I am in full frustration about the weirdos' that spam us, HOWEVER, There are many reasons that we have previously discussed to retain the sometime irritating use of the anonymous capability. Whether or not I agree with virotherapy, i believe that if the poster believes that it has helped themselves or a case that they know of, they should have the right to post about it here.
If one finds rude and nasty posts, they can be brought to Shelby Moneer's attention at: smoneer@melanoma.org. The post from the Anonymous posters are not totally hidden from the MRF board. In some cases they may be deleted. They do allow us much freedom in our postings which is preferred (Though not always liked.)
The non melanoma SPAM is just as bad to be here. The MRF/MPIP staff are just as frustrated as we are. It costs money and time that could be much better used to help our fight against melanoma. I'm sure Shelby is not wild about getting a copy of every fake post I find, but she is gracious and works to remove them and they are working on a more efficient way to delete the recently widespread spam posts which are "responses" under different topics.
I do believe that there are reasons of personal privacy both to reduce exposure to family that we don't want to bring out, for discussions of private areas of the body that many times a newcomer are not comfortable with posting a name. We have even gotten into discussions of sex and whether this is appropriate for melanoma patients and views on getting "satisfaction" outside of the marriage bonds. Yes, anonymity has had it's place on the MPIP from its beginning, and still does in spite of its sometimes mis-use.. In the past we could not tell who it was and shut them off. Now the MRF has developed that capability. Thanks for their work in this area.
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