› Forums › General Melanoma Community › Jim Stynes
- This topic has 30 replies, 7 voices, and was last updated 13 years, 8 months ago by
LeanneM.
- Post
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- March 20, 2012 at 12:17 am
To the international community on here you may not know Jim Stynes and he wasn't as far as I know I member on this board.
He fought this disease (stage 4) for nearly 3 years using his high profile as a Australian rules footballer to educate others. He passed away this morning, he was 45yrs old.
From what I understand he had numerous brain surgeries and in the end was on a antiPD1 trial here in Melbourne which was very new at the time – Nov 2011.
Another brave warrior lost.
To the international community on here you may not know Jim Stynes and he wasn't as far as I know I member on this board.
He fought this disease (stage 4) for nearly 3 years using his high profile as a Australian rules footballer to educate others. He passed away this morning, he was 45yrs old.
From what I understand he had numerous brain surgeries and in the end was on a antiPD1 trial here in Melbourne which was very new at the time – Nov 2011.
Another brave warrior lost.
- Replies
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- March 20, 2012 at 12:34 am
Very sorry to hear that news,Must have been a real fighter.Cared for people and wanted to see that others do not get the BIG "C". Rest in Peace. Al
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- March 20, 2012 at 12:34 am
Very sorry to hear that news,Must have been a real fighter.Cared for people and wanted to see that others do not get the BIG "C". Rest in Peace. Al
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- March 20, 2012 at 12:34 am
Very sorry to hear that news,Must have been a real fighter.Cared for people and wanted to see that others do not get the BIG "C". Rest in Peace. Al
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- March 20, 2012 at 1:02 am
I am deeply saddened to read this news. Jim Stynes was an exemplary melanoma warrior and a truly outstanding person.
My thoughts and prayers are with his family and friends.
Frank from Australia
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- March 20, 2012 at 1:02 am
I am deeply saddened to read this news. Jim Stynes was an exemplary melanoma warrior and a truly outstanding person.
My thoughts and prayers are with his family and friends.
Frank from Australia
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- March 20, 2012 at 1:02 am
I am deeply saddened to read this news. Jim Stynes was an exemplary melanoma warrior and a truly outstanding person.
My thoughts and prayers are with his family and friends.
Frank from Australia
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- March 20, 2012 at 1:31 am
I just opened The Age online and saw the headlines after reading your post 🙁 I've been following his story and he's been every bit as inspirational with the melanoma as he was with his football career. I feel so much for his wife and young children. Such a loss…..
AlisonC
Stage IIB
NED since 2001
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- March 20, 2012 at 1:31 am
I just opened The Age online and saw the headlines after reading your post 🙁 I've been following his story and he's been every bit as inspirational with the melanoma as he was with his football career. I feel so much for his wife and young children. Such a loss…..
AlisonC
Stage IIB
NED since 2001
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- March 20, 2012 at 1:31 am
I just opened The Age online and saw the headlines after reading your post 🙁 I've been following his story and he's been every bit as inspirational with the melanoma as he was with his football career. I feel so much for his wife and young children. Such a loss…..
AlisonC
Stage IIB
NED since 2001
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- March 20, 2012 at 12:37 pm
Very, very sad.
It was strange that nowhere was it mentioned that he had melanoma (today was reported brain cancer) but reading between the lines it was clear that it was (but only to those who would know – "lump found on back"). He was very high profile about his fight and it would've been good if it was put out there that it was "just skin cancer".
Feel for his family.
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- March 20, 2012 at 11:19 pm
I did think find this strange too. Perhaps the editors didn't want to confuse people by saying it was melanoma, as it is a common misconception that you can just "cut it out and move along" which seems to persist. Those delightful Wes Bonny melanoma ads on tv (in Aus) do seem to be changing that though.
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- March 21, 2012 at 12:27 am
Perhaps thats true….yes I must admit that ad is very confronting…as this disease is.
I do wonder….why they don't show real lesions that are melanoma in ads so people are aware of what to look for. I know when my dad was diagnosed I searched for picutures and was so surprised how some looked….like nothing at all. And in the case of my dad, his nodular form of the disease grew in an old age spot which was dark brown, itchy and growing and his GP just fobbed it off as nothing! It was only when he returned from holidays OS that it was bleeding and I demanded he get it cut out. Mind you he never showed this spot to me before. Most people do not know what to look for and the misdiagnosis of GPs seems to also be a major problem with early detection of this disease. My dad was not a sun worshipper, in fact he worked in doors all his life.
Just my two bobs worth…
Nahmi
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- March 21, 2012 at 1:03 am
I totally agree. Mine was very similar. A nodular melanoma on my scalp that I thought nothing of until it started to bleed, and even then it took me a couple of weeks to get it checked out. It looked nothing like my conception of a melanoma. I do think there should be more public information about what to look for etc. If I had have been more educated, I may have been more alert and perhaps would not be in the situation I find myself in. Only myself to blame though.
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- March 24, 2012 at 11:26 am
I agree too. I think it was shameful the way (presumably) the family did not publicise the melanoma. Given his high profile, it's undoubted that a few lives would have beens saved over the last few years. It's confusing and disappointing that such a great man seemed to let the melanoma cause down by keeping it under wraps. Like I said, at least in Victoria lives would have been saved had he and his family come out and told the public about the cause of his illness. It puts a shameful perspective on a great life as far as I'm concerned. Nothing like the grace of Amy, who used her illness to educate, and save lives in the process before the disease took her too young.
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- March 24, 2012 at 11:26 am
I agree too. I think it was shameful the way (presumably) the family did not publicise the melanoma. Given his high profile, it's undoubted that a few lives would have beens saved over the last few years. It's confusing and disappointing that such a great man seemed to let the melanoma cause down by keeping it under wraps. Like I said, at least in Victoria lives would have been saved had he and his family come out and told the public about the cause of his illness. It puts a shameful perspective on a great life as far as I'm concerned. Nothing like the grace of Amy, who used her illness to educate, and save lives in the process before the disease took her too young.
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- March 24, 2012 at 11:26 am
I agree too. I think it was shameful the way (presumably) the family did not publicise the melanoma. Given his high profile, it's undoubted that a few lives would have beens saved over the last few years. It's confusing and disappointing that such a great man seemed to let the melanoma cause down by keeping it under wraps. Like I said, at least in Victoria lives would have been saved had he and his family come out and told the public about the cause of his illness. It puts a shameful perspective on a great life as far as I'm concerned. Nothing like the grace of Amy, who used her illness to educate, and save lives in the process before the disease took her too young.
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- March 21, 2012 at 1:03 am
I totally agree. Mine was very similar. A nodular melanoma on my scalp that I thought nothing of until it started to bleed, and even then it took me a couple of weeks to get it checked out. It looked nothing like my conception of a melanoma. I do think there should be more public information about what to look for etc. If I had have been more educated, I may have been more alert and perhaps would not be in the situation I find myself in. Only myself to blame though.
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- March 21, 2012 at 1:03 am
I totally agree. Mine was very similar. A nodular melanoma on my scalp that I thought nothing of until it started to bleed, and even then it took me a couple of weeks to get it checked out. It looked nothing like my conception of a melanoma. I do think there should be more public information about what to look for etc. If I had have been more educated, I may have been more alert and perhaps would not be in the situation I find myself in. Only myself to blame though.
-
- March 21, 2012 at 12:27 am
Perhaps thats true….yes I must admit that ad is very confronting…as this disease is.
I do wonder….why they don't show real lesions that are melanoma in ads so people are aware of what to look for. I know when my dad was diagnosed I searched for picutures and was so surprised how some looked….like nothing at all. And in the case of my dad, his nodular form of the disease grew in an old age spot which was dark brown, itchy and growing and his GP just fobbed it off as nothing! It was only when he returned from holidays OS that it was bleeding and I demanded he get it cut out. Mind you he never showed this spot to me before. Most people do not know what to look for and the misdiagnosis of GPs seems to also be a major problem with early detection of this disease. My dad was not a sun worshipper, in fact he worked in doors all his life.
Just my two bobs worth…
Nahmi
-
- March 21, 2012 at 12:27 am
Perhaps thats true….yes I must admit that ad is very confronting…as this disease is.
I do wonder….why they don't show real lesions that are melanoma in ads so people are aware of what to look for. I know when my dad was diagnosed I searched for picutures and was so surprised how some looked….like nothing at all. And in the case of my dad, his nodular form of the disease grew in an old age spot which was dark brown, itchy and growing and his GP just fobbed it off as nothing! It was only when he returned from holidays OS that it was bleeding and I demanded he get it cut out. Mind you he never showed this spot to me before. Most people do not know what to look for and the misdiagnosis of GPs seems to also be a major problem with early detection of this disease. My dad was not a sun worshipper, in fact he worked in doors all his life.
Just my two bobs worth…
Nahmi
-
- March 20, 2012 at 11:19 pm
I did think find this strange too. Perhaps the editors didn't want to confuse people by saying it was melanoma, as it is a common misconception that you can just "cut it out and move along" which seems to persist. Those delightful Wes Bonny melanoma ads on tv (in Aus) do seem to be changing that though.
-
- March 20, 2012 at 11:19 pm
I did think find this strange too. Perhaps the editors didn't want to confuse people by saying it was melanoma, as it is a common misconception that you can just "cut it out and move along" which seems to persist. Those delightful Wes Bonny melanoma ads on tv (in Aus) do seem to be changing that though.
-
- March 20, 2012 at 12:37 pm
Very, very sad.
It was strange that nowhere was it mentioned that he had melanoma (today was reported brain cancer) but reading between the lines it was clear that it was (but only to those who would know – "lump found on back"). He was very high profile about his fight and it would've been good if it was put out there that it was "just skin cancer".
Feel for his family.
-
- March 20, 2012 at 12:37 pm
Very, very sad.
It was strange that nowhere was it mentioned that he had melanoma (today was reported brain cancer) but reading between the lines it was clear that it was (but only to those who would know – "lump found on back"). He was very high profile about his fight and it would've been good if it was put out there that it was "just skin cancer".
Feel for his family.
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