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ippi

› Forums › General Melanoma Community › ippi

  • Post
    • November 26, 2015 at 1:30 pm
    Scooby123
    Participant

    Hi everyone, i completed ippi end of july had a scan straight away to see if it was working. it had reduced my cancer by 50%. i have had another set of scans but still awaiting results after 2 weeks. i go next week to get them. i have been in a lot of pain on my left side round my ribs and lower back left side. some days it is worse than others.  am wanting to know if it still could be ippi working or tumours growing. my tumour in one of my lungs went down to 0.8mm could it grow and cause pain in a short period of time or could it be treatment still working. i know people who have been on ippi not showed responding till later on finishing it. i know i got results from it straight away but can it stop working so quick. Any experience with this treatment and after completing it would be much appriciated. I have lung liver who knows eleswhere involment.

     

    Scooby

Viewing 5 reply threads
  • Replies
      • November 26, 2015 at 4:41 pm
      Gene_S
      Participant

      Hello Scooby,

      My husband was on the Ipi trial and started it in March 2011.  He had liver, lung, unresectable near the Cervical Spine putting pressure on C1 – C2 and some sub q's.  He became NED in Oct. 2012 and quit the trial in Dec. 2103 and he is still NED.

      There is hope it is something else causing the discomfort.  If you want to read more see his profile.

      Judy loving wife of Gene (Stage IV and now NED for over 3 years.

      • November 26, 2015 at 4:41 pm
      Gene_S
      Participant

      Hello Scooby,

      My husband was on the Ipi trial and started it in March 2011.  He had liver, lung, unresectable near the Cervical Spine putting pressure on C1 – C2 and some sub q's.  He became NED in Oct. 2012 and quit the trial in Dec. 2103 and he is still NED.

      There is hope it is something else causing the discomfort.  If you want to read more see his profile.

      Judy loving wife of Gene (Stage IV and now NED for over 3 years.

      • November 26, 2015 at 4:41 pm
      Gene_S
      Participant

      Hello Scooby,

      My husband was on the Ipi trial and started it in March 2011.  He had liver, lung, unresectable near the Cervical Spine putting pressure on C1 – C2 and some sub q's.  He became NED in Oct. 2012 and quit the trial in Dec. 2103 and he is still NED.

      There is hope it is something else causing the discomfort.  If you want to read more see his profile.

      Judy loving wife of Gene (Stage IV and now NED for over 3 years.

        • November 26, 2015 at 10:36 pm
        Scooby123
        Participant

        Thanks GeneS

        I called my nurse today she is going to speak to my consultant tomorrow and look at my scans hopefully and see what's going on. I have oestarthuritus in my spin back and it is stuff and can cause pain but this feels different. Fingers crossed it not the tumours or more , thank you for your reply I have read your husband profile many times which gives me hope. I am braf negative .

        Scooby❤️

        • November 26, 2015 at 10:36 pm
        Scooby123
        Participant

        Thanks GeneS

        I called my nurse today she is going to speak to my consultant tomorrow and look at my scans hopefully and see what's going on. I have oestarthuritus in my spin back and it is stuff and can cause pain but this feels different. Fingers crossed it not the tumours or more , thank you for your reply I have read your husband profile many times which gives me hope. I am braf negative .

        Scooby❤️

        • November 26, 2015 at 10:36 pm
        Scooby123
        Participant

        Thanks GeneS

        I called my nurse today she is going to speak to my consultant tomorrow and look at my scans hopefully and see what's going on. I have oestarthuritus in my spin back and it is stuff and can cause pain but this feels different. Fingers crossed it not the tumours or more , thank you for your reply I have read your husband profile many times which gives me hope. I am braf negative .

        Scooby❤️

      • November 28, 2015 at 4:10 pm
      geriakt
      Participant

      Scooby,

      My treatment is either IPI or NIVO and I have lower back pain as well soon after my infusions and sometimes for weeks after. I take Percocet for the pain if needed.  I do not have any METS so my cause is the treatment.

      Tom

      • November 28, 2015 at 4:10 pm
      geriakt
      Participant

      Scooby,

      My treatment is either IPI or NIVO and I have lower back pain as well soon after my infusions and sometimes for weeks after. I take Percocet for the pain if needed.  I do not have any METS so my cause is the treatment.

      Tom

      • November 28, 2015 at 4:10 pm
      geriakt
      Participant

      Scooby,

      My treatment is either IPI or NIVO and I have lower back pain as well soon after my infusions and sometimes for weeks after. I take Percocet for the pain if needed.  I do not have any METS so my cause is the treatment.

      Tom

Viewing 5 reply threads
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