The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Sue33CT

Forum Replies Created

Viewing 2 reply threads
  • Replies
      Sue33CT
      Participant

        Comments were closed there or I would have posted there…your letter was wonderful! 

        Physicians – "studies show that they are just as capable of emotions as their patients are."  And this is a surprise why…because we patients are supposed to think of them as Gods and not simple human beings like the rest of us?

        What an arrogant article.  I met a doctor like this once…one who thought he held the key to life or death his well-educated hands.  He read my father's brain scan and said "for all intents and purposes, he's brain dead.  There is no point in continuing medical intervention, just let nature take it's course."  We fired him.  We got a new neurologist who looked at the exact same brain scan and said "I don't know.  Things like this are not black and white.  Sometimes…we have to just go with our gutt and see what happens." 

        We continued medical intervention and my Dad came out of his coma, went on to live for years in a nice apartment at an assisted living facility. Oh and mentally…100%!!  He was as intelligent as before the illness, had all his long term memory – the only thing he had no memory of was the time in the hospital – and his short-term memory was actually better than my sister and I mid-menopause!!  During those many months with my Dad in the hospital after the coma and during the long recovery, I learned one thing – a LOT of the practice of medicine is guesswork.  Educated guesses.  And just that…a practice.  Not always perfect, but always a learning experience.  That is…unless the doctor thinks he is a God who holds the balance of live and death in his/her hands.

        As for doctors who "endorse treatments that most likely won’t save patients’ lives, but may cause them unnecessary suffering and inch their families toward medical bankruptcy" – well that is why every person should have a living will.  And if they choose to spend THEIR money on treatments that don't work…blame the pharmaceutical industry not the patients for believing in their marketing!  Stop teaching things to doctors in Medical School that won't work…why blame the patient? People spend money on fast cars, cigarettes, houses far larger than anyone needs – why does the medical profession feel they get to judge just how far a family will go to live?  If something does not work…then tell the FDA to disallow it instead of allowing doctors and hospitals to get rich from it.

        After my Father was in his apartment I had a conversation with him.  I said "Daddy, you had a living will and there were times while you were in the coma that we really did come right up to the line as far as how much was too much.  I know you wish you were still at home and not living in this apartment, but did we do the right thing?"  "HELL YES! I'm glad to be alive!" he replied!

        Sue33CT
        Participant

          Comments were closed there or I would have posted there…your letter was wonderful! 

          Physicians – "studies show that they are just as capable of emotions as their patients are."  And this is a surprise why…because we patients are supposed to think of them as Gods and not simple human beings like the rest of us?

          What an arrogant article.  I met a doctor like this once…one who thought he held the key to life or death his well-educated hands.  He read my father's brain scan and said "for all intents and purposes, he's brain dead.  There is no point in continuing medical intervention, just let nature take it's course."  We fired him.  We got a new neurologist who looked at the exact same brain scan and said "I don't know.  Things like this are not black and white.  Sometimes…we have to just go with our gutt and see what happens." 

          We continued medical intervention and my Dad came out of his coma, went on to live for years in a nice apartment at an assisted living facility. Oh and mentally…100%!!  He was as intelligent as before the illness, had all his long term memory – the only thing he had no memory of was the time in the hospital – and his short-term memory was actually better than my sister and I mid-menopause!!  During those many months with my Dad in the hospital after the coma and during the long recovery, I learned one thing – a LOT of the practice of medicine is guesswork.  Educated guesses.  And just that…a practice.  Not always perfect, but always a learning experience.  That is…unless the doctor thinks he is a God who holds the balance of live and death in his/her hands.

          As for doctors who "endorse treatments that most likely won’t save patients’ lives, but may cause them unnecessary suffering and inch their families toward medical bankruptcy" – well that is why every person should have a living will.  And if they choose to spend THEIR money on treatments that don't work…blame the pharmaceutical industry not the patients for believing in their marketing!  Stop teaching things to doctors in Medical School that won't work…why blame the patient? People spend money on fast cars, cigarettes, houses far larger than anyone needs – why does the medical profession feel they get to judge just how far a family will go to live?  If something does not work…then tell the FDA to disallow it instead of allowing doctors and hospitals to get rich from it.

          After my Father was in his apartment I had a conversation with him.  I said "Daddy, you had a living will and there were times while you were in the coma that we really did come right up to the line as far as how much was too much.  I know you wish you were still at home and not living in this apartment, but did we do the right thing?"  "HELL YES! I'm glad to be alive!" he replied!

          Sue33CT
          Participant

            Comments were closed there or I would have posted there…your letter was wonderful! 

            Physicians – "studies show that they are just as capable of emotions as their patients are."  And this is a surprise why…because we patients are supposed to think of them as Gods and not simple human beings like the rest of us?

            What an arrogant article.  I met a doctor like this once…one who thought he held the key to life or death his well-educated hands.  He read my father's brain scan and said "for all intents and purposes, he's brain dead.  There is no point in continuing medical intervention, just let nature take it's course."  We fired him.  We got a new neurologist who looked at the exact same brain scan and said "I don't know.  Things like this are not black and white.  Sometimes…we have to just go with our gutt and see what happens." 

            We continued medical intervention and my Dad came out of his coma, went on to live for years in a nice apartment at an assisted living facility. Oh and mentally…100%!!  He was as intelligent as before the illness, had all his long term memory – the only thing he had no memory of was the time in the hospital – and his short-term memory was actually better than my sister and I mid-menopause!!  During those many months with my Dad in the hospital after the coma and during the long recovery, I learned one thing – a LOT of the practice of medicine is guesswork.  Educated guesses.  And just that…a practice.  Not always perfect, but always a learning experience.  That is…unless the doctor thinks he is a God who holds the balance of live and death in his/her hands.

            As for doctors who "endorse treatments that most likely won’t save patients’ lives, but may cause them unnecessary suffering and inch their families toward medical bankruptcy" – well that is why every person should have a living will.  And if they choose to spend THEIR money on treatments that don't work…blame the pharmaceutical industry not the patients for believing in their marketing!  Stop teaching things to doctors in Medical School that won't work…why blame the patient? People spend money on fast cars, cigarettes, houses far larger than anyone needs – why does the medical profession feel they get to judge just how far a family will go to live?  If something does not work…then tell the FDA to disallow it instead of allowing doctors and hospitals to get rich from it.

            After my Father was in his apartment I had a conversation with him.  I said "Daddy, you had a living will and there were times while you were in the coma that we really did come right up to the line as far as how much was too much.  I know you wish you were still at home and not living in this apartment, but did we do the right thing?"  "HELL YES! I'm glad to be alive!" he replied!

            Sue33CT
            Participant

              Thank you Esther, for sharing a story about your actual experience with Medicare.  I agree 100% – ObamaCare will benefit more people than what we have had in the past and I am all for it. Our family had the same experience with Medicare in caring for our parents and in-laws – no one was ever denied anything and the costs were affordable, instead of resulting in our elderly relatives having to sell their homes to pay their bills!  It's important to listed to people like you who have real-life experiences with this and to put the opinions of people who just read articles about it, into perspective. And of course I have to wonder…if this country is so full of fault and poor solutions to peoples medical care – how come the previous writer keeps coming back here for treatment?  

              Sue33CT
              Participant

                Thank you Esther, for sharing a story about your actual experience with Medicare.  I agree 100% – ObamaCare will benefit more people than what we have had in the past and I am all for it. Our family had the same experience with Medicare in caring for our parents and in-laws – no one was ever denied anything and the costs were affordable, instead of resulting in our elderly relatives having to sell their homes to pay their bills!  It's important to listed to people like you who have real-life experiences with this and to put the opinions of people who just read articles about it, into perspective. And of course I have to wonder…if this country is so full of fault and poor solutions to peoples medical care – how come the previous writer keeps coming back here for treatment?  

                Sue33CT
                Participant

                  Thank you Esther, for sharing a story about your actual experience with Medicare.  I agree 100% – ObamaCare will benefit more people than what we have had in the past and I am all for it. Our family had the same experience with Medicare in caring for our parents and in-laws – no one was ever denied anything and the costs were affordable, instead of resulting in our elderly relatives having to sell their homes to pay their bills!  It's important to listed to people like you who have real-life experiences with this and to put the opinions of people who just read articles about it, into perspective. And of course I have to wonder…if this country is so full of fault and poor solutions to peoples medical care – how come the previous writer keeps coming back here for treatment?  

                  Sue33CT
                  Participant

                    Thanks so much for the fundraising update – $10,923.00 – that number gives me goosebumps!!  It really is moving and inspiring how much good people can do when they think and act like a real community and work together…great job! smiley

                    Sue33CT
                    Participant

                      Thanks so much for the fundraising update – $10,923.00 – that number gives me goosebumps!!  It really is moving and inspiring how much good people can do when they think and act like a real community and work together…great job! smiley

                      Sue33CT
                      Participant

                        Thanks so much for the fundraising update – $10,923.00 – that number gives me goosebumps!!  It really is moving and inspiring how much good people can do when they think and act like a real community and work together…great job! smiley

                        Sue33CT
                        Participant

                          was treated in February at Will's. I didn't ask how long she had been using ointment, I asked if using ointment months after treatment was common. And no…I have never heard of anyone using ointment months after having plaque…that's why I asked if it was common.

                          Sue33CT
                          Participant

                            was treated in February at Will's. I didn't ask how long she had been using ointment, I asked if using ointment months after treatment was common. And no…I have never heard of anyone using ointment months after having plaque…that's why I asked if it was common.

                            Sue33CT
                            Participant

                              was treated in February at Will's. I didn't ask how long she had been using ointment, I asked if using ointment months after treatment was common. And no…I have never heard of anyone using ointment months after having plaque…that's why I asked if it was common.

                              Sue33CT
                              Participant

                                You volunteered that you are putting ointment in your eyes and if this was a sensitive topic perhaps you might not have shared that.  I am sorry asking "is this common" was somehow offensive to you.  Perhaps in the future if a certain aspect of this disease is something you don't want to be questioned about – you don't post about it. 

                                Sue33CT
                                Participant

                                  You volunteered that you are putting ointment in your eyes and if this was a sensitive topic perhaps you might not have shared that.  I am sorry asking "is this common" was somehow offensive to you.  Perhaps in the future if a certain aspect of this disease is something you don't want to be questioned about – you don't post about it. 

                                  Sue33CT
                                  Participant

                                    You volunteered that you are putting ointment in your eyes and if this was a sensitive topic perhaps you might not have shared that.  I am sorry asking "is this common" was somehow offensive to you.  Perhaps in the future if a certain aspect of this disease is something you don't want to be questioned about – you don't post about it. 

                                Viewing 2 reply threads