Just an update
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Just an update

› Forums › General Melanoma Community › Just an update

  • Post
    • September 17, 2011 at 8:12 am
    LynnLuc
    Participant

    My Friend  Linda S ( Magnolia Springs) was put on the sister trial that I am on for melanoma that couldn't be resected ( mine was for NED pateints)…she has completed 2 twelve weeks of the anti PD 1 and peptides and has shown 30% reduction in her multiple melanomas, and no progression. Some melanomas are gone. She now begins the booster IV's of anti PD 1 every 3 months. She is the one in my picture with the shortest hair…although she now has much more hair!! Yes its awesome news!!

    My Friend  Linda S ( Magnolia Springs) was put on the sister trial that I am on for melanoma that couldn't be resected ( mine was for NED pateints)…she has completed 2 twelve weeks of the anti PD 1 and peptides and has shown 30% reduction in her multiple melanomas, and no progression. Some melanomas are gone. She now begins the booster IV's of anti PD 1 every 3 months. She is the one in my picture with the shortest hair…although she now has much more hair!! Yes its awesome news!!

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  • Replies
      • September 17, 2011 at 1:48 pm
      DebbieH
      Participant

      This is wonderful news and it's nice to see the happy picture of you two!  May her shrinkage continue until it's gone forever.

      DebbieH

      • September 17, 2011 at 1:48 pm
      DebbieH
      Participant

      This is wonderful news and it's nice to see the happy picture of you two!  May her shrinkage continue until it's gone forever.

      DebbieH

      • September 17, 2011 at 11:55 pm
      killmel
      Participant

      Hi Lynn,

       

      Great news about your friend. Do you know if that sisiter trial is still recruiting with DR. Weber?

      http://clinicaltrials.gov/ct2/show/NCT01176461

       

      Thanks for your repy.

      Barb

       

      • September 17, 2011 at 11:55 pm
      killmel
      Participant

      Hi Lynn,

       

      Great news about your friend. Do you know if that sisiter trial is still recruiting with DR. Weber?

      http://clinicaltrials.gov/ct2/show/NCT01176461

       

      Thanks for your repy.

      Barb

       

        • September 18, 2011 at 12:50 am
        LynnLuc
        Participant

        hi Barb, I believe it is still accepting patients…you could write dr Weber directly and ask =:o) and he always writes back himself jeffrey.weber@moffitt.org  . He is in China doing a seminar or something this week, but he responded to me yesterday. You could also e mail one of his nurses- hummm Jennifer.Diehl@moffitt.org she could tell you as well!! I believe it's a great trial!- Lynn

        • September 18, 2011 at 12:50 am
        LynnLuc
        Participant

        hi Barb, I believe it is still accepting patients…you could write dr Weber directly and ask =:o) and he always writes back himself jeffrey.weber@moffitt.org  . He is in China doing a seminar or something this week, but he responded to me yesterday. You could also e mail one of his nurses- hummm Jennifer.Diehl@moffitt.org she could tell you as well!! I believe it's a great trial!- Lynn

        • September 18, 2011 at 12:51 am
        LynnLuc
        Participant

        hi Barb, I believe it is still accepting patients…you could write dr Weber directly and ask =:o) and he always writes back himself jeffrey.weber@moffitt.org  . He is in China doing a seminar or something this week, but he responded to me yesterday. You could also e mail one of his nurses- hummm Jennifer.Diehl@moffitt.org she could tell you as well!! I believe it's a great trial!- Lynn

        • September 18, 2011 at 12:51 am
        LynnLuc
        Participant

        hi Barb, I believe it is still accepting patients…you could write dr Weber directly and ask =:o) and he always writes back himself jeffrey.weber@moffitt.org  . He is in China doing a seminar or something this week, but he responded to me yesterday. You could also e mail one of his nurses- hummm Jennifer.Diehl@moffitt.org she could tell you as well!! I believe it's a great trial!- Lynn

      • September 18, 2011 at 3:59 pm
      dian in spokane
      Participant

      Lynn, great news! BOTH of you keep doing great!!!

       

      dian

      • September 18, 2011 at 3:59 pm
      dian in spokane
      Participant

      Lynn, great news! BOTH of you keep doing great!!!

       

      dian

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