Muscle twitching and stage 4 mel
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Muscle twitching and stage 4 mel

› Forums › General Melanoma Community › Muscle twitching and stage 4 mel

  • Post
    • December 16, 2016 at 5:21 pm
    Spl25
    Participant

    I'm stage 4 with many 1-3 cm mets strewn across my body. I've responded well to treatment (PD-1) according to scans from 2 weeks ago. LDH is low, and eos/lymphocytes are in the right range. I remember (in retrospect) having mild  muscle twitching when I first started having pains associated with developing mets. Those twitches last about 3 seconds at a time, but recur frequently. They've been happening more frequently lately — does anyone know what the cause of these twitches might be? I'm thinking its some sort of chemokine or cytokine reaction in my body, or some other side effect of my body duking it out with the cancer.

    does anyone have any experience with muscle twitching? better yet, do you know what the cause may be? Keep in mind that this happened before I started PD-1, and has just started up again. 

    Thanks guys

Viewing 5 reply threads
  • Replies
      • December 16, 2016 at 6:35 pm
      debwray
      Participant

      Hi,

      I have some muscle twithching / numb feet  but like you this started well before immunotherapy treatment.

      Mine is probably linked to compressed nerves in my lumbar spine- as indicated by spinal MRI and nerve conduction tests.  Where in the body is this located ? Often nerve problems show up on the extremeties first- as these nerves have to send signals the furthest from the brain.

      If you are bothered by anything out of the ordinary it helps me to write it down- work out the frequency and report it to the oncologist—sometimes I feel I'm just doing it for reassurance- but that is worth a lot and the docs seem to be continually learning about how these drugs affect us .

      Stretches and relaxation exercises might help ?

      Best wishes

      Deb

       

      • December 16, 2016 at 6:35 pm
      debwray
      Participant

      Hi,

      I have some muscle twithching / numb feet  but like you this started well before immunotherapy treatment.

      Mine is probably linked to compressed nerves in my lumbar spine- as indicated by spinal MRI and nerve conduction tests.  Where in the body is this located ? Often nerve problems show up on the extremeties first- as these nerves have to send signals the furthest from the brain.

      If you are bothered by anything out of the ordinary it helps me to write it down- work out the frequency and report it to the oncologist—sometimes I feel I'm just doing it for reassurance- but that is worth a lot and the docs seem to be continually learning about how these drugs affect us .

      Stretches and relaxation exercises might help ?

      Best wishes

      Deb

       

      • December 16, 2016 at 6:35 pm
      debwray
      Participant

      Hi,

      I have some muscle twithching / numb feet  but like you this started well before immunotherapy treatment.

      Mine is probably linked to compressed nerves in my lumbar spine- as indicated by spinal MRI and nerve conduction tests.  Where in the body is this located ? Often nerve problems show up on the extremeties first- as these nerves have to send signals the furthest from the brain.

      If you are bothered by anything out of the ordinary it helps me to write it down- work out the frequency and report it to the oncologist—sometimes I feel I'm just doing it for reassurance- but that is worth a lot and the docs seem to be continually learning about how these drugs affect us .

      Stretches and relaxation exercises might help ?

      Best wishes

      Deb

       

      • December 16, 2016 at 11:41 pm
      Casitas1
      Participant
      I had a rare form of Melanoma Desmoplastic Neurotropic. My disease tracked along the nerves. My first tumor was numb and all the rest had that twitching feeling. After several weeks on Pembro it subsided(quick response) and gone at 4 months. NED after 7 months. I will always have numbness from all the surgeries though. Best,Paul
      • December 16, 2016 at 11:41 pm
      Casitas1
      Participant
      I had a rare form of Melanoma Desmoplastic Neurotropic. My disease tracked along the nerves. My first tumor was numb and all the rest had that twitching feeling. After several weeks on Pembro it subsided(quick response) and gone at 4 months. NED after 7 months. I will always have numbness from all the surgeries though. Best,Paul
      • December 16, 2016 at 11:41 pm
      Casitas1
      Participant
      I had a rare form of Melanoma Desmoplastic Neurotropic. My disease tracked along the nerves. My first tumor was numb and all the rest had that twitching feeling. After several weeks on Pembro it subsided(quick response) and gone at 4 months. NED after 7 months. I will always have numbness from all the surgeries though. Best,Paul
Viewing 5 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.