Bad news
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Bad news

› Forums › General Melanoma Community › Bad news

  • Post
    • May 4, 2012 at 4:25 am
    deardad
    Participant

    Such bad news today and I'm devasted. My dad has 6 new brain mets and progression through the body.

    They are starting WBR next week and he is starting Temolozide tomorrow. So sad…what can I expect can someone please advise me.

    Thank you in advance.

    Nahmi

    Such bad news today and I'm devasted. My dad has 6 new brain mets and progression through the body.

    They are starting WBR next week and he is starting Temolozide tomorrow. So sad…what can I expect can someone please advise me.

    Thank you in advance.

    Nahmi

Viewing 17 reply threads
  • Replies
      • May 4, 2012 at 5:27 am
      hope4cure1
      Participant

      Oh Nahmi, I don't know much about what you can expect, but I just want you to know that my heart is with you guys, and your family will be in my thoughts and prayers..    Hugs across the ocean,

      Hope

      • May 4, 2012 at 5:27 am
      hope4cure1
      Participant

      Oh Nahmi, I don't know much about what you can expect, but I just want you to know that my heart is with you guys, and your family will be in my thoughts and prayers..    Hugs across the ocean,

      Hope

      • May 4, 2012 at 5:27 am
      hope4cure1
      Participant

      Oh Nahmi, I don't know much about what you can expect, but I just want you to know that my heart is with you guys, and your family will be in my thoughts and prayers..    Hugs across the ocean,

      Hope

      • May 4, 2012 at 5:32 am
      deardad
      Participant

      I meant Temodol the chemo drug

      • May 4, 2012 at 5:32 am
      deardad
      Participant

      I meant Temodol the chemo drug

      • May 4, 2012 at 5:32 am
      deardad
      Participant

      I meant Temodol the chemo drug

      • May 4, 2012 at 8:18 am
      FormerCaregiver
      Participant

      Nahmi, I am really sorry to read this news. Unfortunately, BRAF inhibitor resistance
      appears to be a problem now. Therefore, drugs such as MEK/PI3K or HSP90 inhibitors
      (XL888) may be needed in order to counteract this process. (See:
      http://clincancerres.aacrjournals.org/content/early/2012/02/18/1078-0432.CCR-11-2612).
      However, I don't know if the appropriate clinical trials are available locally.

      Not sure if you meant temozolomide but here is some info about it:
      http://www.chemocare.com/bio/temozolomide.asp

      As to what you can expect now, I think that depends on how your dad responds to the
      chemo and the WBR and if he is able to have access to further clinical trials.

      Take care

      Frank from Australia

      • May 4, 2012 at 8:18 am
      FormerCaregiver
      Participant

      Nahmi, I am really sorry to read this news. Unfortunately, BRAF inhibitor resistance
      appears to be a problem now. Therefore, drugs such as MEK/PI3K or HSP90 inhibitors
      (XL888) may be needed in order to counteract this process. (See:
      http://clincancerres.aacrjournals.org/content/early/2012/02/18/1078-0432.CCR-11-2612).
      However, I don't know if the appropriate clinical trials are available locally.

      Not sure if you meant temozolomide but here is some info about it:
      http://www.chemocare.com/bio/temozolomide.asp

      As to what you can expect now, I think that depends on how your dad responds to the
      chemo and the WBR and if he is able to have access to further clinical trials.

      Take care

      Frank from Australia

      • May 4, 2012 at 8:18 am
      FormerCaregiver
      Participant

      Nahmi, I am really sorry to read this news. Unfortunately, BRAF inhibitor resistance
      appears to be a problem now. Therefore, drugs such as MEK/PI3K or HSP90 inhibitors
      (XL888) may be needed in order to counteract this process. (See:
      http://clincancerres.aacrjournals.org/content/early/2012/02/18/1078-0432.CCR-11-2612).
      However, I don't know if the appropriate clinical trials are available locally.

      Not sure if you meant temozolomide but here is some info about it:
      http://www.chemocare.com/bio/temozolomide.asp

      As to what you can expect now, I think that depends on how your dad responds to the
      chemo and the WBR and if he is able to have access to further clinical trials.

      Take care

      Frank from Australia

      • May 4, 2012 at 1:11 pm
      Gene_S
      Participant

      So sorry to hear the news about your Dad.  I don't have any information on the drug or the WBR as my husband never went through any of that.  Please know that we think and pray for him and the family as well as the other warriors on here fighting this disease.  I will say an extra prayer for him and the family today.

      Judy (loving wife and caregiver of Gene Stage IV but progressing well)

      • May 4, 2012 at 1:11 pm
      Gene_S
      Participant

      So sorry to hear the news about your Dad.  I don't have any information on the drug or the WBR as my husband never went through any of that.  Please know that we think and pray for him and the family as well as the other warriors on here fighting this disease.  I will say an extra prayer for him and the family today.

      Judy (loving wife and caregiver of Gene Stage IV but progressing well)

      • May 4, 2012 at 1:11 pm
      Gene_S
      Participant

      So sorry to hear the news about your Dad.  I don't have any information on the drug or the WBR as my husband never went through any of that.  Please know that we think and pray for him and the family as well as the other warriors on here fighting this disease.  I will say an extra prayer for him and the family today.

      Judy (loving wife and caregiver of Gene Stage IV but progressing well)

      • May 4, 2012 at 1:13 pm
      lhaley
      Participant

      I am so sorry to hear that your dad took such a turn for the worse with all of the progression. 

      I have no idea of what I can advise you but you might want to listen carefully from your dad and "hear" what he wants to do. 

      Sending hugs,

      Linda

      • May 4, 2012 at 1:13 pm
      lhaley
      Participant

      I am so sorry to hear that your dad took such a turn for the worse with all of the progression. 

      I have no idea of what I can advise you but you might want to listen carefully from your dad and "hear" what he wants to do. 

      Sending hugs,

      Linda

      • May 4, 2012 at 1:13 pm
      lhaley
      Participant

      I am so sorry to hear that your dad took such a turn for the worse with all of the progression. 

      I have no idea of what I can advise you but you might want to listen carefully from your dad and "hear" what he wants to do. 

      Sending hugs,

      Linda

      • May 4, 2012 at 11:17 pm
      s Mom
      Participant

      Dear Nahmi,

      I am so sorry to hear about your dad's progression.  Please know that I am praying that the chemo and radiation work for him, and I am sending out hope hope hope!!   I know how much you love him.

      Also, there is a good webinar on the Melanoma International site about WBR.  Not sure if you can access it, but it has lots of information about what is involved.   I am sending hugs across the ocean, too.   Take care and God Bless.

      Bridgette (Jeff's Mom)

      • May 4, 2012 at 11:17 pm
      s Mom
      Participant

      Dear Nahmi,

      I am so sorry to hear about your dad's progression.  Please know that I am praying that the chemo and radiation work for him, and I am sending out hope hope hope!!   I know how much you love him.

      Also, there is a good webinar on the Melanoma International site about WBR.  Not sure if you can access it, but it has lots of information about what is involved.   I am sending hugs across the ocean, too.   Take care and God Bless.

      Bridgette (Jeff's Mom)

      • May 4, 2012 at 11:17 pm
      s Mom
      Participant

      Dear Nahmi,

      I am so sorry to hear about your dad's progression.  Please know that I am praying that the chemo and radiation work for him, and I am sending out hope hope hope!!   I know how much you love him.

      Also, there is a good webinar on the Melanoma International site about WBR.  Not sure if you can access it, but it has lots of information about what is involved.   I am sending hugs across the ocean, too.   Take care and God Bless.

      Bridgette (Jeff's Mom)

Viewing 17 reply threads
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