Going to Anti pd 1 Merck
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Going to Anti pd 1 Merck

› Forums › General Melanoma Community › Going to Anti pd 1 Merck

  • Post
    • November 6, 2012 at 11:53 am
    sharmon
    Participant

    Hello everyone.

    The Gsk Mek trial Brent has been on for 33 months seems to letting the melanoma grow.  Very slowly and now he has bone leisions in his ribs near where the largest tumor is in his lung.,  The growth was not enough to removed him from the trial at MD Anderson but we were both concerened because the pain is unbearable without heavy pain medication.l

    Hello everyone.

    The Gsk Mek trial Brent has been on for 33 months seems to letting the melanoma grow.  Very slowly and now he has bone leisions in his ribs near where the largest tumor is in his lung.,  The growth was not enough to removed him from the trial at MD Anderson but we were both concerened because the pain is unbearable without heavy pain medication.l

    We live in Tampa and went to see Dr. Weber for an consult about the pain.  Brent was thinking radiation.  Dr. Weber suggested he try Anti pd ! and he has passed all the test and is to start Nov. 11th.  It is the Merck trial and how we got in is a miracle story in itself.

    I am needing some support from anyone in the area that can email me with what to expect. 

    I read this forum daily and I feel at peace here and understood.,

     

     

Viewing 5 reply threads
  • Replies
      • November 6, 2012 at 12:31 pm
      melissa ann
      Participant

      Good Morning Sharon, I am happy to hear your news.  I have been thinking about the two of you a lot lately.  Are the Merck anti-pd1 infusions every two weeks as well?  Peck had few side effects on the BMS trial, fatigue being the worst, and shingles popped up as well.  Please now that we think of you guys each day and hope and pray for healing and pain free days.  Are they dooing anything to help with the pain?  Hope the 11th goes smoothly, with no bumps in the road.  Peace to both of you….Melissa

        • November 6, 2012 at 3:32 pm
        killmel
        Participant

        Melissa,

         

        Happy to see your post. How is Peck doing??? Is he still on PD1 trial or getting a different treatment. I hope that he is well. Please give us an update.

         

        Sharmon…I hope that this treatment is the answer to your prayers & Brent goes into remission.

         

        God Bless you all.

         

        MaryBeth

        • November 10, 2012 at 11:52 pm
        sharmon
        Participant
        The infusions start on the 13th and i think they are every three weeks.
        • November 10, 2012 at 11:52 pm
        sharmon
        Participant
        The infusions start on the 13th and i think they are every three weeks.
        • November 10, 2012 at 11:52 pm
        sharmon
        Participant
        The infusions start on the 13th and i think they are every three weeks.
        • November 6, 2012 at 3:32 pm
        killmel
        Participant

        Melissa,

         

        Happy to see your post. How is Peck doing??? Is he still on PD1 trial or getting a different treatment. I hope that he is well. Please give us an update.

         

        Sharmon…I hope that this treatment is the answer to your prayers & Brent goes into remission.

         

        God Bless you all.

         

        MaryBeth

        • November 6, 2012 at 3:32 pm
        killmel
        Participant

        Melissa,

         

        Happy to see your post. How is Peck doing??? Is he still on PD1 trial or getting a different treatment. I hope that he is well. Please give us an update.

         

        Sharmon…I hope that this treatment is the answer to your prayers & Brent goes into remission.

         

        God Bless you all.

         

        MaryBeth

      • November 6, 2012 at 12:31 pm
      melissa ann
      Participant

      Good Morning Sharon, I am happy to hear your news.  I have been thinking about the two of you a lot lately.  Are the Merck anti-pd1 infusions every two weeks as well?  Peck had few side effects on the BMS trial, fatigue being the worst, and shingles popped up as well.  Please now that we think of you guys each day and hope and pray for healing and pain free days.  Are they dooing anything to help with the pain?  Hope the 11th goes smoothly, with no bumps in the road.  Peace to both of you….Melissa

      • November 6, 2012 at 12:31 pm
      melissa ann
      Participant

      Good Morning Sharon, I am happy to hear your news.  I have been thinking about the two of you a lot lately.  Are the Merck anti-pd1 infusions every two weeks as well?  Peck had few side effects on the BMS trial, fatigue being the worst, and shingles popped up as well.  Please now that we think of you guys each day and hope and pray for healing and pain free days.  Are they dooing anything to help with the pain?  Hope the 11th goes smoothly, with no bumps in the road.  Peace to both of you….Melissa

      • November 12, 2012 at 3:59 am
      JerryfromFauq
      Participant

      Glad dhe got into the PD-1 trial.  Pulling for great results.  Will be interesting to she what results the follow on from MEK thru PD-1 does.  Would expect good results.

      • November 12, 2012 at 3:59 am
      JerryfromFauq
      Participant

      Glad dhe got into the PD-1 trial.  Pulling for great results.  Will be interesting to she what results the follow on from MEK thru PD-1 does.  Would expect good results.

        • November 13, 2012 at 4:17 pm
        Snickers60
        Participant

        PLEASE KEEP US POSTED on your PROGRESS – EXPERIENCE – SIDE AFFECTS  with ANTI pd1 – ?????   

        Thanks you and God's best blessing for healing, 

        Nancy (devoted wife of 3 X Warrior Wayne) 

        • November 13, 2012 at 4:17 pm
        Snickers60
        Participant

        PLEASE KEEP US POSTED on your PROGRESS – EXPERIENCE – SIDE AFFECTS  with ANTI pd1 – ?????   

        Thanks you and God's best blessing for healing, 

        Nancy (devoted wife of 3 X Warrior Wayne) 

        • November 13, 2012 at 4:17 pm
        Snickers60
        Participant

        PLEASE KEEP US POSTED on your PROGRESS – EXPERIENCE – SIDE AFFECTS  with ANTI pd1 – ?????   

        Thanks you and God's best blessing for healing, 

        Nancy (devoted wife of 3 X Warrior Wayne) 

      • November 12, 2012 at 3:59 am
      JerryfromFauq
      Participant

      Glad dhe got into the PD-1 trial.  Pulling for great results.  Will be interesting to she what results the follow on from MEK thru PD-1 does.  Would expect good results.

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