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Clean MRI!

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  • Post
    • December 12, 2011 at 5:11 am
    deardad
    Participant

    Wow, just back from the oncologist and my dad's MRI came back clean. What a small victory for now in this aggressive battle.

    Wow, just back from the oncologist and my dad's MRI came back clean. What a small victory for now in this aggressive battle.

    6 months post craniotomy his brain is still clean…might be the Vemurafenib or just plain luck that it hasn't gone back there. Dad's oncologist is fresh back from the recent conference held in the States and he said there's a lot in the pipeline in regards to new trials. I know I learn more here than anywhere else and I'm thankful to all for that because he's pretty tight lipped about it.  Australia seems to be a little behind trial wise compared to the States.

    Anyway the update is that he wants dad to stay on this drug for as possible then if the brain stays clean add MEK to the BRAF. After that maybe ANTIPD1 will be up and running here in Melbourne and dad may be eligible. 

    Anyway just wanted to share some good news with everyone.

    Take care

    Nahmi from Melbourne

Viewing 5 reply threads
  • Replies
      • December 12, 2011 at 6:00 am
      FormerCaregiver
      Participant

      Nahmi, this is truly wonderful news!  It looks like your dad is getting the right treatment at the right time!

      I agree that Australia is lagging behind the States with clinical trials. In addition, I feel that melanoma research here needs much more funding that it is currently receiving.

      Best wishes

      Frank from Australia

        • December 12, 2011 at 8:57 am
        deardad
        Participant

        Thanks Frank,

        Yes Im feeling more relaxed today, knowing that things are kind of under control for now. 

        Nahmi from Melbourne

        • December 12, 2011 at 8:57 am
        deardad
        Participant

        Thanks Frank,

        Yes Im feeling more relaxed today, knowing that things are kind of under control for now. 

        Nahmi from Melbourne

        • December 12, 2011 at 8:57 am
        deardad
        Participant

        Thanks Frank,

        Yes Im feeling more relaxed today, knowing that things are kind of under control for now. 

        Nahmi from Melbourne

      • December 12, 2011 at 6:00 am
      FormerCaregiver
      Participant

      Nahmi, this is truly wonderful news!  It looks like your dad is getting the right treatment at the right time!

      I agree that Australia is lagging behind the States with clinical trials. In addition, I feel that melanoma research here needs much more funding that it is currently receiving.

      Best wishes

      Frank from Australia

      • December 12, 2011 at 6:00 am
      FormerCaregiver
      Participant

      Nahmi, this is truly wonderful news!  It looks like your dad is getting the right treatment at the right time!

      I agree that Australia is lagging behind the States with clinical trials. In addition, I feel that melanoma research here needs much more funding that it is currently receiving.

      Best wishes

      Frank from Australia

      • December 12, 2011 at 12:08 pm
      Richard_K
      Participant
      Nahmi
      Great news, thanks for sharing.
      Dick
        • December 12, 2011 at 12:45 pm
        Laurie from maine
        Participant

        wonderful news, that is great!  you must be thrilled, hows your dad feeling?

        thanks for posting

        laurie from maine

        • December 12, 2011 at 12:45 pm
        Laurie from maine
        Participant

        wonderful news, that is great!  you must be thrilled, hows your dad feeling?

        thanks for posting

        laurie from maine

        • December 12, 2011 at 12:45 pm
        Laurie from maine
        Participant

        wonderful news, that is great!  you must be thrilled, hows your dad feeling?

        thanks for posting

        laurie from maine

        • December 12, 2011 at 12:45 pm
        Laurie from maine
        Participant

        wonderful news, that is great!  you must be thrilled, hows your dad feeling?

        thanks for posting

        laurie from maine

        • December 12, 2011 at 12:45 pm
        Laurie from maine
        Participant

        wonderful news, that is great!  you must be thrilled, hows your dad feeling?

        thanks for posting

        laurie from maine

        • December 12, 2011 at 12:45 pm
        Laurie from maine
        Participant

        wonderful news, that is great!  you must be thrilled, hows your dad feeling?

        thanks for posting

        laurie from maine

        • December 12, 2011 at 12:46 pm
        Laurie from maine
        Participant

        wonderful news, that is great!  you must be thrilled, hows your dad feeling?

        thanks for posting

        laurie from maine 

        • December 12, 2011 at 9:01 pm
        deardad
        Participant

        Hi Laurie,

        Dad's feeling relieved. The only concern he voiced at the appointment was the fact that he was loosing his hair. I had to interrupt him from going on about his hair so that I could ask about trials and treatments because I see the oncologist was trying to wrap things up.

        Poor dad I suppose that's his way of copying with all the stress. Because at this point he remains a-symptomatic, the visual effects of his treatment are a constant reminder that he sick. 

        But HELLO things could be so much worse, so he can go on about his hair as long as the MM stays at bay.

        Love to all and take care

        Nahmi from Melbourne

        • December 12, 2011 at 9:01 pm
        deardad
        Participant

        Hi Laurie,

        Dad's feeling relieved. The only concern he voiced at the appointment was the fact that he was loosing his hair. I had to interrupt him from going on about his hair so that I could ask about trials and treatments because I see the oncologist was trying to wrap things up.

        Poor dad I suppose that's his way of copying with all the stress. Because at this point he remains a-symptomatic, the visual effects of his treatment are a constant reminder that he sick. 

        But HELLO things could be so much worse, so he can go on about his hair as long as the MM stays at bay.

        Love to all and take care

        Nahmi from Melbourne

        • December 12, 2011 at 9:01 pm
        deardad
        Participant

        Hi Laurie,

        Dad's feeling relieved. The only concern he voiced at the appointment was the fact that he was loosing his hair. I had to interrupt him from going on about his hair so that I could ask about trials and treatments because I see the oncologist was trying to wrap things up.

        Poor dad I suppose that's his way of copying with all the stress. Because at this point he remains a-symptomatic, the visual effects of his treatment are a constant reminder that he sick. 

        But HELLO things could be so much worse, so he can go on about his hair as long as the MM stays at bay.

        Love to all and take care

        Nahmi from Melbourne

        • December 12, 2011 at 12:46 pm
        Laurie from maine
        Participant

        wonderful news, that is great!  you must be thrilled, hows your dad feeling?

        thanks for posting

        laurie from maine 

        • December 12, 2011 at 12:46 pm
        Laurie from maine
        Participant

        wonderful news, that is great!  you must be thrilled, hows your dad feeling?

        thanks for posting

        laurie from maine 

      • December 12, 2011 at 12:08 pm
      Richard_K
      Participant
      Nahmi
      Great news, thanks for sharing.
      Dick
      • December 12, 2011 at 12:08 pm
      Richard_K
      Participant
      Nahmi
      Great news, thanks for sharing.
      Dick
Viewing 5 reply threads
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