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- This topic has 12 replies, 4 voices, and was last updated 9 years, 1 month ago by arthurjedi007.
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- March 13, 2015 at 1:40 pm
I've had four doses of PD1 and just had my first set of scans, there was some growth in a met in my spine and a new 9mm lung met and a new 1.3cm adrenal gland met. I have mets through body in the bones and in the lungs other than what I have stated everything else was stable ( no growth). Any ideas on what I should do from here, any advice would be helpful.
Thank You
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- March 13, 2015 at 2:48 pm
I recently started PD-1 (2 infusions). My onc alerted me that results such as yours are possible. My impression is that she would recommend proceeding with PD-1 in such a circumstance. If you search the posts, there are a number of folks that did not show an immediate response to PD-1 at the first set of scans. (Although you didn't mention the brain, I would want my brain scanned at the sign of any progression elsewhere in the body–treat with SRS if needed, etc.)
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- March 13, 2015 at 2:48 pm
I recently started PD-1 (2 infusions). My onc alerted me that results such as yours are possible. My impression is that she would recommend proceeding with PD-1 in such a circumstance. If you search the posts, there are a number of folks that did not show an immediate response to PD-1 at the first set of scans. (Although you didn't mention the brain, I would want my brain scanned at the sign of any progression elsewhere in the body–treat with SRS if needed, etc.)
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- March 13, 2015 at 2:48 pm
I recently started PD-1 (2 infusions). My onc alerted me that results such as yours are possible. My impression is that she would recommend proceeding with PD-1 in such a circumstance. If you search the posts, there are a number of folks that did not show an immediate response to PD-1 at the first set of scans. (Although you didn't mention the brain, I would want my brain scanned at the sign of any progression elsewhere in the body–treat with SRS if needed, etc.)
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- March 13, 2015 at 3:18 pm
Mat is right! The now, finally!!!, accepted rule with immunotherapies is: "Give them time!!!" Sometimes what looks like inital growth on scans is enlargement in the area of the tumor due to the infiltration of t-cells and tumor death!!! Proceeding with additional treatment sounds good to me. Fingers crossed that those tumors are enlarged just before their demise!!! Wishing you my best. Celeste
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- March 13, 2015 at 3:18 pm
Mat is right! The now, finally!!!, accepted rule with immunotherapies is: "Give them time!!!" Sometimes what looks like inital growth on scans is enlargement in the area of the tumor due to the infiltration of t-cells and tumor death!!! Proceeding with additional treatment sounds good to me. Fingers crossed that those tumors are enlarged just before their demise!!! Wishing you my best. Celeste
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- March 13, 2015 at 3:18 pm
Mat is right! The now, finally!!!, accepted rule with immunotherapies is: "Give them time!!!" Sometimes what looks like inital growth on scans is enlargement in the area of the tumor due to the infiltration of t-cells and tumor death!!! Proceeding with additional treatment sounds good to me. Fingers crossed that those tumors are enlarged just before their demise!!! Wishing you my best. Celeste
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- March 13, 2015 at 4:02 pm
One thing I would ask myself is am I feeling better? A lot of people the immunotherapies take longer to kick in than four doses. When I had three doses and the scan showed some stuff still growing the doc was almost ready to pull me off the Eap trial. Last Tuesday I got dose 15. If I'm feeling better or ok I would give it more time and make sure to have a plan b just encase. Granted what that plan b could be I have no idea. Another thing I did was compare the pet scans myself. The reports and docs did not mention spots that disappeared but when I pulled up even my relatives could see little dots that used to be there weren't there anymore.
So go with your gut feeling but I would think staying on the pd1 for now is probably a good idea.
Artie
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- March 13, 2015 at 4:02 pm
One thing I would ask myself is am I feeling better? A lot of people the immunotherapies take longer to kick in than four doses. When I had three doses and the scan showed some stuff still growing the doc was almost ready to pull me off the Eap trial. Last Tuesday I got dose 15. If I'm feeling better or ok I would give it more time and make sure to have a plan b just encase. Granted what that plan b could be I have no idea. Another thing I did was compare the pet scans myself. The reports and docs did not mention spots that disappeared but when I pulled up even my relatives could see little dots that used to be there weren't there anymore.
So go with your gut feeling but I would think staying on the pd1 for now is probably a good idea.
Artie
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- March 13, 2015 at 4:02 pm
One thing I would ask myself is am I feeling better? A lot of people the immunotherapies take longer to kick in than four doses. When I had three doses and the scan showed some stuff still growing the doc was almost ready to pull me off the Eap trial. Last Tuesday I got dose 15. If I'm feeling better or ok I would give it more time and make sure to have a plan b just encase. Granted what that plan b could be I have no idea. Another thing I did was compare the pet scans myself. The reports and docs did not mention spots that disappeared but when I pulled up even my relatives could see little dots that used to be there weren't there anymore.
So go with your gut feeling but I would think staying on the pd1 for now is probably a good idea.
Artie
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