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trojansurvivor

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      trojansurvivor
      Participant

        I just sent Dr. O'Day an email  at the email above and he replied saying that he was now in excellent health and hat he  is feeling great. He has decided to leave The Angeles Clinic and hopes to be seeing patients again early in the new year probably somewhere in Santa Monica. 

        trojansurvivor
        Participant

          I just sent Dr. O'Day an email  at the email above and he replied saying that he was now in excellent health and hat he  is feeling great. He has decided to leave The Angeles Clinic and hopes to be seeing patients again early in the new year probably somewhere in Santa Monica. 

          trojansurvivor
          Participant

            I just sent Dr. O'Day an email  at the email above and he replied saying that he was now in excellent health and hat he  is feeling great. He has decided to leave The Angeles Clinic and hopes to be seeing patients again early in the new year probably somewhere in Santa Monica. 

            trojansurvivor
            Participant

              I was originally diagnosed with stage 4 about 8.5 years ago, with tumors in my liver, spine, liver and s;leen.  I went through biochemo and miraculously went into remission for a year, but had a maintenance program for a year of high dose interleuiin-2 once a month. After about a year in remission, I started to get tumors in my soft tissue in my groin and leg.  After about 4 or 5 surgeries to remove the tumors, over the next year, I had six tumors in my thigh and groin area appear.   I was one of the early ipi trial participants over 6 years ago.  I had 4 infusions 6.5 years ago and then another 4 two years later.  My side effects were primarily a rash on my abdomen and the back of my legs, and some fatique. 

              4 of my tumors shrank fairly quickly, and then disappeared within a year but one started growing a year after my second infusion and had to be surgically removed.  My last tumor then disappeared shortly after my surgery, and I have had clear scans for the last 3.5 years. I have also not had any new tumors appear since I started the IPI trial.

              IPI has saved my life !!!!

              trojansurvivor
              Participant

                I was originally diagnosed with stage 4 about 8.5 years ago, with tumors in my liver, spine, liver and s;leen.  I went through biochemo and miraculously went into remission for a year, but had a maintenance program for a year of high dose interleuiin-2 once a month. After about a year in remission, I started to get tumors in my soft tissue in my groin and leg.  After about 4 or 5 surgeries to remove the tumors, over the next year, I had six tumors in my thigh and groin area appear.   I was one of the early ipi trial participants over 6 years ago.  I had 4 infusions 6.5 years ago and then another 4 two years later.  My side effects were primarily a rash on my abdomen and the back of my legs, and some fatique. 

                4 of my tumors shrank fairly quickly, and then disappeared within a year but one started growing a year after my second infusion and had to be surgically removed.  My last tumor then disappeared shortly after my surgery, and I have had clear scans for the last 3.5 years. I have also not had any new tumors appear since I started the IPI trial.

                IPI has saved my life !!!!

                trojansurvivor
                Participant

                  I had two treatments with ipi.  The first serious of infusions was 6 years ago,  and my second was about 4 years ago.  I just had my twice a year pet scan and my scans are still clear.  I am still in full remission after 3 and a half years.  I will have scans every 6 months, and if there is no recurrence there is no plan to give me more treatment.  If I have a reoccurence, my doctor says that I would be given another round of ipi, and for those that have had a good result on ipi, that retreatment has a very high percentage of success. 

                  trojansurvivor
                  Participant

                    I had two treatments with ipi.  The first serious of infusions was 6 years ago,  and my second was about 4 years ago.  I just had my twice a year pet scan and my scans are still clear.  I am still in full remission after 3 and a half years.  I will have scans every 6 months, and if there is no recurrence there is no plan to give me more treatment.  If I have a reoccurence, my doctor says that I would be given another round of ipi, and for those that have had a good result on ipi, that retreatment has a very high percentage of success. 

                    trojansurvivor
                    Participant

                      I do not know the dosage as it was a blind trial, but I know that I had the drug as I ddi develop a rash on my stomach and back of my legs which was one of the listed side effects. I received 4 IV doses every 3 weeks for both my initial treatment in December 2204 and then 2 years later.

                      trojansurvivor
                      Participant

                        I do not know the dosage as it was a blind trial, but I know that I had the drug as I ddi develop a rash on my stomach and back of my legs which was one of the listed side effects. I received 4 IV doses every 3 weeks for both my initial treatment in December 2204 and then 2 years later.

                        trojansurvivor
                        Participant

                          My prayers will be with you. Good luck and keep the faith

                          trojansurvivor
                          Participant

                            My prayers will be with you. Good luck and keep the faith

                            trojansurvivor
                            Participant

                              I think that I was HLA-A2

                              trojansurvivor
                              Participant

                                I think that I was HLA-A2

                                trojansurvivor
                                Participant

                                  It was administered through an  IV through 4 IV infusions every 3 weeks. 

                                  trojansurvivor
                                  Participant

                                    It was administered through an  IV through 4 IV infusions every 3 weeks. 

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