ValinMtl –Val, how are you doing!
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ValinMtl –Val, how are you doing!

› Forums › General Melanoma Community › ValinMtl –Val, how are you doing!

  • Post
    • November 30, 2011 at 11:01 pm
    killmel
    Participant

    Hi

    Val, how are you doing!

    I am been traveling & trying to catch up on everyone. I cannot find out anything from Valin from Canada. Anyone heard from Val?

    Hoping the best for you Val.

    God Bless

    Mary

    Hi

    Val, how are you doing!

    I am been traveling & trying to catch up on everyone. I cannot find out anything from Valin from Canada. Anyone heard from Val?

    Hoping the best for you Val.

    God Bless

    Mary

Viewing 2 reply threads
  • Replies
      • December 3, 2011 at 12:35 pm
      Vermont_Donna
      Participant

      HI,

      I did hear by email from Val on 11/20…she was waiting to hear from two places for possible treatments and hoping to get in soon…..I dont think she will mind if I pass along that she said she was in a lot of pain and that her leg was a nightmare…..she is hoping to get into the anti-pd 1 trreatment……so say alot of prayers for Val!!!!

      Thanks for asking about her….

      Vermont_Donna, stage 3a, NED

      ps I will write her again and see what the update is, if she can answer

      • December 3, 2011 at 12:35 pm
      Vermont_Donna
      Participant

      HI,

      I did hear by email from Val on 11/20…she was waiting to hear from two places for possible treatments and hoping to get in soon…..I dont think she will mind if I pass along that she said she was in a lot of pain and that her leg was a nightmare…..she is hoping to get into the anti-pd 1 trreatment……so say alot of prayers for Val!!!!

      Thanks for asking about her….

      Vermont_Donna, stage 3a, NED

      ps I will write her again and see what the update is, if she can answer

      • December 3, 2011 at 12:35 pm
      Vermont_Donna
      Participant

      HI,

      I did hear by email from Val on 11/20…she was waiting to hear from two places for possible treatments and hoping to get in soon…..I dont think she will mind if I pass along that she said she was in a lot of pain and that her leg was a nightmare…..she is hoping to get into the anti-pd 1 trreatment……so say alot of prayers for Val!!!!

      Thanks for asking about her….

      Vermont_Donna, stage 3a, NED

      ps I will write her again and see what the update is, if she can answer

        • December 5, 2011 at 11:01 pm
        boot2aboot
        Participant

        i encouraged her to try the anti-pd1 trial at moffitt…but i think it is too far for her to go…she is not doing well with that leg…til therapy just made her sick as heck…

        boots

        • December 5, 2011 at 11:01 pm
        boot2aboot
        Participant

        i encouraged her to try the anti-pd1 trial at moffitt…but i think it is too far for her to go…she is not doing well with that leg…til therapy just made her sick as heck…

        boots

        • December 5, 2011 at 11:01 pm
        boot2aboot
        Participant

        i encouraged her to try the anti-pd1 trial at moffitt…but i think it is too far for her to go…she is not doing well with that leg…til therapy just made her sick as heck…

        boots

        • December 6, 2011 at 12:39 am
        FormerCaregiver
        Participant

        I think that TIL treatment was unsuitable and ineffective for Val. In a previous post, I
        wondered if she has primary dermal melanoma. See:
        http://www.ncbi.nlm.nih.gov/pubmed/18209168

        If this is the case, then perhaps this is why TIL therapy didn't work? Maybe a different
        approach such as PV-10 or imiquimod (Aldara) topical cream should have been used
        instead?

        She is in my thoughts and prayers.

        Frank from Australia

        • December 6, 2011 at 12:39 am
        FormerCaregiver
        Participant

        I think that TIL treatment was unsuitable and ineffective for Val. In a previous post, I
        wondered if she has primary dermal melanoma. See:
        http://www.ncbi.nlm.nih.gov/pubmed/18209168

        If this is the case, then perhaps this is why TIL therapy didn't work? Maybe a different
        approach such as PV-10 or imiquimod (Aldara) topical cream should have been used
        instead?

        She is in my thoughts and prayers.

        Frank from Australia

        • December 6, 2011 at 12:39 am
        FormerCaregiver
        Participant

        I think that TIL treatment was unsuitable and ineffective for Val. In a previous post, I
        wondered if she has primary dermal melanoma. See:
        http://www.ncbi.nlm.nih.gov/pubmed/18209168

        If this is the case, then perhaps this is why TIL therapy didn't work? Maybe a different
        approach such as PV-10 or imiquimod (Aldara) topical cream should have been used
        instead?

        She is in my thoughts and prayers.

        Frank from Australia

Viewing 2 reply threads
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