What to do?
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What to do?

› Forums › General Melanoma Community › What to do?

  • Post
    • March 31, 2012 at 3:10 am
    deardad
    Participant

    Thanks for everyone's input so far regarding my dad's treatment. I feel quite powerless at the moment. There are very few trials here in Australia at the moment. The only option is continue on BRAF while some tumors are stable others slight increase and add the MEK to it. We meet his oncologist on the 11 of April to discuss a plan.

    Thanks for everyone's input so far regarding my dad's treatment. I feel quite powerless at the moment. There are very few trials here in Australia at the moment. The only option is continue on BRAF while some tumors are stable others slight increase and add the MEK to it. We meet his oncologist on the 11 of April to discuss a plan.

    Can I ask why we would remove the three/4 subs in and perhaps SRS surgery on liver tumors which are stable. The one in the spleen could perhaps be removed too or spleen removed? I know that must sound really crazy and I know it won't eliminate the disease but surely it will give my dad more time. What are you're thoughts.

    There may be an E7080 trial in Sydney and we are Melbourne and BEZ235 plus MEK162 inhibitor trial in Melbourne.

    How poor is that selection? 

    Sorry feel flat

    Nahmi

Viewing 5 reply threads
  • Replies
      • March 31, 2012 at 4:40 am
      FormerCaregiver
      Participant

      Nahmi, I think that continuing on the BRAF inhibitor and adding MEK to it is a reasonable option at the moment. I also feel it would be an idea to consult a surgical oncologist regarding the liver mets. It is possible that surgery might be viable.

      The fact that some tumours are stable is encouraging. However, as there are very limited number of clinical trials available here I think that Yervoy should not be ruled out.

      Take care

      Frank from Australia

        • March 31, 2012 at 4:58 am
        deardad
        Participant

        Hi Frank,

        Thanks I'll do that. I just sent an email to the oncologist and asked about a few trials and surgery. Will let you know what the reply is. Thanks

        Nahmi

        • March 31, 2012 at 4:58 am
        deardad
        Participant

        Hi Frank,

        Thanks I'll do that. I just sent an email to the oncologist and asked about a few trials and surgery. Will let you know what the reply is. Thanks

        Nahmi

        • March 31, 2012 at 4:58 am
        deardad
        Participant

        Hi Frank,

        Thanks I'll do that. I just sent an email to the oncologist and asked about a few trials and surgery. Will let you know what the reply is. Thanks

        Nahmi

      • March 31, 2012 at 4:40 am
      FormerCaregiver
      Participant

      Nahmi, I think that continuing on the BRAF inhibitor and adding MEK to it is a reasonable option at the moment. I also feel it would be an idea to consult a surgical oncologist regarding the liver mets. It is possible that surgery might be viable.

      The fact that some tumours are stable is encouraging. However, as there are very limited number of clinical trials available here I think that Yervoy should not be ruled out.

      Take care

      Frank from Australia

      • March 31, 2012 at 4:40 am
      FormerCaregiver
      Participant

      Nahmi, I think that continuing on the BRAF inhibitor and adding MEK to it is a reasonable option at the moment. I also feel it would be an idea to consult a surgical oncologist regarding the liver mets. It is possible that surgery might be viable.

      The fact that some tumours are stable is encouraging. However, as there are very limited number of clinical trials available here I think that Yervoy should not be ruled out.

      Take care

      Frank from Australia

      • April 3, 2012 at 7:27 am
      James from Sydney
      Participant

      Hi Nahmi, i think there maybe a PD-1 Trial accruing at Westmead and Newcastle, my email is jeconomi@bigpond.net.au i will have more details tomorrow so send me your email and i will forward you the contact.

       

      best wishes

      James

      • April 3, 2012 at 7:27 am
      James from Sydney
      Participant

      Hi Nahmi, i think there maybe a PD-1 Trial accruing at Westmead and Newcastle, my email is jeconomi@bigpond.net.au i will have more details tomorrow so send me your email and i will forward you the contact.

       

      best wishes

      James

      • April 3, 2012 at 7:27 am
      James from Sydney
      Participant

      Hi Nahmi, i think there maybe a PD-1 Trial accruing at Westmead and Newcastle, my email is jeconomi@bigpond.net.au i will have more details tomorrow so send me your email and i will forward you the contact.

       

      best wishes

      James

Viewing 5 reply threads
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