TerraO

Hi Kate,

It was a long appointment, but I felt that I got satisfactory answers about how the team is prepared to care for me should I have side effects. I've decided to ask to be reviewed for the Clinical Trail. Tomorrow I get another PET/CT (trial requires clean one within 28 days; I was 30 days past at the time of my Dr appt.)

I will be signing the paper work and have blood drawn on Thursday, and I will be randomized soon. Not sure when treatment will start…hoping to get the rest of March for a "normal" month.

I honestly need to stop reading about side effects. :-/ Fear if the unknown is the worst.

Hi Kate,

It was a long appointment, but I felt that I got satisfactory answers about how the team is prepared to care for me should I have side effects. I've decided to ask to be reviewed for the Clinical Trail. Tomorrow I get another PET/CT (trial requires clean one within 28 days; I was 30 days past at the time of my Dr appt.)

I will be signing the paper work and have blood drawn on Thursday, and I will be randomized soon. Not sure when treatment will start…hoping to get the rest of March for a "normal" month.

I honestly need to stop reading about side effects. :-/ Fear if the unknown is the worst.

Hi Kate,

It was a long appointment, but I felt that I got satisfactory answers about how the team is prepared to care for me should I have side effects. I've decided to ask to be reviewed for the Clinical Trail. Tomorrow I get another PET/CT (trial requires clean one within 28 days; I was 30 days past at the time of my Dr appt.)

I will be signing the paper work and have blood drawn on Thursday, and I will be randomized soon. Not sure when treatment will start…hoping to get the rest of March for a "normal" month.

I honestly need to stop reading about side effects. :-/ Fear if the unknown is the worst.

My oncologist's professional bio lists him as 'Professor of Medicine in the Division of Hematology/Oncology.' His specialities are listed as 'Interernal Medicine, Medical Oncology, Hematology." BUT I also know that both he and my surgeon sit on a melanoma team that meets twice a month where the group discusses treatment for all the melanoma patients being treated at Wilmot Cancer Center.

So… is that good?

My oncologist's professional bio lists him as 'Professor of Medicine in the Division of Hematology/Oncology.' His specialities are listed as 'Interernal Medicine, Medical Oncology, Hematology." BUT I also know that both he and my surgeon sit on a melanoma team that meets twice a month where the group discusses treatment for all the melanoma patients being treated at Wilmot Cancer Center.

So… is that good?

My oncologist's professional bio lists him as 'Professor of Medicine in the Division of Hematology/Oncology.' His specialities are listed as 'Interernal Medicine, Medical Oncology, Hematology." BUT I also know that both he and my surgeon sit on a melanoma team that meets twice a month where the group discusses treatment for all the melanoma patients being treated at Wilmot Cancer Center.

So… is that good?

I do have a lot of questions, and these posts are tremendous in helping me to articulate those questions. My appointment was supposed to be today, but due to the blizzard has been rescheduled to tomorrow. (And this is Rochester,  NY, where we usually just shrug and go on with life in a winter storm!)

I do have a lot of questions, and these posts are tremendous in helping me to articulate those questions. My appointment was supposed to be today, but due to the blizzard has been rescheduled to tomorrow. (And this is Rochester,  NY, where we usually just shrug and go on with life in a winter storm!)

I do have a lot of questions, and these posts are tremendous in helping me to articulate those questions. My appointment was supposed to be today, but due to the blizzard has been rescheduled to tomorrow. (And this is Rochester,  NY, where we usually just shrug and go on with life in a winter storm!)

Thank you, Kate. I will be asking again about BRAF testing. But, the BRAF trials I see on NIH seem to be double-blind and placeco managed. Those two aspects push that option very low on my list. I have read a number of trials that are open for Melanoma, but their criteria are very specific and I do not seem to match any but the Ipi vs. Interferon. I've had successful resection and no mets.

My oncologist has been practicing medicine for as long as I have been alive, and his melanoma experience goes back to the 1980s. I could ask more probing questions about his experiences specific to the managing side effects topic. Thank you for bringing that up.

I am very nearly decided that I would like to try the trial, and hope I get in an Ipi arm.

Thank you, Kate. I will be asking again about BRAF testing. But, the BRAF trials I see on NIH seem to be double-blind and placeco managed. Those two aspects push that option very low on my list. I have read a number of trials that are open for Melanoma, but their criteria are very specific and I do not seem to match any but the Ipi vs. Interferon. I've had successful resection and no mets.

My oncologist has been practicing medicine for as long as I have been alive, and his melanoma experience goes back to the 1980s. I could ask more probing questions about his experiences specific to the managing side effects topic. Thank you for bringing that up.

I am very nearly decided that I would like to try the trial, and hope I get in an Ipi arm.

Thank you, Kate. I will be asking again about BRAF testing. But, the BRAF trials I see on NIH seem to be double-blind and placeco managed. Those two aspects push that option very low on my list. I have read a number of trials that are open for Melanoma, but their criteria are very specific and I do not seem to match any but the Ipi vs. Interferon. I've had successful resection and no mets.

My oncologist has been practicing medicine for as long as I have been alive, and his melanoma experience goes back to the 1980s. I could ask more probing questions about his experiences specific to the managing side effects topic. Thank you for bringing that up.

I am very nearly decided that I would like to try the trial, and hope I get in an Ipi arm.

Thank you, Judy. Gene's story is very encouraging about Ipi! Is the prednisone issue caused directly by the Ipi?

Thank you, Judy. Gene's story is very encouraging about Ipi! Is the prednisone issue caused directly by the Ipi?

Thank you, Judy. Gene's story is very encouraging about Ipi! Is the prednisone issue caused directly by the Ipi?