Which cancer center in usa is the best one that treats musocal melanoma?
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Which cancer center in usa is the best one that treats musocal melanoma?

› Forums › Mucosal Melanoma Community › Which cancer center in usa is the best one that treats musocal melanoma?

  • Post
    • July 8, 2012 at 8:53 am
    fenny
    Participant

    I'm from China and my sister was diagnoased with vaginal melanoma 2.5 years ago and now PET scans and CT scan both show that she lymph nodes in her lungs and her pelvic cavity (which we are not quite sure about ) coz the CT scan on June 30 shows the lymph nodes have shrunk a lot compared with the scan performed on May 31. Anyway, I want to take her to the States for accurate dignosis and for advanced treatment to control the progress of her disease. I am now contacting Moffitt Center at Tampa Florida and also MD Anderson in Houston.

    I'm from China and my sister was diagnoased with vaginal melanoma 2.5 years ago and now PET scans and CT scan both show that she lymph nodes in her lungs and her pelvic cavity (which we are not quite sure about ) coz the CT scan on June 30 shows the lymph nodes have shrunk a lot compared with the scan performed on May 31. Anyway, I want to take her to the States for accurate dignosis and for advanced treatment to control the progress of her disease. I am now contacting Moffitt Center at Tampa Florida and also MD Anderson in Houston. Anyone here who's also got mucosal melanoma could recommend one good hospital for us to go to coz I know without American health care insurance, it is very expensive to make this trip to get treatment, so we do want to make the best and right choice for my sister. Please kindly offer your opinions and thanks in advance.

    Fenny from China

Viewing 14 reply threads
  • Replies
      • July 8, 2012 at 1:12 pm
      susanr
      Participant

      Fenny,

      Sorry about your sister and you are a great brother.  As you will see on this forum..many are followed by docs. at Moffitt and MD Anderson.  My brother is followed by Dr. Pavlik at NYU.  They take very good care of him.  If we were to go for another opinion or did not have access to a reputable hospital close to my home…I would go to Moffitt or MD Anderson.

      I am sure many others will post to you soon….give everyone some time. 

       

      Best of luck to you prayers for your sister…..keep us posted

       

      Susan NY

      • July 8, 2012 at 1:12 pm
      susanr
      Participant

      Fenny,

      Sorry about your sister and you are a great brother.  As you will see on this forum..many are followed by docs. at Moffitt and MD Anderson.  My brother is followed by Dr. Pavlik at NYU.  They take very good care of him.  If we were to go for another opinion or did not have access to a reputable hospital close to my home…I would go to Moffitt or MD Anderson.

      I am sure many others will post to you soon….give everyone some time. 

       

      Best of luck to you prayers for your sister…..keep us posted

       

      Susan NY

      • July 8, 2012 at 1:12 pm
      susanr
      Participant

      Fenny,

      Sorry about your sister and you are a great brother.  As you will see on this forum..many are followed by docs. at Moffitt and MD Anderson.  My brother is followed by Dr. Pavlik at NYU.  They take very good care of him.  If we were to go for another opinion or did not have access to a reputable hospital close to my home…I would go to Moffitt or MD Anderson.

      I am sure many others will post to you soon….give everyone some time. 

       

      Best of luck to you prayers for your sister…..keep us posted

       

      Susan NY

      • July 8, 2012 at 9:31 pm
      Gene_S
      Participant
      • July 8, 2012 at 9:31 pm
      Gene_S
      Participant
      • July 8, 2012 at 9:31 pm
      Gene_S
      Participant
      • July 8, 2012 at 10:19 pm
      Linny
      Participant

      Hi Fenny,

      I'm sorry to hear about your sister's diagnosis. You may also want to call Dana Farber in Boston, Massachusetts. Based on their web site the appear to have some expertise in mucosal melanoma:

      http://www.dana-farber.org/Adult-Care/Treatment-and-Support/Treatment-Centers-and-Clinical-Services/Melanoma-Treatment-Center.aspx#About

      • July 8, 2012 at 10:19 pm
      Linny
      Participant

      Hi Fenny,

      I'm sorry to hear about your sister's diagnosis. You may also want to call Dana Farber in Boston, Massachusetts. Based on their web site the appear to have some expertise in mucosal melanoma:

      http://www.dana-farber.org/Adult-Care/Treatment-and-Support/Treatment-Centers-and-Clinical-Services/Melanoma-Treatment-Center.aspx#About

      • July 8, 2012 at 10:19 pm
      Linny
      Participant

      Hi Fenny,

      I'm sorry to hear about your sister's diagnosis. You may also want to call Dana Farber in Boston, Massachusetts. Based on their web site the appear to have some expertise in mucosal melanoma:

      http://www.dana-farber.org/Adult-Care/Treatment-and-Support/Treatment-Centers-and-Clinical-Services/Melanoma-Treatment-Center.aspx#About

      • July 8, 2012 at 11:31 pm
      LynnLuc
      Participant

      I got to Moffitt Cancer Center in FL and I am stage 4 and NED for over 2 years. I have Dr. Weber.  He is the guy over the melanoma …you can actually e-mail him at jeffrey.weber@moffitt.org  and he is sure to answer your e-mail personlly and directly. I think Moffitt is the best place for melanoma, but I am bias.

      • July 8, 2012 at 11:31 pm
      LynnLuc
      Participant

      I got to Moffitt Cancer Center in FL and I am stage 4 and NED for over 2 years. I have Dr. Weber.  He is the guy over the melanoma …you can actually e-mail him at jeffrey.weber@moffitt.org  and he is sure to answer your e-mail personlly and directly. I think Moffitt is the best place for melanoma, but I am bias.

      • July 8, 2012 at 11:31 pm
      LynnLuc
      Participant

      I got to Moffitt Cancer Center in FL and I am stage 4 and NED for over 2 years. I have Dr. Weber.  He is the guy over the melanoma …you can actually e-mail him at jeffrey.weber@moffitt.org  and he is sure to answer your e-mail personlly and directly. I think Moffitt is the best place for melanoma, but I am bias.

      • July 9, 2012 at 5:27 pm
      MaryD
      Participant

      Hi Fenny,

      I'm sorry that your sister is going through all this and agree it would be a good idea to seek opinions/treatment over here in the US if possible.

      I think you have made some good choices contacting Moffitt and MD Anderson – I am a patient of Dr. Jeff Weber at Moffitt and he is an excellent doctor.   As noted in one of the other posts, you can email him directly and he is very prompt with responses.  

      I'm glad you found us at the MPIP and please keep us posted as to how everything works out.   Your sister will be in my thoughts  . . .

      Mary

      • July 9, 2012 at 5:27 pm
      MaryD
      Participant

      Hi Fenny,

      I'm sorry that your sister is going through all this and agree it would be a good idea to seek opinions/treatment over here in the US if possible.

      I think you have made some good choices contacting Moffitt and MD Anderson – I am a patient of Dr. Jeff Weber at Moffitt and he is an excellent doctor.   As noted in one of the other posts, you can email him directly and he is very prompt with responses.  

      I'm glad you found us at the MPIP and please keep us posted as to how everything works out.   Your sister will be in my thoughts  . . .

      Mary

      • July 9, 2012 at 5:27 pm
      MaryD
      Participant

      Hi Fenny,

      I'm sorry that your sister is going through all this and agree it would be a good idea to seek opinions/treatment over here in the US if possible.

      I think you have made some good choices contacting Moffitt and MD Anderson – I am a patient of Dr. Jeff Weber at Moffitt and he is an excellent doctor.   As noted in one of the other posts, you can email him directly and he is very prompt with responses.  

      I'm glad you found us at the MPIP and please keep us posted as to how everything works out.   Your sister will be in my thoughts  . . .

      Mary

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