So, after a rough first Ipi/Nivo combo dose, an easy second dose and, what felt like, an average third dose (not feeling terrible but not feeling great), when I went to get the fourth dose on Thursday I was stopped and sent immediately to the hospital to get some IV steroids. My AST, ALT and Alkaline Phosphate numbers were very, very, very high. I’m still here getting steroids via IV every 12 hours but my numbers are coming down and if I can get that pesky ALT number under 1,000 I can go home today. Yay!
Anyways, it’s the end of the combo for me. I’m not sad to see it go and am happy to have made it through 3 out of 4 and that I was somehow able to pull off my daughter’s first birthday party and take her on her first plane ride all while managing through unknown Acute Hepatitis. Oh, what a ride! Ha!
Since I am in the hospital, we decided to do my quarterly scans a little early. So, we’ll see what those say but the plan is to go back on Nivo once I’ve tapered off steroids. I have to admit that one of the hardest things about the past few days is watching all of my eosinophils plummet, along with the other good WBC values but I know that’s just the steroids and that those should come back up once I’m off of these.
I really don’t have any questions, just wanted to share what a ride these past few days have been. I hope you all are doing well!
Take care!
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