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  • Post
    • August 22, 2012 at 5:29 pm
    Snickers60
    Participant

    Wayne got an EXCELLENT PET SCAN REPORT 'except' for a spot on his right leg.  It was there last time, but they did not think it was melly.    This timethe Activtiy of it is up and they do think it is Melly.   They did an MRI and still thought it was Melly.   They are taking a wait/see approach to see if the ZEL will get it and it's just a STUBBORN spot.   It's in the muscle above the knee and out from the femur.    

    Wayne got an EXCELLENT PET SCAN REPORT 'except' for a spot on his right leg.  It was there last time, but they did not think it was melly.    This timethe Activtiy of it is up and they do think it is Melly.   They did an MRI and still thought it was Melly.   They are taking a wait/see approach to see if the ZEL will get it and it's just a STUBBORN spot.   It's in the muscle above the knee and out from the femur.    

    When they do PET in Oct, if it is still there, they will do biopsy, then surgery if Melly !   At that point, they would expect him to be completely clean of anyquestion of Melly in his body and Dr. B. says the PREVENTIVE MED should be available by then.   Have any of you heard of the MELLY PREVENTIVEMEDS ?      He said they should be released in Oct. or Nov.    OVERALL, we thought this was an excellent report because the PET was even better than before.   NOTHING anywhere else.   CLEAN, CLEAN !  

    Anyone here had a MELLY in the muscle ???    THANKS 

    Nancy (devoted wife of 3 X Warrior Wayne)   BLESSINGS AND HEALTH TO YOU ALL 

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  • Replies
      • August 22, 2012 at 8:03 pm
      Randy437
      Participant

      Does this drug have a name yet?

      • August 22, 2012 at 8:03 pm
      Randy437
      Participant

      Does this drug have a name yet?

      • August 22, 2012 at 8:03 pm
      Randy437
      Participant

      Does this drug have a name yet?

        • August 22, 2012 at 10:48 pm
        Snickers60
        Participant

        You know, Randy – we just completely lost our minds and did not ask.   They had confused Wayne's report with another person with the same name and we were trying to get our bearings from that BAD REPORT to our GOOD ONE.   (anyone can make a mistake I suppose – had two with same name at the clinic)  !   So Wayne is going to email Terry and ask her what the name of it is.   We foolishly thought we might be able to just GOOGLE it and find out. 

        Will report back when we find out.    Dr. B. seemed to be very pumped about it for Wayne !   We'll see……

        • August 22, 2012 at 10:48 pm
        Snickers60
        Participant

        You know, Randy – we just completely lost our minds and did not ask.   They had confused Wayne's report with another person with the same name and we were trying to get our bearings from that BAD REPORT to our GOOD ONE.   (anyone can make a mistake I suppose – had two with same name at the clinic)  !   So Wayne is going to email Terry and ask her what the name of it is.   We foolishly thought we might be able to just GOOGLE it and find out. 

        Will report back when we find out.    Dr. B. seemed to be very pumped about it for Wayne !   We'll see……

        • August 22, 2012 at 10:48 pm
        Snickers60
        Participant

        You know, Randy – we just completely lost our minds and did not ask.   They had confused Wayne's report with another person with the same name and we were trying to get our bearings from that BAD REPORT to our GOOD ONE.   (anyone can make a mistake I suppose – had two with same name at the clinic)  !   So Wayne is going to email Terry and ask her what the name of it is.   We foolishly thought we might be able to just GOOGLE it and find out. 

        Will report back when we find out.    Dr. B. seemed to be very pumped about it for Wayne !   We'll see……

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