Two Years with NED
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Two Years with NED

› Forums › Cutaneous Melanoma Community › Two Years with NED

  • Post
    • May 19, 2011 at 6:55 pm
    dian in spokane
    Participant

    Today is the second anniversary of my last surgery. I have a long and crooked history of melanoma (which is in my patnet) starting in 1983. I advanced to stage IV in 2008 after 5 years of being NED at stage III. Last year I participated in a 6 month clinical vaccine trial, which I completed in December and I am hoping it will help KEEP me NED for a few more years!

    I feel very fortunate that I've not had to deal with some of the worst issues of advanced melanoma. I've had no organ involvement, and my subcutaneous tumors have been isolated and treated surgically.

    Today is the second anniversary of my last surgery. I have a long and crooked history of melanoma (which is in my patnet) starting in 1983. I advanced to stage IV in 2008 after 5 years of being NED at stage III. Last year I participated in a 6 month clinical vaccine trial, which I completed in December and I am hoping it will help KEEP me NED for a few more years!

    I feel very fortunate that I've not had to deal with some of the worst issues of advanced melanoma. I've had no organ involvement, and my subcutaneous tumors have been isolated and treated surgically.

    I have a PET/CT scan scheduled for early monday morning, so keep your fingers crossed for me!

    I always like to make note of these NEDversaries here, where people understand me.

    cheers!

    dian in spokane

Viewing 29 reply threads
  • Replies
      • May 19, 2011 at 7:16 pm
      Janner
      Participant

      WE LOVE NED!

      Fingers crossed here!

      Janner

      • May 19, 2011 at 7:16 pm
      Janner
      Participant

      WE LOVE NED!

      Fingers crossed here!

      Janner

        • May 19, 2011 at 7:48 pm
        Vermont_Donna
        Participant

        Dear Dian,

          Wishing you a clear scan and peace of mind. Thanks for updating us about your melanoma journey. You are an inspiration to all of us here on the MPIP board!!

        Vermont_Donna, stage 3a

        • May 19, 2011 at 7:48 pm
        Vermont_Donna
        Participant

        Dear Dian,

          Wishing you a clear scan and peace of mind. Thanks for updating us about your melanoma journey. You are an inspiration to all of us here on the MPIP board!!

        Vermont_Donna, stage 3a

      • May 19, 2011 at 7:24 pm
      lhaley
      Participant

      I hope you and Ned are best friends for many, many years to come!! 

      Linda

      • May 19, 2011 at 7:24 pm
      lhaley
      Participant

      I hope you and Ned are best friends for many, many years to come!! 

      Linda

      • May 19, 2011 at 7:34 pm
      jag
      Participant

      Congratulations Dian!!!

      many more to come.

      John

      • May 19, 2011 at 7:34 pm
      jag
      Participant

      Congratulations Dian!!!

      many more to come.

      John

      • May 19, 2011 at 7:53 pm
      TracyLee
      Participant

      Woo hoo!

      Today is my one year surgery anniversary (I've had five).

      I told my husband this morning, in years to come it will be a "gee, this was the beginning, but I'M STILL HERE" anniversary for us. 

      Prayers and wishes for your clean PET/CT on Monday.

      • May 19, 2011 at 7:53 pm
      TracyLee
      Participant

      Woo hoo!

      Today is my one year surgery anniversary (I've had five).

      I told my husband this morning, in years to come it will be a "gee, this was the beginning, but I'M STILL HERE" anniversary for us. 

      Prayers and wishes for your clean PET/CT on Monday.

      • May 19, 2011 at 7:53 pm
      akls
      Participant

      Dian,

      Congrats on being NED for two years!!  Sending you good thoughts on your upcoming scans.

       

      Amy S. in Michigan

      • May 19, 2011 at 7:53 pm
      akls
      Participant

      Dian,

      Congrats on being NED for two years!!  Sending you good thoughts on your upcoming scans.

       

      Amy S. in Michigan

      • May 19, 2011 at 8:18 pm
      Harry in Fair Oaks
      Participant

      I hope you and NED are friends for a long long time.  I was Stage IV NED for almost 11-years, but I must have done or said something to offend him.  Come back NED!

      Best wishes,

      Harry

      • May 19, 2011 at 8:18 pm
      Harry in Fair Oaks
      Participant

      I hope you and NED are friends for a long long time.  I was Stage IV NED for almost 11-years, but I must have done or said something to offend him.  Come back NED!

      Best wishes,

      Harry

      • May 19, 2011 at 8:47 pm
      jackiewin
      Participant

      Good luck with the scans Monday.  I'm hoping to hear a lifetime of NED from you.

       

      Hugs,

       

      Jackie W

      • May 19, 2011 at 8:47 pm
      jackiewin
      Participant

      Good luck with the scans Monday.  I'm hoping to hear a lifetime of NED from you.

       

      Hugs,

       

      Jackie W

      • May 19, 2011 at 8:47 pm
      jackiewin
      Participant

      Good luck with the scans Monday.  I'm hoping to hear a lifetime of NED from you.

       

      Hugs,

       

      Jackie W

      • May 19, 2011 at 8:47 pm
      jackiewin
      Participant

      Good luck with the scans Monday.  I'm hoping to hear a lifetime of NED from you.

       

      Hugs,

       

      Jackie W

      • May 19, 2011 at 8:48 pm
      jackiewin
      Participant

      Good luck with the scans Monday.  I'm hoping to hear a lifetime of NED from you.

       

      Hugs,

       

      Jackie W

      • May 19, 2011 at 8:48 pm
      jackiewin
      Participant

      Good luck with the scans Monday.  I'm hoping to hear a lifetime of NED from you.

       

      Hugs,

       

      Jackie W

      • May 20, 2011 at 1:01 am
      Jerry from Cape Cod
      Participant

      Dian

      Fingers crossed, eyes crossed, toes crossed, legs crossed, arms crossed

      Hugs and all that stuff

      Jerry from Cape Cod

       

      • May 20, 2011 at 1:01 am
      Jerry from Cape Cod
      Participant

      Dian

      Fingers crossed, eyes crossed, toes crossed, legs crossed, arms crossed

      Hugs and all that stuff

      Jerry from Cape Cod

       

      • May 20, 2011 at 1:08 am
      King
      Participant

      Dian,

       

      I'm hoping that you will be NED for more than just a few years…..many more years.  My fingers and toes are crossed for great results on your upcoming scan.  Enjoy the weekend and keep us posted.

       

      Stay Strong

      Kathie

      • May 20, 2011 at 1:08 am
      King
      Participant

      Dian,

       

      I'm hoping that you will be NED for more than just a few years…..many more years.  My fingers and toes are crossed for great results on your upcoming scan.  Enjoy the weekend and keep us posted.

       

      Stay Strong

      Kathie

      • May 20, 2011 at 2:13 am
      BethA in VA
      Participant

      Wow…so happy to hear this.  It is always nice to see good, promising news listed.  Enjoy being NED, forever!!   Beth 3/B  

      • May 20, 2011 at 2:13 am
      BethA in VA
      Participant

      Wow…so happy to hear this.  It is always nice to see good, promising news listed.  Enjoy being NED, forever!!   Beth 3/B  

      • May 20, 2011 at 4:26 pm
      Bonnie Lea
      Participant

      Oh Dian:

       

      congratulations, and yes only the bestus luck on Monday.  And all through this you have kept your fiddle playing and travelling with Cigar Bob.  

      YEAHHHHHHH

      • May 20, 2011 at 4:26 pm
      Bonnie Lea
      Participant

      Oh Dian:

       

      congratulations, and yes only the bestus luck on Monday.  And all through this you have kept your fiddle playing and travelling with Cigar Bob.  

      YEAHHHHHHH

      • May 21, 2011 at 2:44 pm
      mrsmarilyn
      Participant

      congratulations! Thanks for the update on you and NED. You are a perfect pair with many more years together!

      Best wishes and enjoy the summer with NED!

      Mrs Marilyn

      sister of Gary stage IV

      • May 21, 2011 at 2:44 pm
      mrsmarilyn
      Participant

      congratulations! Thanks for the update on you and NED. You are a perfect pair with many more years together!

      Best wishes and enjoy the summer with NED!

      Mrs Marilyn

      sister of Gary stage IV

      • May 22, 2011 at 4:40 am
      Suzan AB
      Participant

      WhooHoo Dian, Congrats on your love with NED.  I want to date the guy too!!!  LOL!

      Good luck on Monday!  My best to you and yours

      Suzan AB

      Stage right!

        • May 22, 2011 at 12:55 pm
        nicoli
        Participant

        I've been flirting with NED (no evidence of disease) myself.

        Just have to check out one spot on my scalp and NED and Nicki will be arm in arm!

        Don'tcha love love?

        Nicki, Stage 3b

        • May 22, 2011 at 12:55 pm
        nicoli
        Participant

        I've been flirting with NED (no evidence of disease) myself.

        Just have to check out one spot on my scalp and NED and Nicki will be arm in arm!

        Don'tcha love love?

        Nicki, Stage 3b

      • May 22, 2011 at 4:40 am
      Suzan AB
      Participant

      WhooHoo Dian, Congrats on your love with NED.  I want to date the guy too!!!  LOL!

      Good luck on Monday!  My best to you and yours

      Suzan AB

      Stage right!

Viewing 29 reply threads

Tagged: 

  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.