Somewhat Dizzy/Lightheaded on Zel. Anyone else???
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Somewhat Dizzy/Lightheaded on Zel. Anyone else???

› Forums › General Melanoma Community › Somewhat Dizzy/Lightheaded on Zel. Anyone else???

  • Post
    • December 21, 2012 at 6:05 pm
    NYKaren
    Participant

    Hi,

    This morning I took my 3rd dose of Zel.

    I woke up feeling fabulous–then about 1 hour later while walking to train (I hadn't taken third dose yet) i started to feel a little light-headed.

    It seemed to subside on the ride in.

    I took my dose w/breakfast at 9:30.  At about 11:00 I started feeling light-headed again…almost as if I'd had 2-3 glasses of wine.  I usually get tingling in one arm because I sleep on it…now it seems that both hands are tingly, which I know is expected on Zel.

    Hi,

    This morning I took my 3rd dose of Zel.

    I woke up feeling fabulous–then about 1 hour later while walking to train (I hadn't taken third dose yet) i started to feel a little light-headed.

    It seemed to subside on the ride in.

    I took my dose w/breakfast at 9:30.  At about 11:00 I started feeling light-headed again…almost as if I'd had 2-3 glasses of wine.  I usually get tingling in one arm because I sleep on it…now it seems that both hands are tingly, which I know is expected on Zel.

    I also yesterday started taking that non-water soluable vitamin B…benfotiamine and Bethyl B12.  Probably not smart to start all at once.

    Just spoke to Dr. Wolchok's nurse, and she told me to take my blood pressure… If it's ok, not to worry & they'll monitor me.

    Has anyone else experienced this??

     

    Thanks, Karen

Viewing 5 reply threads
  • Replies
      • December 21, 2012 at 9:45 pm
      awillett1991
      Participant

      Be sure to get extra fluids and you're probably right – this probably isn't the best time to start taking new vitamins.  Z can be hard on the liver, but I wouldn't think so after 3 doses.

      Definitely had the tingling hands for months, also my lips would tingle.  Z can be very hard on the hands and feet, but this did get better after a few months.  Hopefully yours won't get worse.

      • December 21, 2012 at 9:45 pm
      awillett1991
      Participant

      Be sure to get extra fluids and you're probably right – this probably isn't the best time to start taking new vitamins.  Z can be hard on the liver, but I wouldn't think so after 3 doses.

      Definitely had the tingling hands for months, also my lips would tingle.  Z can be very hard on the hands and feet, but this did get better after a few months.  Hopefully yours won't get worse.

      • December 21, 2012 at 9:45 pm
      awillett1991
      Participant

      Be sure to get extra fluids and you're probably right – this probably isn't the best time to start taking new vitamins.  Z can be hard on the liver, but I wouldn't think so after 3 doses.

      Definitely had the tingling hands for months, also my lips would tingle.  Z can be very hard on the hands and feet, but this did get better after a few months.  Hopefully yours won't get worse.

      • December 22, 2012 at 10:39 am
      aldakota22
      Participant

      May you wake up feeling fabulous everyday.First time I have heard of light headedness while on "Z".As for other known side affects,in many cases they last for a period of time and then dissappear or lessen.Sometimes you develop new side affects.Prayers sent your way for success on "Z".Keep us posted . Beat the Beast.Your freind   Al

      • December 22, 2012 at 10:39 am
      aldakota22
      Participant

      May you wake up feeling fabulous everyday.First time I have heard of light headedness while on "Z".As for other known side affects,in many cases they last for a period of time and then dissappear or lessen.Sometimes you develop new side affects.Prayers sent your way for success on "Z".Keep us posted . Beat the Beast.Your freind   Al

        • December 22, 2012 at 10:48 pm
        NYKaren
        Participant
        Thanks. I took my BP; it was 10 points higher on top & bottom.
        The feeling went away by dinnertime and hasn’t been back since, after 2 more doses
        Maybe my body was adjusting to a new med…whatever it was sure felt strange.
        Karen
        • December 22, 2012 at 10:48 pm
        NYKaren
        Participant
        Thanks. I took my BP; it was 10 points higher on top & bottom.
        The feeling went away by dinnertime and hasn’t been back since, after 2 more doses
        Maybe my body was adjusting to a new med…whatever it was sure felt strange.
        Karen
        • December 22, 2012 at 10:48 pm
        NYKaren
        Participant
        Thanks. I took my BP; it was 10 points higher on top & bottom.
        The feeling went away by dinnertime and hasn’t been back since, after 2 more doses
        Maybe my body was adjusting to a new med…whatever it was sure felt strange.
        Karen
      • December 22, 2012 at 10:39 am
      aldakota22
      Participant

      May you wake up feeling fabulous everyday.First time I have heard of light headedness while on "Z".As for other known side affects,in many cases they last for a period of time and then dissappear or lessen.Sometimes you develop new side affects.Prayers sent your way for success on "Z".Keep us posted . Beat the Beast.Your freind   Al

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