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Checkin In!!

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  • Post
    • January 28, 2019 at 1:50 am
    MelanomaMike
    Participant

    Hi Family, I hope this finds everyone feeling good or atleast "Stable", iv gathered that "Janner" is MIA, i hope everything is ok..Ya know, every since the surgery i had {lung surgery} my Thyroid has been crazy low and once "again" my Endo id adjusting my Livo to 250mgc, sheez, i started with 125! it feels as if i need to "go up" more frequently now, it use to be like every 4 or 5 months now its like every 2 months their raising it.. I know it doesnt take much "effort" to get on the computer & check in once in a while but man! my energy level is VERY poor, im sluggish etc. My Endo is working hard to dial all my glands in, fine tune them back to a purring Warroir machine, so, excuse me for not gettin on like i use to, im just a litteral Vegetable right now,,,,You all take good care, i see my Surgeon one last time tommorow {as a follow up} then Tuesday is Opdivo #12! im looking forward to our brand new Infusion Building named Oasis! it just opened the 23rd, we will have "windows!" haha….Love ya guys, i really do….Mike

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  • Replies
      • January 28, 2019 at 2:00 am
      ed williams
      Participant

      Nice to hear from you Mike!!! Yes some ass $&@? gave Janner a hard time after she, like usual,  helped a new member!!! Bubbles has put out an APB (all points bulletin) so hopefully we can get her back!!!! Can you image new early staggers getting advice on pathology reports from the likes of the two of us!!! Now that would be scary!!! Take care!!!Ed

      • January 28, 2019 at 1:45 pm
      Bubbles
      Participant

      Oasis, huh?  I like that!!!   You'll get all your bits and bobs back on track!!  It takes some frustrating minutes though, doesn't it?  Even though I'm sure it doesn't feel like it, you are getting there!  Hang tough!  c

      • January 28, 2019 at 1:53 pm
      jbronicki
      Participant

      It's great to hear from you Mike.  Thyroid issues can lay you out flat for sure, just rest and let your body heal.  You'll be at warrior level again soon and leave vegetable status behind 🙂  It's just nice to hear from you and enjoy the windows, that is an upgrade for sure.  Cheers, Jackie

      • January 28, 2019 at 4:56 pm
      sing123
      Participant

      Hi Mike, hope you are able to really rest up while they get you feeling better!

      • January 28, 2019 at 6:11 pm
      Coragirl
      Participant

      Hi Mike, You have been on my mind lately. So good to hear from you, hope you get lots of rest and start feeling better soon.

      • January 28, 2019 at 7:22 pm
      Julie in SoCal
      Participant

      Hey!  So glad to get an update.  Yup I understand the vegetable feeling.  UGH!! Brain chemicals!!!

      The Oasis sounds lovely.  All this and windows too?!?  I euphemistically call the JWCI's infusion room the "garden level" (it's in the basement) as in "table for 1 at the garden level" .  Yes the volunteers that check me in look at me a little finny, but I don't care and eventually they get it.  And doing this helps me not take my frustration out on them.  Oh I do try to be kind, and gracious and grateful.  But after sitting in traffic getting there it's just tough!

      But I'm trusting you'll get your meds straightened out and will be back to feeling like Mike soon!

      Shalom,

      Julie

      • January 28, 2019 at 10:21 pm
      Scooby123
      Participant
      Hi Mike glad you checked in. Thyroid issues. Me too aching joints.rest get your strength back hun. Take care .x
      SCOOBY
      • January 29, 2019 at 12:26 am
      WithinMySkin
      Participant

      Hope the endo peeps can tweak you into tip top shape soon, Mike! My infusion center has the best muffins so you can actually *cough* enjoy *cough* going to see them. Hope you treat yourself after your infusion tomorrow!

      Lauren

      • January 30, 2019 at 5:41 am
      TexMelanomex
      Participant

      Big Mike!

      You don't call, you don't write! (I sound like my parents!) Sorry you aren't feeling 100% yet but you hang in there Warrior, let the Opdivo finish off what's left of the enemy and you'll be back to full duty status soon! I like the sound of the new 'juice bar', hopefully it still has that new smell to it! You rest up brother and keep taking the fight to the enemy.

      Tex

       

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