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Update on my visit to Carbone Cancer Center
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Update on my visit to Carbone Cancer Center

› Forums › General Melanoma Community › Update on my visit to Carbone Cancer Center

  • Post
    • March 14, 2012 at 12:31 am
    yoopergirl
    Participant

      First of all I like the doctor, he is much more informed about Melanoma but he did tell me that he doesn't think the Yervoy worked for me since I have 4 new growths on my arm, he is ordering a cat scan and a MRI for the 26th, said a pet scan does not look at the brain. Also said he would have done the same thing as the other oncologist did, put me on high strength prendisone since my stay in the hospital was one of the bad side effects. I chose to stay with this doctor in Madison. He did mention maybe chemo or PD 1 if the yervoy did not work.

      First of all I like the doctor, he is much more informed about Melanoma but he did tell me that he doesn't think the Yervoy worked for me since I have 4 new growths on my arm, he is ordering a cat scan and a MRI for the 26th, said a pet scan does not look at the brain. Also said he would have done the same thing as the other oncologist did, put me on high strength prendisone since my stay in the hospital was one of the bad side effects. I chose to stay with this doctor in Madison. He did mention maybe chemo or PD 1 if the yervoy did not work. I did read where sometimes the tumors grow while on this drug but he did not seem to think so, he will be consulting with Dr Albertini on Thursday. I came out of there pretty down in the dumps but I have to pick myself up and fight this cancer with everythin they can give me. 

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    • Replies
        • March 14, 2012 at 12:46 pm
        Linny
        Participant

          I'm sorry that your trip to Carbone put you down in the dumps. Maybe after your doc consults with Dr Albertini, he might have better news for you regarding the Yervoy treatment you had.

          • March 14, 2012 at 12:46 pm
          Linny
          Participant

            I'm sorry that your trip to Carbone put you down in the dumps. Maybe after your doc consults with Dr Albertini, he might have better news for you regarding the Yervoy treatment you had.

            • March 14, 2012 at 12:46 pm
            Linny
            Participant

              I'm sorry that your trip to Carbone put you down in the dumps. Maybe after your doc consults with Dr Albertini, he might have better news for you regarding the Yervoy treatment you had.

              • March 14, 2012 at 7:36 pm
              boot2aboot
              Participant

                sounds like you are in good hands…good move…yes, this disease is usually….dissapointing

                boots

                  • March 14, 2012 at 7:46 pm
                  yoopergirl
                  Participant

                    The ipi has made my eyes inflamed and that  I guess is one of the side effects, only 10% get this, well today I saw the eye doctor and he made it very clear that I should not have any more treatments since my eyes are still bad, now I have more prednisone drops to put in and dilating drops. this disease goes where it wants and has an effect on any body with the treatment. 

                    • March 14, 2012 at 7:46 pm
                    yoopergirl
                    Participant

                      The ipi has made my eyes inflamed and that  I guess is one of the side effects, only 10% get this, well today I saw the eye doctor and he made it very clear that I should not have any more treatments since my eyes are still bad, now I have more prednisone drops to put in and dilating drops. this disease goes where it wants and has an effect on any body with the treatment. 

                      • March 14, 2012 at 7:46 pm
                      yoopergirl
                      Participant

                        The ipi has made my eyes inflamed and that  I guess is one of the side effects, only 10% get this, well today I saw the eye doctor and he made it very clear that I should not have any more treatments since my eyes are still bad, now I have more prednisone drops to put in and dilating drops. this disease goes where it wants and has an effect on any body with the treatment. 

                      • March 14, 2012 at 7:36 pm
                      boot2aboot
                      Participant

                        sounds like you are in good hands…good move…yes, this disease is usually….dissapointing

                        boots

                        • March 14, 2012 at 7:36 pm
                        boot2aboot
                        Participant

                          sounds like you are in good hands…good move…yes, this disease is usually….dissapointing

                          boots

                          • March 15, 2012 at 8:20 pm
                          Maxximom
                          Participant

                            Hi Yoopergirl.. I replied to you last night and before I could hit the reply button.. the post dissapeared..so here I go again. I am glad that you liked the doctor in Madison and so sorry that the news left you so depressed/You and he have no way as yet to know if the Ippi worked or not..so try and look at things on the bright side..easier to say than do.. I know. I am sorry that you are still haVING TROUBLE WITH YOUR EYES.. i HOPE THAT THINGS WILL RESOLVE SOON FOR YOU. i AM GOING TO POST ABOUT MY TROUBLES WITH iPPI SIDE EFFECTS (SEVERE dIARRHEAS) IN A NEW THREAD. i HOPE THAT YOU FEEL BETTER SOON..YOU HAVE BEEN THROUGH A LOT IN THE LAST FEW WEEKS.pRAYERS ARE WITH YOU.(opps..just saw caps were on..sorry)

                            jOAN

                            • March 15, 2012 at 8:20 pm
                            Maxximom
                            Participant

                              Hi Yoopergirl.. I replied to you last night and before I could hit the reply button.. the post dissapeared..so here I go again. I am glad that you liked the doctor in Madison and so sorry that the news left you so depressed/You and he have no way as yet to know if the Ippi worked or not..so try and look at things on the bright side..easier to say than do.. I know. I am sorry that you are still haVING TROUBLE WITH YOUR EYES.. i HOPE THAT THINGS WILL RESOLVE SOON FOR YOU. i AM GOING TO POST ABOUT MY TROUBLES WITH iPPI SIDE EFFECTS (SEVERE dIARRHEAS) IN A NEW THREAD. i HOPE THAT YOU FEEL BETTER SOON..YOU HAVE BEEN THROUGH A LOT IN THE LAST FEW WEEKS.pRAYERS ARE WITH YOU.(opps..just saw caps were on..sorry)

                              jOAN

                              • March 15, 2012 at 8:20 pm
                              Maxximom
                              Participant

                                Hi Yoopergirl.. I replied to you last night and before I could hit the reply button.. the post dissapeared..so here I go again. I am glad that you liked the doctor in Madison and so sorry that the news left you so depressed/You and he have no way as yet to know if the Ippi worked or not..so try and look at things on the bright side..easier to say than do.. I know. I am sorry that you are still haVING TROUBLE WITH YOUR EYES.. i HOPE THAT THINGS WILL RESOLVE SOON FOR YOU. i AM GOING TO POST ABOUT MY TROUBLES WITH iPPI SIDE EFFECTS (SEVERE dIARRHEAS) IN A NEW THREAD. i HOPE THAT YOU FEEL BETTER SOON..YOU HAVE BEEN THROUGH A LOT IN THE LAST FEW WEEKS.pRAYERS ARE WITH YOU.(opps..just saw caps were on..sorry)

                                jOAN

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