NED
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

NED

› Forums › General Melanoma Community › NED

  • Post
    • August 8, 2017 at 8:29 pm
    Hukill
    Participant

    In June I was told I was in remission after 14 months of nivo/ipi combo and ipi alone. I had another scan last friday and now being told NED!!!!!!!!!!! Don't know if there is much difference between remission and NED but it just sounds better. I still get ipi every other week and dealing with multiple side effects but small price to pay for no melanoma. Vitiligo is still spreading, started on hands and arms but has moved to ankles and knees, love it as it is a positive sign.

Viewing 5 reply threads
  • Replies
      • August 8, 2017 at 8:39 pm
      sister of patient
      Participant

      Great news – so pleased for you!!! Congrats and enjoy your new status!!! Best wishes always!!  🙂

      Barb

      • August 8, 2017 at 9:20 pm
      jennunicorn
      Participant

      AWESOME!! Best 3 letter acronym ever! Hope NED is your title for good!

      • August 8, 2017 at 10:52 pm
      Ridingaroundwith27Jennifers
      Participant

      Congratulations!  Wonderful news!!

      • August 9, 2017 at 3:45 am
      Casitas1
      Participant

      Well done!

      • August 10, 2017 at 1:26 am
      Nick C
      Participant

      Way to go!!!

      Nick

       

      • August 10, 2017 at 3:20 pm
      Bubbles
      Participant

      Congrats!!  Enjoy!!  Just wondering….are you still getting ipi infusions q other week…or nivo???  Here's to a walk on the white side!!!  If you and others are interested….here's a bunch of links re: vitiligo –

      http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/09/all-things-vitiligo.html

      Best wishes.  Celeste

        • August 11, 2017 at 3:44 pm
        Hukill
        Participant

        I'm sorry, I meant nivo every other week. The plan right now is continue untill the end of december and then stop if my scans are still clean.

Viewing 5 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics