Scans today
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Scans today

› Forums › General Melanoma Community › Scans today

  • Post
    • June 4, 2012 at 3:27 pm
    Wetterhorn
    Participant

    Been a while since I have posted, lots going on the news these days so I thought I would come and check out the board. The PD-1 therapy and MEK look quite promising, which is always great to see. Nothing like some uplifting clinical news to give new hope. I'm going to pepper Dr Carvajal about the new drugs when I see him this week up at MSKCC. Going in for liver MRI and full body CT today. I have been stable for just over a year now with a sub 1 cm met in the liver (at least that is what they say it is, no biopsy has been performed though).

    Been a while since I have posted, lots going on the news these days so I thought I would come and check out the board. The PD-1 therapy and MEK look quite promising, which is always great to see. Nothing like some uplifting clinical news to give new hope. I'm going to pepper Dr Carvajal about the new drugs when I see him this week up at MSKCC. Going in for liver MRI and full body CT today. I have been stable for just over a year now with a sub 1 cm met in the liver (at least that is what they say it is, no biopsy has been performed though). Did yervoy last July/Aug and got 3 infusions before severe side effects derailed my last treatment and subsequently destroyed my adrenal and thyroid glands. But, the liver met has not grown, so I suppose "net net", its a win for now.

    And the intestines are doing well after the 2 surgeries I had last spring. No real problems there. Obviously have a little scanxiety today and will be hoping for the best on Thursday when I get the results.

    Wetterhorn

     

Viewing 8 reply threads
  • Replies
      • June 4, 2012 at 4:48 pm
      Rebecca and Bob
      Participant

      Good luck today, it's stressful but I will be hoping for good news for you today. Glad to hear your not having Intestinal issues, my husband went through that same surgery we are hoping we still get good news next month. It kind of sounds like the liver spot might not be anything?

       

      Rebecca

      • June 4, 2012 at 4:48 pm
      Rebecca and Bob
      Participant

      Good luck today, it's stressful but I will be hoping for good news for you today. Glad to hear your not having Intestinal issues, my husband went through that same surgery we are hoping we still get good news next month. It kind of sounds like the liver spot might not be anything?

       

      Rebecca

      • June 4, 2012 at 4:48 pm
      Rebecca and Bob
      Participant

      Good luck today, it's stressful but I will be hoping for good news for you today. Glad to hear your not having Intestinal issues, my husband went through that same surgery we are hoping we still get good news next month. It kind of sounds like the liver spot might not be anything?

       

      Rebecca

      • June 4, 2012 at 6:38 pm
      susanr
      Participant

      good luck.!!!!!!!  I understand.  My brother goes for scans in 2 weeks after finishing temodor and abraxane.  We are all not looking forward to it.  Keep strong.!!!!!!  Use this forum like I do to help you through this.  Keep us posted.  I will be looking out for you on the forum and my prayers are with you.

       

      Susan NY

        • June 4, 2012 at 6:49 pm
        Erinmay22
        Participant

        Hey Wetterhorn – positive thoughts and prayers your way!  I'll be at Sloan tomorrow for my weekly blood draws and a brain MRI.  In March 2011 I had a VAT's procedure done and then clear lungs.  on the 22nd I sent in for my 3 month scan updates and had severe anemia (got admitted for a blood transfusion) and they see a small spot on my intestine and some lymph nodes around there.  Just thought our cases were somewhat similiar.  Met with Dr Ariyan (she's great!).  I wanted surgery but she wasn't sure she could get all the lymph around the intestine spot.  So my doctor has started me on Zelboraf.  Just started it last week…  we'll see how things go!

        here's to good news!

        Cheers,
        Erin

        • June 4, 2012 at 10:00 pm
        Snickers60
        Participant

        I call it SCANITIS…………we're having it too.   Next week, after 7 weeks on ZEL, we will find out WHAT it's doing !

         

        We wish you the very best in your journey and with your test.    WE UNDERSTAND !  

         

        BLESSINGS AND HEALTH,

        Nancy (devoted wife of 3X warrior Wayne)

        • June 4, 2012 at 10:00 pm
        Snickers60
        Participant

        I call it SCANITIS…………we're having it too.   Next week, after 7 weeks on ZEL, we will find out WHAT it's doing !

         

        We wish you the very best in your journey and with your test.    WE UNDERSTAND !  

         

        BLESSINGS AND HEALTH,

        Nancy (devoted wife of 3X warrior Wayne)

        • June 4, 2012 at 10:00 pm
        Snickers60
        Participant

        I call it SCANITIS…………we're having it too.   Next week, after 7 weeks on ZEL, we will find out WHAT it's doing !

         

        We wish you the very best in your journey and with your test.    WE UNDERSTAND !  

         

        BLESSINGS AND HEALTH,

        Nancy (devoted wife of 3X warrior Wayne)

        • June 4, 2012 at 6:49 pm
        Erinmay22
        Participant

        Hey Wetterhorn – positive thoughts and prayers your way!  I'll be at Sloan tomorrow for my weekly blood draws and a brain MRI.  In March 2011 I had a VAT's procedure done and then clear lungs.  on the 22nd I sent in for my 3 month scan updates and had severe anemia (got admitted for a blood transfusion) and they see a small spot on my intestine and some lymph nodes around there.  Just thought our cases were somewhat similiar.  Met with Dr Ariyan (she's great!).  I wanted surgery but she wasn't sure she could get all the lymph around the intestine spot.  So my doctor has started me on Zelboraf.  Just started it last week…  we'll see how things go!

        here's to good news!

        Cheers,
        Erin

        • June 4, 2012 at 6:49 pm
        Erinmay22
        Participant

        Hey Wetterhorn – positive thoughts and prayers your way!  I'll be at Sloan tomorrow for my weekly blood draws and a brain MRI.  In March 2011 I had a VAT's procedure done and then clear lungs.  on the 22nd I sent in for my 3 month scan updates and had severe anemia (got admitted for a blood transfusion) and they see a small spot on my intestine and some lymph nodes around there.  Just thought our cases were somewhat similiar.  Met with Dr Ariyan (she's great!).  I wanted surgery but she wasn't sure she could get all the lymph around the intestine spot.  So my doctor has started me on Zelboraf.  Just started it last week…  we'll see how things go!

        here's to good news!

        Cheers,
        Erin

      • June 4, 2012 at 6:38 pm
      susanr
      Participant

      good luck.!!!!!!!  I understand.  My brother goes for scans in 2 weeks after finishing temodor and abraxane.  We are all not looking forward to it.  Keep strong.!!!!!!  Use this forum like I do to help you through this.  Keep us posted.  I will be looking out for you on the forum and my prayers are with you.

       

      Susan NY

      • June 4, 2012 at 6:38 pm
      susanr
      Participant

      good luck.!!!!!!!  I understand.  My brother goes for scans in 2 weeks after finishing temodor and abraxane.  We are all not looking forward to it.  Keep strong.!!!!!!  Use this forum like I do to help you through this.  Keep us posted.  I will be looking out for you on the forum and my prayers are with you.

       

      Susan NY

      • June 4, 2012 at 10:20 pm
      LynnLuc
      Participant

      Good Luck on your Scans! It's worth your while to bring up the Anti PD 1. I have been on it since 2010 and have remained NED for 2 years. I have been doing the original  one aka MDX 1106 ( BMS-936558) .Lynn

      • June 4, 2012 at 10:20 pm
      LynnLuc
      Participant

      Good Luck on your Scans! It's worth your while to bring up the Anti PD 1. I have been on it since 2010 and have remained NED for 2 years. I have been doing the original  one aka MDX 1106 ( BMS-936558) .Lynn

      • June 4, 2012 at 10:20 pm
      LynnLuc
      Participant

      Good Luck on your Scans! It's worth your while to bring up the Anti PD 1. I have been on it since 2010 and have remained NED for 2 years. I have been doing the original  one aka MDX 1106 ( BMS-936558) .Lynn

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