Forum Replies Created
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- May 24, 2011 at 8:19 pm
Good luck with the ipi Tracy. I've heard good things about it. I haven't heard good things about interferon or DCIT.
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- May 24, 2011 at 8:19 pm
Good luck with the ipi Tracy. I've heard good things about it. I haven't heard good things about interferon or DCIT.
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- May 25, 2011 at 8:38 pm
I'm sorry but I find your statement that the treatment was only done on otherwise healthy people. Many of those people were stage 4. I'm sure there are many stage 3 and 4 on this forum that are otherwise healthy. All these studies cost large amounts of money, which big pharma hopes to get back if the treatment really does extend life. Here we have a treatment that has been shown not only to extend life, but also cure stage 4 melanoma. Your last sentence about taking people near death seems to contradict the sentence where you say treatment was done on otherwise healthy individuals.
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- May 25, 2011 at 8:38 pm
I'm sorry but I find your statement that the treatment was only done on otherwise healthy people. Many of those people were stage 4. I'm sure there are many stage 3 and 4 on this forum that are otherwise healthy. All these studies cost large amounts of money, which big pharma hopes to get back if the treatment really does extend life. Here we have a treatment that has been shown not only to extend life, but also cure stage 4 melanoma. Your last sentence about taking people near death seems to contradict the sentence where you say treatment was done on otherwise healthy individuals.
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- May 25, 2011 at 3:33 pm
Thanks very much for the information you have provided me. I just have to get this more than 3 weeks of diareha investigated. I'm going to ask my doctor for a barium xray to start. My wife thinks it's nerves, but I know my body and something is wrong, so not knowing dosen't work for me.
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- May 25, 2011 at 3:33 pm
Thanks very much for the information you have provided me. I just have to get this more than 3 weeks of diareha investigated. I'm going to ask my doctor for a barium xray to start. My wife thinks it's nerves, but I know my body and something is wrong, so not knowing dosen't work for me.
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- May 24, 2011 at 8:32 pm
Mary-Ellen did you see an oncologist at the Vancouver Cancer Clinic? Are Pet Scans totally unreliable? Can you tell me what options are avilable with DR. Smylie?
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- May 24, 2011 at 8:32 pm
Mary-Ellen did you see an oncologist at the Vancouver Cancer Clinic? Are Pet Scans totally unreliable? Can you tell me what options are avilable with DR. Smylie?
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- May 24, 2011 at 8:13 pm
I very much appreciate the help and input all of you here have given me. When my melanoma came back after 22 years appearing in a lymph node, my family doctor took it out and the pathology came back positive. I then saw a melanoma oncologist at the Vancouver Cancer clinic where he had me have a full body FDG Pet Scan which came out negative. There wasn't a sentinal node biopsy done. Was it deemed not necessary because of the negative Pet scan? I just don't know how reliable a FDG Pet scan is for finding melanoma. My view of life is never to go quietly into the night. I truly believe with a disease like this you have to " take it to the limit" to quote the Eagles song. I read that story about DR. Rosenberg who took stem cells from a 55 year old stage 4 patient. He grew the stem cells till they numbered in the billions. The patient had chemotheropy( 06-C-0136), followed by full body irradiationen2 treatments a day for three days). Then he had 10 rounds of IL-2. All of these treatments were to weaken the melonoma cells to the point they could be killed in the final chapter. The final chapter was to infuse the billions of Stem cells back into his body. His full body scan after was totally negative for 5 years. This is what I want, but I don't know anyone in Canada that does this. Since I live in Canada, to have this done in the States would probably cost me six figures. I feel there are better treatments out there, but our medical system dosen't want to spend the bucks. Again, God bless you all and keep fighting. I'm thinking of you all.
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- May 24, 2011 at 8:13 pm
I very much appreciate the help and input all of you here have given me. When my melanoma came back after 22 years appearing in a lymph node, my family doctor took it out and the pathology came back positive. I then saw a melanoma oncologist at the Vancouver Cancer clinic where he had me have a full body FDG Pet Scan which came out negative. There wasn't a sentinal node biopsy done. Was it deemed not necessary because of the negative Pet scan? I just don't know how reliable a FDG Pet scan is for finding melanoma. My view of life is never to go quietly into the night. I truly believe with a disease like this you have to " take it to the limit" to quote the Eagles song. I read that story about DR. Rosenberg who took stem cells from a 55 year old stage 4 patient. He grew the stem cells till they numbered in the billions. The patient had chemotheropy( 06-C-0136), followed by full body irradiationen2 treatments a day for three days). Then he had 10 rounds of IL-2. All of these treatments were to weaken the melonoma cells to the point they could be killed in the final chapter. The final chapter was to infuse the billions of Stem cells back into his body. His full body scan after was totally negative for 5 years. This is what I want, but I don't know anyone in Canada that does this. Since I live in Canada, to have this done in the States would probably cost me six figures. I feel there are better treatments out there, but our medical system dosen't want to spend the bucks. Again, God bless you all and keep fighting. I'm thinking of you all.
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- May 24, 2011 at 12:36 am
Well Linda, 27 years later is amazing. That's what's so frustrating about this disease. It hides and surprises you when you think you have it beat. I hear IL-2 has better success than interferon. My Pet scan was negative, but that dosen't mean I don't have melanoma cells in the body. Apparently it can't show small numbers of cancer cells. I want to hit this hard, like a sword being plunged into the fire to make it stronger.
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- May 24, 2011 at 12:36 am
Well Linda, 27 years later is amazing. That's what's so frustrating about this disease. It hides and surprises you when you think you have it beat. I hear IL-2 has better success than interferon. My Pet scan was negative, but that dosen't mean I don't have melanoma cells in the body. Apparently it can't show small numbers of cancer cells. I want to hit this hard, like a sword being plunged into the fire to make it stronger.
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- May 23, 2011 at 11:42 pm
I went to the Vancouver Cancer Agency. I saw a Doctor Klasa who I was told was part of the Melanoma team. He is an Oncologist. Do you know if B.C.s MSP covers treatment in Canada outside of B.C.?
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- May 23, 2011 at 11:42 pm
I went to the Vancouver Cancer Agency. I saw a Doctor Klasa who I was told was part of the Melanoma team. He is an Oncologist. Do you know if B.C.s MSP covers treatment in Canada outside of B.C.?
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- May 23, 2011 at 10:21 pm
Thanks TracyLee, I appreciate you kind words. I've read about your struggle, and I admire your fortitude and spirit. I'll keep you in my prayers along with all the others that share this common enemy.
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