Hi everyone and can I just say what lovely support and people on this site. I have been looking and learning has much as possible to help me through my stage 4 lungs liver mels tumours . A brief on my journey stage 2b 2011 but was left a year prior going to my GP for a year on many times worried about a mole was told it looked ok so a year of that before eventually getting to a dermatologist at our local hospital. Mole was taken for biopsy and came back mel 2b had it removed and was told no other treatment apart from 3 months checks for 5 year and if it came back they would catch it in lymp nodes . Was I wrong I was asking them what if due to be left a year it has already in my body but again was assured it would to to nodes first or if a cell had gone my body would probs kill it off . I asked about a scan to check but no follow ups was advices. I wish I acted on my own instinct due to after 4 years checks and telling them my back hurt and scar only to say it was my arthritis and scar tissue eventually did a scan and now stage 4 lungs liver and scatterd else where. Had a course of ippi scans tom scared due to pain where tumours are so worried if it's grown. Looking at treatment anywhere in world can anyone help am in UK am 43 female with 2 children been told clinical trial next no acces to PD1 or nivolumab in Uk am scared and a trial here is chemo and some other tablet sorry do not have details. I thought chemo was not has good as immunatherapy . Any advice would be apriciated .
scooby123
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