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Need advice please

› Forums › General Melanoma Community › Need advice please

  • Post
    • January 20, 2012 at 12:58 am
    NYKaren
    Participant

    hi,

    1) I just discovered what I believe is a new satellite, in my ear canal!   Has anyone else experienced this?

     While we wait for some Anti PD-1 trial that I fit the criteria for, Dr. Halpern is freezing all the mel on my face & I'm applying Aldera at night.  They are very concerned about halting the progression of satellites, but held off on the planned Temodar because the Merk trial only allows 2 prior systemic treatments…Now I don't know if this new development will change that. 

    hi,

    1) I just discovered what I believe is a new satellite, in my ear canal!   Has anyone else experienced this?

     While we wait for some Anti PD-1 trial that I fit the criteria for, Dr. Halpern is freezing all the mel on my face & I'm applying Aldera at night.  They are very concerned about halting the progression of satellites, but held off on the planned Temodar because the Merk trial only allows 2 prior systemic treatments…Now I don't know if this new development will change that. 

    Called Dr. Wolchok about ear today, he said it's a matter for Dr. Halpern.  Dr. H. is out of town–I have app't with him for the 30th.  

    My next app't w/Wolchok is Feb. 9.

    2)  Dr. H made app't  for me w/one of the surgical derm. docs (right after I see him on the 30th.) to discuss injecting IL-2 into the primary and all the satellites.  I don't know anything about this treatment–the side effects of high dose IL-2 were awful and I wound up not responding.   Anyone know about this, and what the side-effects are?  Can't find anything on internet about it.

    Last week I was cautiously optimistic because Wolchok said that if Merck would allow calipers to show measurable disease, i might get into that trial, and also that GSK is supposed to start an anti pd-1 trial without the current ipi arm.  Enough people have done ipi unsuccessfully…i think it's time–it's just more money in their pocket if/when their anti-pd-1 drug gets FDA approval.

    Any advice/suggestions welcome.

    thanks,

    karen

Viewing 2 reply threads
  • Replies
      • January 20, 2012 at 2:29 pm
      DonW
      Participant

      Hi, Karen. Satellites are rare and so treatments for them are also. I have heard of injecting IL-2 (and also BCG) directly into sub-qs and I suppose this is also possible for satellites. I don't think there are any side effects, certainly not any like high dose IL-2.

      Good luck getting into your trial. You seem to be in good hands at Sloan and I have heard nothing but good things about Dr. Wolchuck.

      • January 20, 2012 at 2:29 pm
      DonW
      Participant

      Hi, Karen. Satellites are rare and so treatments for them are also. I have heard of injecting IL-2 (and also BCG) directly into sub-qs and I suppose this is also possible for satellites. I don't think there are any side effects, certainly not any like high dose IL-2.

      Good luck getting into your trial. You seem to be in good hands at Sloan and I have heard nothing but good things about Dr. Wolchuck.

        • January 20, 2012 at 9:25 pm
        NYKaren
        Participant

        Thanks, Don

        Yes, he is great, but I wish he could magically make a clinical trial appear.  

        have a great weekend,

        karen

        • January 20, 2012 at 9:25 pm
        NYKaren
        Participant

        Thanks, Don

        Yes, he is great, but I wish he could magically make a clinical trial appear.  

        have a great weekend,

        karen

        • January 20, 2012 at 9:25 pm
        NYKaren
        Participant

        Thanks, Don

        Yes, he is great, but I wish he could magically make a clinical trial appear.  

        have a great weekend,

        karen

      • January 20, 2012 at 2:29 pm
      DonW
      Participant

      Hi, Karen. Satellites are rare and so treatments for them are also. I have heard of injecting IL-2 (and also BCG) directly into sub-qs and I suppose this is also possible for satellites. I don't think there are any side effects, certainly not any like high dose IL-2.

      Good luck getting into your trial. You seem to be in good hands at Sloan and I have heard nothing but good things about Dr. Wolchuck.

Viewing 2 reply threads
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