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tricialeigh44

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      tricialeigh44
      Participant

        Hi Kevin

        So happy to hear that you are doing well! We need to catch up!

        Tricia

        tricialeigh44
        Participant

          Hi Kevin

          So happy to hear that you are doing well! We need to catch up!

          Tricia

          tricialeigh44
          Participant

            I just logged on to ask the exact same question. My mum was diagnosed May 2010 as well, 3 rounds of IL2 and is starting IPI next week.

            Praying this works!

            Tricia

            tricialeigh44
            Participant

              I just logged on to ask the exact same question. My mum was diagnosed May 2010 as well, 3 rounds of IL2 and is starting IPI next week.

              Praying this works!

              Tricia

              tricialeigh44
              Participant

                Kevin, that is awesome news! I was waiting for your email, so I thought I would check on here. SOOOOO happy for you and Brenda! LOVE good news.

                Congrats!!

                Tricia

                tricialeigh44
                Participant

                  Kevin, that is awesome news! I was waiting for your email, so I thought I would check on here. SOOOOO happy for you and Brenda! LOVE good news.

                  Congrats!!

                  Tricia

                  tricialeigh44
                  Participant

                    Thanks so much for all your responses. There was a bit of confusion on the CT report, so Roswell Park is requesting the CD's to look at the CTs themselves. Little bit worried about this.

                     

                    As with everyone on this board, I am so sick of that pesky sick feeling in my stomach everytime we have an appointment or think about results. I constantly feel sick and am CONSTANTLY wondering what will happen next. I am trying SO hard to just enjoy the time my mom has with my family and not think what will happen next.  My mum is very healthy and feeling great right now (thank God!) I adore my mum and I am scared to death for her.

                    I wish this nightmare would end.

                    Sorry for venting…

                    tricialeigh44
                    Participant

                      Thanks so much for all your responses. There was a bit of confusion on the CT report, so Roswell Park is requesting the CD's to look at the CTs themselves. Little bit worried about this.

                       

                      As with everyone on this board, I am so sick of that pesky sick feeling in my stomach everytime we have an appointment or think about results. I constantly feel sick and am CONSTANTLY wondering what will happen next. I am trying SO hard to just enjoy the time my mom has with my family and not think what will happen next.  My mum is very healthy and feeling great right now (thank God!) I adore my mum and I am scared to death for her.

                      I wish this nightmare would end.

                      Sorry for venting…

                      tricialeigh44
                      Participant

                        Hello

                        I have not been able to stop thinking about you since I read your reply. First of all, I am so sorry for your loss, your husband sounds like he was a quite a fighter.

                        I felt like I was hit in the stomach when I read that you had a one year old daughter. I can't imagine how painful it must be to lose your husband at such a young age. I have two children and my daughter was actually born on May 9 of this year.  We found out my mom had tumors on her chest x ray 8 days after her birth and just recently found out it was malignant melanoma. I didn't realize that this disease affects so many young people. Your reply has reminded me of how important my family is and to not take anything for granted.

                        My Mom had decided to go with Interleuken 2, she feels it will give her the best chance of survival at this point. I am supporting her decision 100% and will pray that it works for her. She is in extremely good health right now and we plan on spending a lot of time with my kids before she starts the therapy. I told her about your reply and how the BRAF worked for your husband. We are both really worried at this point that she may end up randomized to the decarbazine. I am hoping BRAF will be available to her if the IL 2 should not be effective (fingers crossed it will work).

                        I want you to know that you and your daughter are in my thoughts and prayers as well. I hope your daughter will get you through this difficult time (thank God for our children!). My mom was a single parent and is my best friend. I consider myself extremely lucky to have had such a wonderful, strong women as my role model.

                        THanks again for your reply

                        Tricia

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