The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

New diagnosis

Forums General Melanoma Community New diagnosis

  • Post
    LisaMH
    Participant

    Hi all.  Newbie here.  I got the call last week that my biopsy showed melanoma.  The details of my pathology report:

    0.6 mm depth

    non-ulcerated

    Clark's Level II

    1 mitosis

    Non-brisk lymphocytic inflammation

     

    Hi all.  Newbie here.  I got the call last week that my biopsy showed melanoma.  The details of my pathology report:

    0.6 mm depth

    non-ulcerated

    Clark's Level II

    1 mitosis

    Non-brisk lymphocytic inflammation

     

    I have an appointment with a general surgeon tomorrow morning.  The pathology report suggests excising with at *least* 1 cm margins, and from some of the research I've done, it looks like 2 cm might be best due to the mitosis.  I plan to ask the surgeon about that, but is there anything else I should question?

    I have no idea what to expect at tomorrow's appointment and I'm pretty nervous.

Viewing 10 reply threads
  • Replies
      slpinion
      Participant

      I'm relatively new here too, but I wish you the best of luck as you visit with your surgeon tomorrow.  Make sure to take someone with you for support and to also be a good listener. 

      It was 1 month ago today that I met with my surgeon for my first consultation and exam.  He met with me first and asked me what I knew about melanoma and my pathology report.  (All I had been told by my dermatologist was that my melanoma was .85mm thick and he needed to refer me to this surgical oncologist.)  My surgeon listened to my concerns and then gave me an in-depth update on melanoma followed by a body exam.  Afterwards, he invited my husband into the exam room and we discussed an action plan of what needed to be done.  I was assured that my melanoma was thin (<1mm) and that there was only a 6% chance it had spread to nearby lymph nodes.  My surgeon recommended a SLN trace and biopsy to be followed with the surgical wide excision to remove any traces of melanoma and leave clear margins around the original melanoma site.  My surgery was scheduled that same day.

       

      Best of luck to you,

      Sharon in GA (stage III)

        bcl
        Participant

        Hi Sharon, how are you a stage 3 with your depth of lesion?

        slpinion
        Participant

        Unfortunately, I fell within the 6% probability that the melanoma had spread to the lymph nodes, so I am now staged as having metastatic melanoma.  I had a full body PET scan, chest and abdominal CT's, and a brain MRI on May 19th and will be meeting with my surgical oncologist on May 27th to schedule a second surgery to remove more lymph nodes and also to discuss the results of the scans that were performed.

        bcl
        Participant

        I am so sorry to hear that Sharon, good luck with your scans!

        bcl
        Participant

        I am so sorry to hear that Sharon, good luck with your scans!

        slpinion
        Participant

        Unfortunately, I fell within the 6% probability that the melanoma had spread to the lymph nodes, so I am now staged as having metastatic melanoma.  I had a full body PET scan, chest and abdominal CT's, and a brain MRI on May 19th and will be meeting with my surgical oncologist on May 27th to schedule a second surgery to remove more lymph nodes and also to discuss the results of the scans that were performed.

        bcl
        Participant

        Hi Sharon, how are you a stage 3 with your depth of lesion?

      slpinion
      Participant

      I'm relatively new here too, but I wish you the best of luck as you visit with your surgeon tomorrow.  Make sure to take someone with you for support and to also be a good listener. 

      It was 1 month ago today that I met with my surgeon for my first consultation and exam.  He met with me first and asked me what I knew about melanoma and my pathology report.  (All I had been told by my dermatologist was that my melanoma was .85mm thick and he needed to refer me to this surgical oncologist.)  My surgeon listened to my concerns and then gave me an in-depth update on melanoma followed by a body exam.  Afterwards, he invited my husband into the exam room and we discussed an action plan of what needed to be done.  I was assured that my melanoma was thin (<1mm) and that there was only a 6% chance it had spread to nearby lymph nodes.  My surgeon recommended a SLN trace and biopsy to be followed with the surgical wide excision to remove any traces of melanoma and leave clear margins around the original melanoma site.  My surgery was scheduled that same day.

       

      Best of luck to you,

      Sharon in GA (stage III)

      Carol Taylor
      Participant

      You might want to ask what his experience with melanoma is. Since he's a "general" surgeon, you might want to ask for a referral to a melanoma specialist surgical oncologist. If, for whatever reason, you choose not to ask for a referral…please before you do anything beyond having this procedure..get to a specialist. That's sooooo important!

      Hate you've joined our group, but you're in a good place.

      Grace and peace,

      Carol stage 3b

      Carol Taylor
      Participant

      You might want to ask what his experience with melanoma is. Since he's a "general" surgeon, you might want to ask for a referral to a melanoma specialist surgical oncologist. If, for whatever reason, you choose not to ask for a referral…please before you do anything beyond having this procedure..get to a specialist. That's sooooo important!

      Hate you've joined our group, but you're in a good place.

      Grace and peace,

      Carol stage 3b

      DonW
      Participant

      Lisa — Welcome to our unfortunate club. Where was your melanoma located? This is a factor effecting prognosis. In any case your melanoma is thin and you should be in good shape.

      I second what Carol said about seeing a melanoma specialist. These are usually located at major medical centers.

      DonW
      Participant

      Lisa — Welcome to our unfortunate club. Where was your melanoma located? This is a factor effecting prognosis. In any case your melanoma is thin and you should be in good shape.

      I second what Carol said about seeing a melanoma specialist. These are usually located at major medical centers.

      FormerCaregiver
      Participant

      Welcome to our forum. Thanks for the pathology details. The fact that the depth of the
      lesion is only 0.6 mm is a very good sign, and it certainly looks like the melanoma has
      been detected very early.

      I think that it is wise to make a list of any questions that you may have before the
      appointment. Many people also find it helpful to take notes during the consultation.

      Please let us know what the surgeon says.

      Hope this helps.

      Frank from Australia

      FormerCaregiver
      Participant

      Welcome to our forum. Thanks for the pathology details. The fact that the depth of the
      lesion is only 0.6 mm is a very good sign, and it certainly looks like the melanoma has
      been detected very early.

      I think that it is wise to make a list of any questions that you may have before the
      appointment. Many people also find it helpful to take notes during the consultation.

      Please let us know what the surgeon says.

      Hope this helps.

      Frank from Australia

      DMU
      Participant

      Hi.  I was called and told I have Clark level 2 melanoma over the phone and had to see a plastic surgeon. The nurse said she had no idea what it meant. I have an appointment on Monday and am unaware of what will occur. 

      DMU
      Participant

      Hi.  I was called and told I have Clark level 2 melanoma over the phone and had to see a plastic surgeon. The nurse said she had no idea what it meant. I have an appointment on Monday and am unaware of what will occur. 

      DMU
      Participant

      Hi.  I was called and told I have Clark level 2 melanoma over the phone and had to see a plastic surgeon. The nurse said she had no idea what it meant. I have an appointment on Monday and am unaware of what will occur. 

Viewing 10 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics