a trial they can be flexible with the scan dates.

        • January 28, 2015 at 9:24 pm
        Jubes
        Participant

        Just checked my oncology appt card and in fact I have only had 7 cycles. I was counting the two ipis. While I was on ipi I got quite a lot worse. On morphine at night for the cough and coughing all day and night. As soon as I changed to Pembro, the cough cleared up a lot in the first two cycles. So I would have been due for scans after cycle 6 but everyone is on summer holidays here over xmas and new year ( I'm in Australia) and I was feeling well so my dr told me to go away on holiday and just have the scan when I got back so I wouldn't be worrying about scan results while on holiday. I can ask him today re cycle 4 Vs cycle 6. In the past he has told me that on my low dose of 3 mg per kg every three weeks we need to give it time and I guess my melanoma has been quite indolent so far. 

      • January 28, 2015 at 3:16 pm
      rick1981
      Participant

      Excellent news!!

      One question, was there a particular reason to wait until after 9 Keytruda infusions before you did the scan? Isn't it normally after 4?

      • January 28, 2015 at 4:41 pm
      arthurjedi007
      Participant

      Awesome 🙂 That's the way to kick this stupid disease.

      Artie

      • January 28, 2015 at 4:41 pm
      arthurjedi007
      Participant

      Awesome 🙂 That's the way to kick this stupid disease.

      Artie

      • January 28, 2015 at 4:41 pm
      arthurjedi007
      Participant

      Awesome 🙂 That's the way to kick this stupid disease.

      Artie

      • January 29, 2015 at 7:35 am
      JustMeInCA
      Participant

      That's quite impressive shrinkage — so happy for you! I wish we heard more stories like yours!

      • January 29, 2015 at 7:35 am
      JustMeInCA
      Participant

      That's quite impressive shrinkage — so happy for you! I wish we heard more stories like yours!

      • January 29, 2015 at 7:35 am
      JustMeInCA
      Participant

      That's quite impressive shrinkage — so happy for you! I wish we heard more stories like yours!

Viewing 17 reply threads
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