Mucosal Melanoma and Radiation
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Mucosal Melanoma and Radiation

› Forums › Mucosal Melanoma Community › Mucosal Melanoma and Radiation

  • Post
    • December 22, 2014 at 5:22 am
    laural10
    Participant

    My father was just diagnosed in July with MM of the nasal passage.  He went through 3 surgeries to try to get to clear margins, unsuccessfully.  He is now undergoing radiation (6.5 weeks, five times per week).  He is three weeks in and the side effects are so brutal they might have to stop the treatment.  He has severe swelling, sores and bleeding in his mouth, nose and lips.  He has lost 15 pounds so far and is unable to eat other than Ensure and even that is becoming difficult.  We are afraid he will choke to death in his sleep from the swelling of his mouth and throat.  His radiation doctor said she has never seen side effects this severe before.  I was just wondering what your experience was like with radiation and if you are able to give any suggestions on what helped you get through it?

Viewing 11 reply threads
  • Replies
      • December 22, 2014 at 12:06 pm
      Rosegargala
      Participant
      I don’t have the answers to your question but I am sending love and prayers to you , your family , and your dad !!!
      • December 22, 2014 at 12:06 pm
      Rosegargala
      Participant
      I don’t have the answers to your question but I am sending love and prayers to you , your family , and your dad !!!
      • December 22, 2014 at 12:06 pm
      Rosegargala
      Participant
      I don’t have the answers to your question but I am sending love and prayers to you , your family , and your dad !!!
      • December 22, 2014 at 12:06 pm
      Rosegargala
      Participant
      I don’t have the answers to your question but I am sending love and prayers to you , your family , and your dad !!!
      • December 22, 2014 at 12:06 pm
      Rosegargala
      Participant
      I don’t have the answers to your question but I am sending love and prayers to you , your family , and your dad !!!
      • December 22, 2014 at 12:06 pm
      Rosegargala
      Participant
      I don’t have the answers to your question but I am sending love and prayers to you , your family , and your dad !!!
      • December 22, 2014 at 3:21 pm
      arthurjedi007
      Participant

      I've been through 4 radiation treatments but never had anything like that. Instead of stop treatment maybe take a holiday from the treatment so he can recover. That way they will still have it on their records to resume treatment at some future date when he is strong and doing better again. But proceeding further with him in that shape does not sound like a good idea but that is just my opinion. How to recover from those side affects I'm not sure. Hopefully the doctors and nurses can help him.

      Artie

       

      • December 22, 2014 at 3:21 pm
      arthurjedi007
      Participant

      I've been through 4 radiation treatments but never had anything like that. Instead of stop treatment maybe take a holiday from the treatment so he can recover. That way they will still have it on their records to resume treatment at some future date when he is strong and doing better again. But proceeding further with him in that shape does not sound like a good idea but that is just my opinion. How to recover from those side affects I'm not sure. Hopefully the doctors and nurses can help him.

      Artie

       

        • December 23, 2014 at 2:56 pm
        Becky
        Participant

        Hi

        here is a blog from someone with nasal melanoma who I bleleve also went though radiation treatments. He may chime in here as I think he posts occasionally to these boards, but if not, you could probably get in touch through his site

        http://marcuscancervive.tumblr.com/

        • December 23, 2014 at 2:56 pm
        Becky
        Participant

        Hi

        here is a blog from someone with nasal melanoma who I bleleve also went though radiation treatments. He may chime in here as I think he posts occasionally to these boards, but if not, you could probably get in touch through his site

        http://marcuscancervive.tumblr.com/

        • December 23, 2014 at 2:56 pm
        Becky
        Participant

        Hi

        here is a blog from someone with nasal melanoma who I bleleve also went though radiation treatments. He may chime in here as I think he posts occasionally to these boards, but if not, you could probably get in touch through his site

        http://marcuscancervive.tumblr.com/

      • December 22, 2014 at 3:21 pm
      arthurjedi007
      Participant

      I've been through 4 radiation treatments but never had anything like that. Instead of stop treatment maybe take a holiday from the treatment so he can recover. That way they will still have it on their records to resume treatment at some future date when he is strong and doing better again. But proceeding further with him in that shape does not sound like a good idea but that is just my opinion. How to recover from those side affects I'm not sure. Hopefully the doctors and nurses can help him.

      Artie

       

      • December 31, 2014 at 1:18 am
      JerryfromFauq
      Participant

      Glad to talk with you and to put you in contat with others on the mucosal melanoma journey.  Have provided you my email aand phone info via the MPIP/MRF contact form.

      • December 31, 2014 at 1:18 am
      JerryfromFauq
      Participant

      Glad to talk with you and to put you in contat with others on the mucosal melanoma journey.  Have provided you my email aand phone info via the MPIP/MRF contact form.

      • December 31, 2014 at 1:18 am
      JerryfromFauq
      Participant

      Glad to talk with you and to put you in contat with others on the mucosal melanoma journey.  Have provided you my email aand phone info via the MPIP/MRF contact form.

Viewing 11 reply threads

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