TIL-4
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TIL-4

› Forums › General Melanoma Community › TIL-4

  • Post
    • December 22, 2016 at 6:35 pm
    _Paul_
    Participant

    That's what it says on the timeline. 4 days form the TIL and 2 days into chemo.

    The biggest problem to date has been pain control. The mel is causing a lot of pain on my right side making getting up and down, well, painful. During  day one I was getting chemo at the clinic, then after a very long day going to the hotel to crash.  But I could only have oral pain meds at night, and there was some throwing up, so I was a bit of a mess the next morning.

    Anyway the next day they were unable to keep the nausea under control so they sent me to the UW Hopsital full time. After 5 more days of chemo I go to the ICU here for the TIL.

    They say the first two days of cyclophosphamide are worst the the next five days fo fludarabine. My first dose of the fludarabine is in 90 mins.

    However I am still cracking jokes and some of the nurses even laugh.

    – Paul

     

Viewing 26 reply threads
  • Replies
      • December 22, 2016 at 6:43 pm
      Bubbles
      Participant

      Hang in there, Paulster!!!  I would laugh.  You made me smile just now!!  Sorry for the pain and nausea.  That's no fun at all!!!  I like the countdown.  You are Mission Control!!!  We are counting down with you!!!  Love, c

      • December 22, 2016 at 6:43 pm
      Bubbles
      Participant

      Hang in there, Paulster!!!  I would laugh.  You made me smile just now!!  Sorry for the pain and nausea.  That's no fun at all!!!  I like the countdown.  You are Mission Control!!!  We are counting down with you!!!  Love, c

      • December 22, 2016 at 6:43 pm
      Bubbles
      Participant

      Hang in there, Paulster!!!  I would laugh.  You made me smile just now!!  Sorry for the pain and nausea.  That's no fun at all!!!  I like the countdown.  You are Mission Control!!!  We are counting down with you!!!  Love, c

      • December 22, 2016 at 8:13 pm
      iskitwo
      Participant

      New to this forum and dealing with melanoma but I have learned so much from everone here! I have been praying for you!

      • December 22, 2016 at 8:13 pm
      iskitwo
      Participant

      New to this forum and dealing with melanoma but I have learned so much from everone here! I have been praying for you!

      • December 22, 2016 at 8:13 pm
      iskitwo
      Participant

      New to this forum and dealing with melanoma but I have learned so much from everone here! I have been praying for you!

        • December 22, 2016 at 8:37 pm
        _Paul_
        Participant

        Thanks jskitwo,

        Prayers mean a lot to me. Throw one in there for Josh, Gary and Adriana while you are it at! 😉

        – Paul

        • December 22, 2016 at 9:18 pm
        Bubbles
        Participant

        Amen!!!  You might add one for the anon counterfeit money poster while you're at it.  Cause I'd strangle'em with a noose made of fake passports if I could reach them!!!  Yep, just a little of my "angel on earth" side showing!!!  Arrrrrgh!!!  celeste

        • December 22, 2016 at 9:23 pm
        _Paul_
        Participant

        That made me laugh out loud! Thanks for that Celeste. 

        It's amazing – the never ending lack of angels and of assholes.

        • December 22, 2016 at 9:25 pm
        _Paul_
        Participant

        And when I say angel – that's exactly, literally what I mean

        • December 22, 2016 at 9:29 pm
        Bubbles
        Participant

        Smiing and taking a bow here, sir!!  I feel I have now accomplished something this day.  Hang tough and keep lauging at the madness.  love, c

        • December 22, 2016 at 9:29 pm
        Bubbles
        Participant

        Smiing and taking a bow here, sir!!  I feel I have now accomplished something this day.  Hang tough and keep lauging at the madness.  love, c

        • December 22, 2016 at 9:29 pm
        Bubbles
        Participant

        Smiing and taking a bow here, sir!!  I feel I have now accomplished something this day.  Hang tough and keep lauging at the madness.  love, c

        • December 22, 2016 at 9:25 pm
        _Paul_
        Participant

        And when I say angel – that's exactly, literally what I mean

        • December 22, 2016 at 9:25 pm
        _Paul_
        Participant

        And when I say angel – that's exactly, literally what I mean

        • December 22, 2016 at 9:39 pm
        Patrisa
        Participant

        Ditto for the laugh… I was already posting some juicy stuff in a reply (but in my slovenian language – so i could really go for it :-))), but decided not to, was scared that someone would be curious and use google translate… :-)))

        • December 22, 2016 at 9:39 pm
        Patrisa
        Participant

        Ditto for the laugh… I was already posting some juicy stuff in a reply (but in my slovenian language – so i could really go for it :-))), but decided not to, was scared that someone would be curious and use google translate… :-)))

        • December 22, 2016 at 9:39 pm
        Patrisa
        Participant

        Ditto for the laugh… I was already posting some juicy stuff in a reply (but in my slovenian language – so i could really go for it :-))), but decided not to, was scared that someone would be curious and use google translate… :-)))

        • December 22, 2016 at 9:23 pm
        _Paul_
        Participant

        That made me laugh out loud! Thanks for that Celeste. 

        It's amazing – the never ending lack of angels and of assholes.

        • December 22, 2016 at 9:23 pm
        _Paul_
        Participant

        That made me laugh out loud! Thanks for that Celeste. 

        It's amazing – the never ending lack of angels and of assholes.

        • December 22, 2016 at 9:30 pm
        jenny22
        Participant

        Thanks Celeste-

        You just made me lough outloud….I needed that today.

        A bit blue this week….too much going on…

        Happy Holidays to you and your peeps!!!!!

        Jenny

        • December 22, 2016 at 9:30 pm
        jenny22
        Participant

        Thanks Celeste-

        You just made me lough outloud….I needed that today.

        A bit blue this week….too much going on…

        Happy Holidays to you and your peeps!!!!!

        Jenny

        • December 22, 2016 at 9:30 pm
        jenny22
        Participant

        Thanks Celeste-

        You just made me lough outloud….I needed that today.

        A bit blue this week….too much going on…

        Happy Holidays to you and your peeps!!!!!

        Jenny

        • December 22, 2016 at 9:18 pm
        Bubbles
        Participant

        Amen!!!  You might add one for the anon counterfeit money poster while you're at it.  Cause I'd strangle'em with a noose made of fake passports if I could reach them!!!  Yep, just a little of my "angel on earth" side showing!!!  Arrrrrgh!!!  celeste

        • December 22, 2016 at 9:18 pm
        Bubbles
        Participant

        Amen!!!  You might add one for the anon counterfeit money poster while you're at it.  Cause I'd strangle'em with a noose made of fake passports if I could reach them!!!  Yep, just a little of my "angel on earth" side showing!!!  Arrrrrgh!!!  celeste

        • December 22, 2016 at 8:37 pm
        _Paul_
        Participant

        Thanks jskitwo,

        Prayers mean a lot to me. Throw one in there for Josh, Gary and Adriana while you are it at! 😉

        – Paul

        • December 22, 2016 at 8:37 pm
        _Paul_
        Participant

        Thanks jskitwo,

        Prayers mean a lot to me. Throw one in there for Josh, Gary and Adriana while you are it at! 😉

        – Paul

      • December 22, 2016 at 9:29 pm
      Patrisa
      Participant

      Paul,

      you are a rock star, your positivity just ouzes from your posts… I admire you so much, having the right attitude means so much in getting better…

      Hang in there with chemo, i can imagine its not easy, but you sound like one tough guy who can take it…

      Prayers your way!

      Love,

      Patrisa

        • December 23, 2016 at 4:02 am
        _Paul_
        Participant

        Thank you Patrisa.

        I am going to do my best!

        • December 23, 2016 at 4:02 am
        _Paul_
        Participant

        Thank you Patrisa.

        I am going to do my best!

        • December 23, 2016 at 4:02 am
        _Paul_
        Participant

        Thank you Patrisa.

        I am going to do my best!

      • December 22, 2016 at 9:29 pm
      Patrisa
      Participant

      Paul,

      you are a rock star, your positivity just ouzes from your posts… I admire you so much, having the right attitude means so much in getting better…

      Hang in there with chemo, i can imagine its not easy, but you sound like one tough guy who can take it…

      Prayers your way!

      Love,

      Patrisa

      • December 22, 2016 at 9:29 pm
      Patrisa
      Participant

      Paul,

      you are a rock star, your positivity just ouzes from your posts… I admire you so much, having the right attitude means so much in getting better…

      Hang in there with chemo, i can imagine its not easy, but you sound like one tough guy who can take it…

      Prayers your way!

      Love,

      Patrisa

      • December 22, 2016 at 9:33 pm
      jenny22
      Participant

      Hi Paul- UGH…sorry to hear about the pain and nausea……BUT as everyone here has said, you sure do have one helluva good attitude.  I think I could take a lesson or two.

      Keep those nurses laughing….

      Hoping you feel better soon, and the treatment is doing what it needs to do!!!!!

      BEST …..

      jenny

        • December 23, 2016 at 4:01 am
        _Paul_
        Participant

        Thanks Jenny,

        For me the attitude means it's something this stupid disease has been unable to take away. It already takes so much. I'll be damned if I let it takeaway the joy of existing. #*&@ you cancer! (You don't know how much restraint it took not to drop the f-bomb.)

        • December 23, 2016 at 4:01 am
        _Paul_
        Participant

        Thanks Jenny,

        For me the attitude means it's something this stupid disease has been unable to take away. It already takes so much. I'll be damned if I let it takeaway the joy of existing. #*&@ you cancer! (You don't know how much restraint it took not to drop the f-bomb.)

        • December 23, 2016 at 4:01 am
        _Paul_
        Participant

        Thanks Jenny,

        For me the attitude means it's something this stupid disease has been unable to take away. It already takes so much. I'll be damned if I let it takeaway the joy of existing. #*&@ you cancer! (You don't know how much restraint it took not to drop the f-bomb.)

      • December 22, 2016 at 9:33 pm
      jenny22
      Participant

      Hi Paul- UGH…sorry to hear about the pain and nausea……BUT as everyone here has said, you sure do have one helluva good attitude.  I think I could take a lesson or two.

      Keep those nurses laughing….

      Hoping you feel better soon, and the treatment is doing what it needs to do!!!!!

      BEST …..

      jenny

      • December 22, 2016 at 9:33 pm
      jenny22
      Participant

      Hi Paul- UGH…sorry to hear about the pain and nausea……BUT as everyone here has said, you sure do have one helluva good attitude.  I think I could take a lesson or two.

      Keep those nurses laughing….

      Hoping you feel better soon, and the treatment is doing what it needs to do!!!!!

      BEST …..

      jenny

      • December 22, 2016 at 9:38 pm
      Linny
      Participant

      Good to hear that you've managed to maintain your sense of humor through this ordeal. Have you received your Relief Band yet? 

      Praying for you. 

        • December 23, 2016 at 3:56 am
        _Paul_
        Participant

        Hi Linny,

        Amazon still says "preparing to ship ".

        • December 23, 2016 at 3:56 am
        _Paul_
        Participant

        Hi Linny,

        Amazon still says "preparing to ship ".

        • December 23, 2016 at 3:56 am
        _Paul_
        Participant

        Hi Linny,

        Amazon still says "preparing to ship ".

      • December 22, 2016 at 9:38 pm
      Linny
      Participant

      Good to hear that you've managed to maintain your sense of humor through this ordeal. Have you received your Relief Band yet? 

      Praying for you. 

      • December 22, 2016 at 9:38 pm
      Linny
      Participant

      Good to hear that you've managed to maintain your sense of humor through this ordeal. Have you received your Relief Band yet? 

      Praying for you. 

      • December 22, 2016 at 9:43 pm
      keepthefaith11
      Participant
      Rootin’ for you Paul, and praying! Keep up that Rockstar attitude of yours. You’re gonna kick this!!

      Annie

        • December 23, 2016 at 3:40 am
        _Paul_
        Participant

        Thank you Annie. I really feel the love from you and the rest of my melanoma family.

        • December 23, 2016 at 3:40 am
        _Paul_
        Participant

        Thank you Annie. I really feel the love from you and the rest of my melanoma family.

        • December 23, 2016 at 3:40 am
        _Paul_
        Participant

        Thank you Annie. I really feel the love from you and the rest of my melanoma family.

      • December 22, 2016 at 9:43 pm
      keepthefaith11
      Participant
      Rootin’ for you Paul, and praying! Keep up that Rockstar attitude of yours. You’re gonna kick this!!

      Annie

      • December 22, 2016 at 9:43 pm
      keepthefaith11
      Participant
      Rootin’ for you Paul, and praying! Keep up that Rockstar attitude of yours. You’re gonna kick this!!

      Annie

      • December 22, 2016 at 9:46 pm
      jennunicorn
      Participant

      Keep that kick ass attitude alive Paul! 

       

       

        • December 23, 2016 at 3:38 am
        _Paul_
        Participant

        Yes ma'am! Asses beware!

        – Paul

        • December 23, 2016 at 3:38 am
        _Paul_
        Participant

        Yes ma'am! Asses beware!

        – Paul

        • December 23, 2016 at 3:38 am
        _Paul_
        Participant

        Yes ma'am! Asses beware!

        – Paul

      • December 22, 2016 at 9:46 pm
      jennunicorn
      Participant

      Keep that kick ass attitude alive Paul! 

       

       

      • December 22, 2016 at 9:46 pm
      jennunicorn
      Participant

      Keep that kick ass attitude alive Paul! 

       

       

      • December 22, 2016 at 10:14 pm
      maperny
      Participant

      Nearly there, Paul. Those T-cells are itching to get in there and fight!!  I found some good "light-hearted" Ninja T-cell images on internet, nurse photocopied lots and I stuck them up all round the room for T-cell Day!!  Lots of luck and the angles will be taking care of you this week!

      Maria

        • December 23, 2016 at 3:37 am
        _Paul_
        Participant

        Thanks Maria,

        I love it, ninja T-cells!

        Did you find a new trial for your husband? After getting so much support from my family I *know* how fortunate he is to have you. You two continue to be in my prayers and I wish you the very best.

        – Paul

        • December 24, 2016 at 10:38 pm
        maperny
        Participant

        Not sure what we will try next.  Having MRI's and CT-scans on Jan 5th and 6th, then see Drs on 9th for results and next steps. If we are making progress then may stay on Keytruda but think he'll need radiation again for the rib/spine but we shall see.

        hope all goes well and Merry Christmas best you can.

        • December 24, 2016 at 10:38 pm
        maperny
        Participant

        Not sure what we will try next.  Having MRI's and CT-scans on Jan 5th and 6th, then see Drs on 9th for results and next steps. If we are making progress then may stay on Keytruda but think he'll need radiation again for the rib/spine but we shall see.

        hope all goes well and Merry Christmas best you can.

        • December 24, 2016 at 10:38 pm
        maperny
        Participant

        Not sure what we will try next.  Having MRI's and CT-scans on Jan 5th and 6th, then see Drs on 9th for results and next steps. If we are making progress then may stay on Keytruda but think he'll need radiation again for the rib/spine but we shall see.

        hope all goes well and Merry Christmas best you can.

        • December 23, 2016 at 3:37 am
        _Paul_
        Participant

        Thanks Maria,

        I love it, ninja T-cells!

        Did you find a new trial for your husband? After getting so much support from my family I *know* how fortunate he is to have you. You two continue to be in my prayers and I wish you the very best.

        – Paul

        • December 23, 2016 at 3:37 am
        _Paul_
        Participant

        Thanks Maria,

        I love it, ninja T-cells!

        Did you find a new trial for your husband? After getting so much support from my family I *know* how fortunate he is to have you. You two continue to be in my prayers and I wish you the very best.

        – Paul

      • December 22, 2016 at 10:14 pm
      maperny
      Participant

      Nearly there, Paul. Those T-cells are itching to get in there and fight!!  I found some good "light-hearted" Ninja T-cell images on internet, nurse photocopied lots and I stuck them up all round the room for T-cell Day!!  Lots of luck and the angles will be taking care of you this week!

      Maria

      • December 22, 2016 at 10:14 pm
      maperny
      Participant

      Nearly there, Paul. Those T-cells are itching to get in there and fight!!  I found some good "light-hearted" Ninja T-cell images on internet, nurse photocopied lots and I stuck them up all round the room for T-cell Day!!  Lots of luck and the angles will be taking care of you this week!

      Maria

      • December 23, 2016 at 11:34 pm
      Terrified
      Participant

      Paul

       

      May the bile NOT rise to meet you

      May the T cells always have your back

      May your Mel friends shine warm upon your face

      And forever may the Lord hold you in the palm of his hand.

       

      Judy

        • December 26, 2016 at 1:44 am
        _Paul_
        Participant

        That was great!

        Thanks – Judy

        • December 26, 2016 at 1:44 am
        _Paul_
        Participant

        That was great!

        Thanks – Judy

        • December 26, 2016 at 1:44 am
        _Paul_
        Participant

        That was great!

        Thanks – Judy

      • December 23, 2016 at 11:34 pm
      Terrified
      Participant

      Paul

       

      May the bile NOT rise to meet you

      May the T cells always have your back

      May your Mel friends shine warm upon your face

      And forever may the Lord hold you in the palm of his hand.

       

      Judy

      • December 23, 2016 at 11:34 pm
      Terrified
      Participant

      Paul

       

      May the bile NOT rise to meet you

      May the T cells always have your back

      May your Mel friends shine warm upon your face

      And forever may the Lord hold you in the palm of his hand.

       

      Judy

Viewing 26 reply threads
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