SRS
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SRS

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      • March 6, 2012 at 1:36 am
      SRS
      Participant

      Are your husband's doctors oncologists who specalize in melanoma?  If so great!  If not, I would recommend seeking out the nearest Melanoma Treatment Center. 

      http://www.melanoma.org/learn-more/melanoma-treatment-centers

      It is some work to have records copied and sent, it's worth it.

      The waiting is excruciating.  I feel your pain.  And if we, as caregivers, think it's a long wait I can only imagine what it must be like to be our patients.

      • March 6, 2012 at 1:36 am
      SRS
      Participant

      Are your husband's doctors oncologists who specalize in melanoma?  If so great!  If not, I would recommend seeking out the nearest Melanoma Treatment Center. 

      http://www.melanoma.org/learn-more/melanoma-treatment-centers

      It is some work to have records copied and sent, it's worth it.

      The waiting is excruciating.  I feel your pain.  And if we, as caregivers, think it's a long wait I can only imagine what it must be like to be our patients.

      • March 6, 2012 at 1:36 am
      SRS
      Participant

      Are your husband's doctors oncologists who specalize in melanoma?  If so great!  If not, I would recommend seeking out the nearest Melanoma Treatment Center. 

      http://www.melanoma.org/learn-more/melanoma-treatment-centers

      It is some work to have records copied and sent, it's worth it.

      The waiting is excruciating.  I feel your pain.  And if we, as caregivers, think it's a long wait I can only imagine what it must be like to be our patients.

      • March 6, 2012 at 1:18 am
      SRS
      Participant

      Wow! Going to email some of the investigators in just a minute.  If you don't mind me asking, why are you waiting to try for that since you are NRAS mutated?

      • March 6, 2012 at 1:18 am
      SRS
      Participant

      Wow! Going to email some of the investigators in just a minute.  If you don't mind me asking, why are you waiting to try for that since you are NRAS mutated?

      • March 6, 2012 at 1:18 am
      SRS
      Participant

      Wow! Going to email some of the investigators in just a minute.  If you don't mind me asking, why are you waiting to try for that since you are NRAS mutated?

      • March 6, 2012 at 1:16 am
      SRS
      Participant

      Wow! Going to email some of the investigators in just a minute.  If you don't mind me asking, why are you waiting to try for that since you are NRAS mutated?

      • March 6, 2012 at 1:16 am
      SRS
      Participant

      Wow! Going to email some of the investigators in just a minute.  If you don't mind me asking, why are you waiting to try for that since you are NRAS mutated?

      • March 6, 2012 at 1:16 am
      SRS
      Participant

      Wow! Going to email some of the investigators in just a minute.  If you don't mind me asking, why are you waiting to try for that since you are NRAS mutated?

      • March 6, 2012 at 1:11 am
      SRS
      Participant

      Thanks for the link, DonW.  I checked it out and found it helpful.

      • March 6, 2012 at 1:11 am
      SRS
      Participant

      Thanks for the link, DonW.  I checked it out and found it helpful.

      • March 6, 2012 at 1:11 am
      SRS
      Participant

      Thanks for the link, DonW.  I checked it out and found it helpful.

      • March 6, 2012 at 1:04 am
      SRS
      Participant

      Thanks for considering this, ctlml.  I've also read about Moffitt and others running out of funds for the TIL programs.  We will be checking into other options.

      About insurance companies requiring chemo before approving ipi — that doesn't make sense to me as many patients seem to have the option of treatment with ipi first.  I was under the impression that the decision to start with chemotherapy was strictly clinical and had nothing to do with the insurance company dictating care.  I will be checking into this, however, We will be getting to ipi as soon as possible. 

      Thanks again,

      SRS

       

      • March 6, 2012 at 1:04 am
      SRS
      Participant

      Thanks for considering this, ctlml.  I've also read about Moffitt and others running out of funds for the TIL programs.  We will be checking into other options.

      About insurance companies requiring chemo before approving ipi — that doesn't make sense to me as many patients seem to have the option of treatment with ipi first.  I was under the impression that the decision to start with chemotherapy was strictly clinical and had nothing to do with the insurance company dictating care.  I will be checking into this, however, We will be getting to ipi as soon as possible. 

      Thanks again,

      SRS

       

      • March 6, 2012 at 1:04 am
      SRS
      Participant

      Thanks for considering this, ctlml.  I've also read about Moffitt and others running out of funds for the TIL programs.  We will be checking into other options.

      About insurance companies requiring chemo before approving ipi — that doesn't make sense to me as many patients seem to have the option of treatment with ipi first.  I was under the impression that the decision to start with chemotherapy was strictly clinical and had nothing to do with the insurance company dictating care.  I will be checking into this, however, We will be getting to ipi as soon as possible. 

      Thanks again,

      SRS

       

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