Need advise on staging
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Need advise on staging

› Forums › General Melanoma Community › Need advise on staging

  • Post
    • April 14, 2016 at 8:09 am
    Tamlin
    Participant

    Hi 

    can anyone on here tell me what stage my melanoma is? I asked my consultant but he swept over it and changed the subject. 

    I had my toe amputated due to an ulcerated melanoma 4mm thick, 10 years ago. 

    I now have a rather large swollen lymph node in my right groin which has proven to be melanoma. I will be having all my numbers des in right groin next week, but I would just like to know staging etc. Not knowing is worse, I think xxx 

     

    thanks 

Viewing 8 reply threads
  • Replies
      • April 14, 2016 at 8:12 am
      Tamlin
      Participant

      Sorry that's meant to read "all my nodes removed" not number lol xxx 

      • April 14, 2016 at 8:12 am
      Tamlin
      Participant

      Sorry that's meant to read "all my nodes removed" not number lol xxx 

      • April 14, 2016 at 8:12 am
      Tamlin
      Participant

      Sorry that's meant to read "all my nodes removed" not number lol xxx 

      • April 14, 2016 at 9:10 am
      stars
      Participant

      Hi – I'm no expert but I think spread to the nodes is stage 3, beyond the nodes (e.g. if a PET or CT revealed distant mets) is stage 4. So to me, you are stage 3.

      https://www.melanoma.org.au/understanding-melanoma/stages-of-melanoma/

      I hope I'm not speaking out of turn, but get a new consultant. Sweeping over staging is inexcusable – staging is all important in understanding your diagnosis, coming to terms with it and planning your treatment etc.

      Just to reframe this: you are a melanoma patient with a worrying recurrence in regional lymph nodes. Staging is THE ONLY thing you really need to know. Everything hangs off this staging. For your consultant not to clearly discuss staging – or at the very least explain that they can't stage you yet because you still need to undergo certain investigations – is pretty slack.

      • April 14, 2016 at 9:10 am
      stars
      Participant

      Hi – I'm no expert but I think spread to the nodes is stage 3, beyond the nodes (e.g. if a PET or CT revealed distant mets) is stage 4. So to me, you are stage 3.

      https://www.melanoma.org.au/understanding-melanoma/stages-of-melanoma/

      I hope I'm not speaking out of turn, but get a new consultant. Sweeping over staging is inexcusable – staging is all important in understanding your diagnosis, coming to terms with it and planning your treatment etc.

      Just to reframe this: you are a melanoma patient with a worrying recurrence in regional lymph nodes. Staging is THE ONLY thing you really need to know. Everything hangs off this staging. For your consultant not to clearly discuss staging – or at the very least explain that they can't stage you yet because you still need to undergo certain investigations – is pretty slack.

      • April 14, 2016 at 9:10 am
      stars
      Participant

      Hi – I'm no expert but I think spread to the nodes is stage 3, beyond the nodes (e.g. if a PET or CT revealed distant mets) is stage 4. So to me, you are stage 3.

      https://www.melanoma.org.au/understanding-melanoma/stages-of-melanoma/

      I hope I'm not speaking out of turn, but get a new consultant. Sweeping over staging is inexcusable – staging is all important in understanding your diagnosis, coming to terms with it and planning your treatment etc.

      Just to reframe this: you are a melanoma patient with a worrying recurrence in regional lymph nodes. Staging is THE ONLY thing you really need to know. Everything hangs off this staging. For your consultant not to clearly discuss staging – or at the very least explain that they can't stage you yet because you still need to undergo certain investigations – is pretty slack.

      • April 14, 2016 at 12:25 pm
      Janner
      Participant

      Staging will depend on the number of nodes positive.  Right now, the best your doc could say is at least stage 3.  But until you get the path report on the lymph node dissection, the more detailed staging can't be stated.

      • April 14, 2016 at 12:25 pm
      Janner
      Participant

      Staging will depend on the number of nodes positive.  Right now, the best your doc could say is at least stage 3.  But until you get the path report on the lymph node dissection, the more detailed staging can't be stated.

      • April 14, 2016 at 12:25 pm
      Janner
      Participant

      Staging will depend on the number of nodes positive.  Right now, the best your doc could say is at least stage 3.  But until you get the path report on the lymph node dissection, the more detailed staging can't be stated.

        • April 17, 2016 at 2:14 am
        Tamlin
        Participant

        Thank you xx

        • April 17, 2016 at 2:14 am
        Tamlin
        Participant

        Thank you xx

        • April 17, 2016 at 2:14 am
        Tamlin
        Participant

        Thank you xx

Viewing 8 reply threads
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